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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Throwing Up
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I ate some pizza with wheat today. Dumb, I know. Believe me, I've learned my lesson.

I thought I would be okay, because it was just part of a piece, but a few hours later I threw up. I had been eating wheat for 16 years before I was diagonosed and never threw it up. I'm 17, and was diagonsosed a couple months ago. Why would I suddenly throw up wheat if I'd been eating it for 16 years with nothing happening? I have been avoiding wheat, besides that pizza.

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Perhaps it was somewhat psychological? Once you knew you ate something you should not have, you realized you made a big mistake. And that mentality aided in the regurgitation of food?

It also could have been the combination of dairy and wheat. I found that the older I got the more lactose intolerant I became. I found it harder to keep down all in general, especially milk.

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Sarahann, I was eating gluten for 48 years before I went gluten free. Never once could I attribute throwing up with gluten. But now since being gluten-free, I have had the unpleasant feeling of wanting to throw up and throwing up. So it can happen.

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I ate some pizza with wheat today. Dumb, I know. Believe me, I've learned my lesson.

I thought I would be okay, because it was just part of a piece, but a few hours later I threw up. I had been eating wheat for 16 years before I was diagonosed and never threw it up. I'm 17, and was diagonsosed a couple months ago. Why would I suddenly throw up wheat if I'd been eating it for 16 years with nothing happening? I have been avoiding wheat, besides that pizza.

I loved to eat bread and pasta and never, ever had a reaction from it. Now a crouton can produce a reaction, usually as diarrhea but I have had nausea too. It is strange but in a way it is also satisfying having the confirmation that my body needs to avoid this stuff.

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I loved to eat bread and pasta and never, ever had a reaction from it. Now a crouton can produce a reaction, usually as diarrhea but I have had nausea too. It is strange but in a way it is also satisfying having the confirmation that my body needs to avoid this stuff.

I'm the same way. It's interesting how are bodies "almost" get used to the gluten.

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Hi, my daughter is also 17 and just recently diagnosed. Everything hit her about a year ago this month and it took them a while to figure it out. One of her main symptoms was the vomitting due to the casein in dairy products. Everytime she ate or drank dairy products she would throw up not from the wheat. When I suspected her to have celiac I took her off gluten and she was still vomitting. Then I read on this site to eliminate dairy and when we did no more vomitting. I hope you figure it out. In the meantime you might want to eliminate dairy and see what happens.

Claudia

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I'm the same way. It's interesting how are bodies "almost" get used to the gluten.

Yes, but look what they do to us in the process of dealing with this gluten :o

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I have been gluten free for 3 months now, after realizing I have been celiac for over a decade.. I am now the textbook definition of a super sensitive celiac. I had no stomach symptoms when I was eating gluten, however, I had several other symptoms. Itching and inability to drink whiskey were the 2 things that led me to my answer, as apparently dr.s dont ever seem to get it. Now I have a more sensitive stomach than ever. I believe it is healing..and actually digesting food. Anytime I have even the slightest cross contamination, I vomit now. Boooooo.Usually just once with food. If I drink out of a glass that previously had whisky in it or something I didnt realize had grain alcohol in it, was fermented with wheat, etc..I throw up for 4=6 hours like food poisoning. Clockwork. This is what led me to becoming gluten free and figuring out what the hell was Wrong with me. I am going to be 30 next month. Hopefully I wont sleep through my party! If you are in portland oregon, holler and lets have gluten-free meals! Grass fed animals, as that is all I can eat anymore :) I could use some new styles of food! 

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Welcome to the forum Brumhelga! :)

 

Here are a couple threads with basic information to help you get started.  Feel free to ask questions, we are generally a friendly bunch!

 

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
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    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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