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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Think There's Gluten In That "gluten Free" Food!
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19 posts in this topic

Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.

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I haven't gotten a gluten type reaction from anything marked gluten free but I know that these foods contain ingredients by body is not use to and my reactions have been weird.

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Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.

Yup....several times. Some Trader Joes products, Bella Monica pizza and a salad dressing. The first 2 I doubt were made on a gluten-free only line and when I turned the salad dressing around (that was marked "Gluten Free" on the front), the ingredients listed BARLEY.....so now I read EVERYTHING two and three times. :angry:

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I do too. I have a gluten reaction from Sweet Baby Ray's barbecue sauce, which is totally fine for most people.

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Unless it's a company that caters specifically to celiacs, I don't buy it.

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I checked and the brand was kinnikinnick. The only weird thing listed was Yeast...so not sure if it was a Gluten free yeast or not. Oh well. Thanks for the replies everyone!

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I checked and the brand was kinnikinnick. The only weird thing listed was Yeast...so not sure if it was a Gluten free yeast or not. Oh well. Thanks for the replies everyone!

Yeast should not be a problem. Kinnikinnick is an excellent company. Have you writtten or called the company and inquired about their ingredients? I'm pretty sure they they test their products for quality controll regarding the gluten free status of their products, and they have dedicated facilities.

Here's a little background:

http://consumer.kinnikinnick.com/index.cfm...fo.history.html

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Yes, I would say it's extremely unlikely that you were glutened by kinnikinnick. In fact, I'm not sure I could name a company I trust more. But the good news you've just gotten a new clue about other intolerances you might have.

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I read that you used all the same cheese sauce and things. did you double checks those? like companies say in their disclaimer they can change their ingredients at any time without public notification. I would look into that, Kinnikinnick is one of those products i trust completely and they havent ever burned me. im not totally discounting what you're saying. every company can mess up. but it could be one of those other products

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My son was getting glutened by Wellshire kids dinosaur shaped chicken nuggets. The Chicago Tribune even did an article stating that their products tested positive for gluten , at times very high levels, on numerous occasions! I am still furious. My son's tTG level went from 4 to 19 (reference range <21) during the year he was frequently eating their products. Since I removed them from his diet his tTG is back down to 3.

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Has anyone else gotten sick from eating something marked Gluten free? I picked up a new type of Gluten free pizza crust that Giant Food started to carry, and got Violently ill. I used all the same products(sauce,cheese, pepperoni) that I usually use, so I know it was the crust. I thought it tasted to good to be true. I can't remember the brand name , but I have never gotten sick from Schar pizza crusts.

I've been glutened by Arrowhead Mills Millet Flour. I read a post on this forum that said that some Arrowhead Mills products had issues with cross contamination and sure enough, as soon as I stopped using it my symptoms went away.

Please see topic at following URL:

http://www.celiac.com/gluten-free/index.php?showtopic=56278

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I've been glutened by Arrowhead Mills Millet Flour. I read a post on this forum that said that some Arrowhead Mills products had issues with cross contamination and sure enough, as soon as I stopped using it my symptoms went away.

Please see topic at following URL:

http://www.celiac.com/gluten-free/index.php?showtopic=56278

I would also greatly trust Kinnikinniknnikninknkkiin whatever - I love, love their products and have never had a problem and I seem to be very sensitive. I cannot, however, eat Van's gluten-free waffles. I have tried several times over the last three years with no success with that brand... Anyone else?

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I react quite strongly to maltodextrin, even though my gluten reactions are mild to the point of being unnoticeable at times.

At first, I was convinced that maltodextrin must contain gluten, since I was reacting to it--but apparently, it doesn't. I can only conclude that rather than being allergic to it or intolerant to it, my body simply recognizes it as something it doesn't like and tries to get rid of it quickly!

Our systems, as a rule, are awfully sensitive, what with damaged intestines, etc. So I think we are likely to react to things that aren't necessarily gluten, especially until our intestines are fully healed--which can take months.

I also had unpleasant reactions in the beginning to ALL gluten-free bread products--it felt like I'd swallowed a brick. I didn't learn until later that that is typical for a celiac with unhealed intestines.

If you've only been gluten-free for a short time, the usual (and good) advice is to avoid gluten-free bread products entirely and stick with fresh fruits, veggies, meat, fish, chicken, rice, potatoes, eggs, etc. AVOID MILK PRODUCTS, as damaged intestinal villi are unable to produce lactase, and the resulting irritation from the milk products will prevent healing.

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My guess is that there's something else in the crust that you are reacting to. Although Kinnikinnick is an excellent company, I can't eat their products because they use pea (legume) flour. I'm extremely sensitive to legumes, and get a reaction from them much worse that with gluten. It's as though I've been poisoned.

Another reason I can't eat certain certified gluten-free foods is that they contain tapioca or soy. Perhaps you have an additional intolerance?

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Yup....several times. Some Trader Joes products, Bella Monica pizza and a salad dressing. The first 2 I doubt were made on a gluten-free only line and when I turned the salad dressing around (that was marked "Gluten Free" on the front), the ingredients listed BARLEY.....so now I read EVERYTHING two and three times. :angry:

Dear Marie06

My name is Trevor Chambers and I am the owner of Bella Monica FlatBread Company. I hope this note finds you well as I was very sorry to hear that you think you may have been "glutened" by one of our products. Although I am not sure what may have caused your illness I want you to know that we do take our responsibility to make clean, safe food very seriously. All of our products are tested at the ingredient stage before production begins and retested upon completion. We use the ELISA EZ Gluten Test which will measure down to 10ppm, the level currently under consideration by the FDA for a product to be Gluten Free. We have never had batches test beyond the 10ppm limit and if we ever do test beyond 10ppm the product would never be put into distribution.

I understand your concern and if I became ill after eating something it would be suspect in my mind as well. Was this the first and only time you have tried our pizzas? Is it possible that you may have an allergy or intolerance to some other ingredient? Was there something else that you ate within a short period of time before or after eating our pizza? Was there any chance of cross-contamination during preparation? I can only assure you and all our customers that we take every precaution possible to produce a Gluten Free product and will continue to use good manufacturing practices to that end.

Dialogue with our customers provides both parties with the chance to better understand each other and ultimately make their experiences with our family

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Wow! How neat is that that they responded? I love to hear about manufacturer's manufacturing processes.

I also think there are lots of things out there we eat, breathe, accidentally ingest, that might not have anything to do with gluten but could make us sick. Like stomach flu viruses, other intolerances, other food eaten earlier in the day, food poisoning (which usually takes a day or two to set in), etc.

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Wow! How neat is that that they responded? I love to hear about manufacturer's manufacturing processes.

I also think there are lots of things out there we eat, breathe, accidentally ingest, that might not have anything to do with gluten but could make us sick. Like stomach flu viruses, other intolerances, other food eaten earlier in the day, food poisoning (which usually takes a day or two to set in), etc.

That's very true. My boyfriend (who does not have celiac disease) developed symptoms similar to mine when I'm glutened, but he had salmonella (he's traveling, too, and had to find a medical clinic in a pretty remote area!). I think it's easy to assume a lot of things are from gluten that aren't, necessarily.

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Has anyone else gotten sick from eating something marked Gluten free?

Unfortunately, companies that make "gluten free" products do not have to inform us that they were made on equipment shared with wheat.

Van's gluten free and Nature's Path both claim to clean their equipment very well before they produce the gluten free products. http://www.vansfoods.com/home/gluten-free for example.

Don't trust anything from Trader Joe's either. General Mills, however, does not put that label on a box that was not entirely produced in a gluten free envireonment. Does anyone know if there is a site here or on another site where lists are kept as to how gluten free a particular brand it?

It would be good if we could collect all the responses from different companies in one spot so that we would not each have to do all this research.

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i recently came across a lot of testimonies that cocoa pebbles and fruity pebbles were gluten free and even processed on a separate manufacturing line.

well, i was excited to treat myself to some because they smell darn good and satisfied my sweet tooth.

a couple weeks ago i had a couple bowls-which was the ONLY thing i ate out of the ordinary and ended up getting glutened.

:angry:

another reason to stick to my semi-vegan diet......can't trust any processed foods.

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