• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hand Swelling And Constipation!
0

7 posts in this topic

Hello Everyone,

I was just wondering if anyone could offer me some advice. Sometimes my hands swell at night. And when I wake up the swelling goes down. Most of the time it only happens in one hand per night. I never had problems with my hands until the initial onset of crazy symptoms came on. Although I have not officially been diagnosed with Celiac (I had a blood test last week still waiting for results) I have been on a gluten free diet for approx. 2 weeks now and I feel somewhat better. But I am also going on a detox program which was recommended by my doc. I occasionally still have the hand swelling thing.

I also wanted to know if anyone else has had problems with constipation. I occasionally get diaherra, but I also get constipated. And I've noticed that most people in this forum has said abnormally large stools. Does anyone have small stools? I realized this is getting into some personal stuff but I really could use the advice. These are not the only symptoms I have. I also have: Chest pain (diagnosed as costochondtritis), irregular heartbeat, ringing in the ears, itchy hands and feet, eye floaters, pain in my throat, severe dandruff, headaches, abdominal pain, pain in my lower back on the right side, joint pain/muscle pain, bloated feetling, mentrual cramping, swollen lymph nodes, neck pain, upper back pain, insomnia, breast pain, and I also need to mention that I have lost 18 lbs. I am only 30 years old and I have a 19 month old daughter. All of these symptoms started approx. 2 weeks after I stopped breast feeding. The doctor initially thought it was hormone related, but he tested all of my hormones at they are at normal levels. I did have a vitamin D deficiency (Test Level= 6) I was on 50,000 icu of vitamin D for 3 months and my vitamin D level is up to 44. I do feel better, but I still have symptoms. It probably takes a few months for all of the gluten to get out of your system correct? Will a detox help flush it out sooner?

Any advice would be greatly appreciated. :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Just my personal perspective...

A lot of the symptoms you mentioned will probably get better as you go along on the gluten-free diet. In addition to vitamin D (which I'm still taking), I also added some sublingual B-12, selenium (by eating one brazil nut each day), and zinc for a few months. A zinc deficiency, for example, can cause dandruff and those white flecks under your fingernails. Low potassium can cause swelling... you can counter that by reducing your sodium intake and eating lots of fresh foods with potassium (bananas, spinach, potatoes with the skin, almonds, etc...).

BUT... you might find after several months that some of your symptoms are not going away. People with one autoimmune disorder (like celiac disease) are suspectible to others <_< Swelling in your hands could be a sign of lupus, hypothyroidism, angioedema, a kidney disorder... You might want to keep a diary of your symptoms. Try to find a balance between patience and looking for answers :) I know you probably want answers NOW (I did)... it just takes time to figure everything out.

0

Share this post


Link to post
Share on other sites

Thank you so much for the advice Mother of Jibril.

You always have such wonderful advice to share with everyone and I am so greatful that you offered me the advice that you did.

Thank you

0

Share this post


Link to post
Share on other sites

I want to thank you for your info again? I am new to this forum. You'll have to forgive me but I tried to send you a personal message "Mother of Jibril" but unfortunately I can't figure it out.

Well I was just wondering what type of Vitamin D you are taking. I was taking 50,ooo icu of Vitamin D. But I am currently seeing a doctor who is a doctor who can prescribe regular prescription or natural remedies. He informed me that Vitamin D3 is the best version to take daily. He is recommending 10,000 icu a day while I'm going through a detox.

I also have Hashimotos Thyroid disease and was wondering what your opinion on Armour vs. Synthroid ? I am currently taking Levoxyl, and I have since the age of 14, I am now 30 and my doctor would like to change me to armour. I am extremely hesitant because I have been on Levoxyl so long I really don't want to change? But I have read alot about it and people seem to go both ways on the idea.

If you could offer some advice that would be wonderful!!

Thank you

0

Share this post


Link to post
Share on other sites

Hi Tiff,

My pleasure! Other people on this forum have helped me so much... it's nice being able to return the favor.

For Vitamin D I've been taking "Carlson Labs Solar D Gems" which delivers 2000iu of D3 in a lemon-flavored soft gel (you can actually chew them like gummy candy... surprisingly tasty). It also gives you a little dose of Omega 3s from cod liver oil.

It's seems like everyone has their opinion on Armour vs. Synthroid ;) Personally, I've been taking 100mcg of Synthroid each day and I feel pretty good about it. My numbers are back to normal and my symptoms have eased up. Some people swear by Armour, but I'm hesistant to try it for religious reasons because it's made from the thyroid glands of pigs. Have you done all the tests for thyroid disorders? TSH, free T4/T3, thyroid ultrasound, etc...? Looking back at your symptoms, some of them could be thyroid-related (pain in your throat, joint pain, menstrual pain), so it's possible that changing your medication could help. I would just be cautious about it.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Yes, the endocronologist I was seeing checked my thyroid levels every 3 months. Unfortunately we have moved and I am adjusting to all new doctors. My new doctor recently took new labs of my Throid checking the T3 and T4 and everything checked out normal. I am on this crazy detox program for a month. I am only into day 3 of it and it sucks. I'm taking alot of supplements and changing my diet drastically. But I'm willing to do anything to go back to the way I felt before. I am also super duper scared because I tested positive for the SCL-70 anitbody. And although that doesn't mean I have scleroderma (Only 40% of people who test positive for it actually have it) I am totally scared that this may be what is going on. I just hope for the best and keep my fingers crossed. I have been chatting with alot of people on the scleroderma forums and I have even talked with a few over the phone. They are all very supportive, but they say scleroderma is really hard to diagnose sometimes. And until you have clear-cut physical signs a doctor will not diagnose it. I just hope it is celiac and I hope my symptoms go away soon. I'm just really really scared!!!

These autoimmune disease seem to cluster in everyone that I have met, and I'm afraid that is what is going on with me.

By the way how did you know that you have the gene for Celiac? Did you get it tested through your doctor or somewhere else?

Thanks again for your advice!!!

0

Share this post


Link to post
Share on other sites

It's actually quite easy to learn your HLA-DQ genes. There's a company called "Enterolab" that will send your cheek swab to the Red Cross for testing... you don't need a doctor's permission (although I doubt your insurance will pay). When I did it last year it was $174. Although it can't give you a diagnosis, it does help you understand your risk for celiac disease and some other autoimmune disorders.

I'm sorry you tested positive for another antibody :( In addition to Hashimoto's and celiac disease, my immune system is making antibodies to my own mast cells, which causes episodes of anaphylaxis... it sucks being allergic to yourself. The gluten-free diet helped a LOT, but I'm still under investigation for ongoing abdominal pain (I had an endoscopy last week), a rash that comes and goes (probably related to the mast cell disorder), and abnormal levels of protein and blood in my urine (IgA nephropathy? SLE?).

At this point, I'm taking things one day at a time. I'm alive :) My kids are beautiful. My herb garden is growing like crazy with all the rain. I have a job and plenty of yummy food to eat. I figure the best thing I can do is take care of myself and be persistent. I'm getting quite the medical education!

BTW... autoimmune disorders are more common in women than men. Hormonal changes (like puberty, pregnancy, weaning, menopause... even the menstrual cycle) are common triggers for the onset of new symptoms and flares.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,465
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
    • I know this is not funny for you guys, but I had to laugh about how all of those family members simply ignored your well meant advice. That is definitely head in the sand syndrome. I have tried for a long time to find the connection between autoimmune diseases and my health. With this celiac diagnosis I have finally found it. All of the puzzle pieces are in place for sure and it is going to be my mission to do the best possible in order to get healthy again.   What a sneaky disease this is and to think that none of my family members never were diagnosed, despite the fact that both have been in doctor's care all of their lives. It really goes to show that most medical doctors simply seem to completely disconnect nutrition with health.   I am scared to give that advice to people when I see them suffering from specific diseases. But there are people that I would like to help if I can. Scared to make those suggestions, because so many times negative reactions follow and all I meant to do was to help that person.
    • There are definitely things you can do to make it easier on yourself. But all of my ideas seem to cost money and involve cooking. But I'll give it a shot anyway in case you haven't already thought of it. I would buy a small chest freezer and put gluten-free foods in it. Canyon bakehouse sells their fantastic bread and bagels right on their website. You can just buy a case of it. Then if you ever get in the mood for a sandwich or bagel the bread's right there frozen in your chest freezer. If you get invited to somebody's house for dinner find out what their cooking and make your own similar version of it. So for Easter I would make ham, potatoes and broccoli and bring that with me. So when everybody else is eating a fantastic Easter dinner I'm also eating a fantastic Easter dinner. I have other food issues and before celiac I was invited to a friend's wedding. I wasn't going to be able to eat the food they were serving so I made similar food at home. They were serving lamb, ham, vegetables, potatoes. So I brought ham, corn and potatoes with me and heated it up when everybody was going to the buffet to get their food. So when everybody else was pigging out on this great wedding dinner I was also pigging out on a great dinner. And nobody would have noticed if they didn't try. Sometimes you just get in the mood to have a frozen dinner and just don't feel like cooking something. There's two ways you can go about this. I happen to be addicted to Udi's chicken Florentine and think that their broccoli kale lasagna is very good as well. So I'd stock up on that in that chest freezer. glutenfreemall.com has tons of stuff. On Sunday you can make a weeks worth of food and freeze a lot of it in individual portions. After a few weeks you will have several different meals in the chest freezer that you made at home. You can eat those on weeknights when you're too busy to cook. In my family Friday night was always eat out fast food night. McDonald's, Burger King, pizza, fried chicken. So for pizza my plan is to purchase Etalia New York style pizza crusts. Purchase some Escalon six in one crushed tomatoes and freeze in individual portions. Buy some Grande 50/50 mozzarella cheese and freeze in individual portions as well. If on Friday night if I am in the mood for pizza I'll just grab a crust, a portion of sauce and a portion of cheese from the chest freezer and make myself pizza in under 15 minutes. When I get invited to a barbecue I bring loaded potato skins or batter fried chicken wings. Everybody loves them as do I. I by Pamela's gluten-free flour from Amazon six at a time. So I always have some available. For the record, at the moment I am an extremely strict diet and cannot do any of the above. But will go back to that method in a few months.
  • Upcoming Events