• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trial Elimination Gluten/dairy - How/when Do I Know If It Helps?
0

6 posts in this topic

My 10yo dd has had stomachaches for yrs. She's had difficulty with bms for the past 1 1/2 to 2 yrs. She's had panic attacks/anxiety the past yr, often related to having to go to the bathroom.

The ped says constipation, although he did a xray that showed normal amts of stool in the colon. The ped GI says constipation. He checked for parasites and blood in stool- both negative. He did an xray abt 2mo after the ped and said med to large amts of stool. He had her do mega doses of Miralax for 3-5 days to clean her out, then 1 dose a day for maintenance. She did the maintenance dose for about 3 days then stopped, as I don't think it's good for her to live on laxatives. (That doesn't fix the problem-it's just a band-aid.) He also did bloodwork, including a celiac panel, which all came back normal. Her tummyaches and bathroom problems came right back, of course.

I took her to an allergist. They did a scratch test. No allergy to wheat or dairy. Some minor food allergies, but nothing she eats on a regular basis. He suggested we do a 2wk trial elimination of wheat and dairy anyway, as it could still be the problem.

So that's where we are. She's been off gluten and dairy for 2 weeks now. I thought maybe I was seeing a slight decrease in stomachaches, then Sunday morning she had a bad episode. I don't know whether I accidentally "glutened" her Sat., or the diet isn't helping, or what??? How do I know if this is helping? How long do I give it? If she did get some gluten on Sat., are we starting again from scratch?

Any advice would be appreciated. I feel like I'm shooting in the dark. Thank you!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi AZmama,

I'm pretty new to this forum as well but I hope my post helps. I started lactose elimintation diet today. I've been having many symptoms lately and a lot of fatigue which is leading me to suspect something other than lactose intolerance. So about two hours ago I ate whole wheat tacos and my nose started running shortly after. Then the gas. Then the slight abdominal pain. Then the tiredness. Then the headache. Now I want to sleep. I'm writing all of it down for two weeks, the symptoms I feel, and see, to find a pattern. All of "this" is so unbelievable to me. I thought the tiredness was stress. I thought the headaches were stress. I thought everything added up to needing a vacation. Previously I could eat anything without problem (or so I thought), but it seems this is like a "silent" disease.

Trust yourself in what you know to be true. Perhaps it might be worthwhile to try a strict nongluten/nondairy diet again if you feel necessary. I know I am willing to try what will lead me to feeling better. Thanks for posting.

0

Share this post


Link to post
Share on other sites
My 10yo dd has had stomachaches for yrs. She's had difficulty with bms for the past 1 1/2 to 2 yrs. She's had panic attacks/anxiety the past yr, often related to having to go to the bathroom.

The ped says constipation, although he did a xray that showed normal amts of stool in the colon. The ped GI says constipation. He checked for parasites and blood in stool- both negative. He did an xray abt 2mo after the ped and said med to large amts of stool. He had her do mega doses of Miralax for 3-5 days to clean her out, then 1 dose a day for maintenance. She did the maintenance dose for about 3 days then stopped, as I don't think it's good for her to live on laxatives. (That doesn't fix the problem-it's just a band-aid.) He also did bloodwork, including a celiac panel, which all came back normal. Her tummyaches and bathroom problems came right back, of course.

I took her to an allergist. They did a scratch test. No allergy to wheat or dairy. Some minor food allergies, but nothing she eats on a regular basis. He suggested we do a 2wk trial elimination of wheat and dairy anyway, as it could still be the problem.

So that's where we are. She's been off gluten and dairy for 2 weeks now. I thought maybe I was seeing a slight decrease in stomachaches, then Sunday morning she had a bad episode. I don't know whether I accidentally "glutened" her Sat., or the diet isn't helping, or what??? How do I know if this is helping? How long do I give it? If she did get some gluten on Sat., are we starting again from scratch?

Any advice would be appreciated. I feel like I'm shooting in the dark. Thank you!

I would say (based on others' experiences) that you should give it at least 6-8 weeks. It sometimes takes that long to clear things up and also to get good enough that you don't accidentally "gluten" her, which in some people might set you back weeks.

The payoff would be good so I stay keep trying. Good luck to you.

~Laura

0

Share this post


Link to post
Share on other sites

I would agree with Laura-- give it several more weeks. It took six weeks for the pain my daughter had with wheat to go away.

This may sound silly, but also eliminate bananas. They really slow down digestion in some people. we had a holistic doctor suggest that after years of Miralax. You can also try dried plums to help her digestion. Exercise and a lot of walking help, too. Is she very active?

Good luck!

0

Share this post


Link to post
Share on other sites

Her tummyache on Sunday morning is normal. Even though you have her eating gluten free now, her body still has to dump all the gluten from previously. Going gluten free is not an instant cure. It takes time for you/her to feel better. If you had accidentally given her gluten on Sat night, the body still doesn't realize it's not eating gluten, it hasn't been long enough. Stick with whole foods too, nothing processed. Meaning, don't buy gluten free crackers, cookies, and such...they are too heavy, especially in the beginning. Try to give her things with as little ingredients as possible...if you want to make her french fries, try making them from scratch, or finding some with as few ingreds as possible. She doesn't have to give up everything she thinks is good. Lays Potato Chips regular, are gluten free, UTZ Potato Chips are good, I use Skippy Natural Peanut Butter...eat apples...maybe she would like ti on celery. Doles fruit cups are gluten free, she may like them.

She may not have celiac, but she may be gluten intolerant, which is just as harmful for her. I felt better right away, but I still had bad days. That was 9 years ago this month. It does get better.

0

Share this post


Link to post
Share on other sites
Ads by Google:


So that's where we are. She's been off gluten and dairy for 2 weeks now.

Any advice would be appreciated. I feel like I'm shooting in the dark. Thank you!

Hello AZmama,

Taking things out of the diet one at a time is the long way around. You should really read up on the elimination diet. You eliminate all but a few "safe foods" for a period of time. A week is recommended. If your DD is still not feeling better then you will have to rotate the "safe foods" to find out which one was the problem. I use to include carrots in my "safe foods" but found that I'm allergic to the whole celery plant family. After you are sure you have found some safe foods then you begin adding other foods, one a week. Bring it in to the diet, take it out, bring it back in. Watch for tummy aches, change in BM, rashes, nasal congestion, ect. The carrots gave me blisters on the back of my head in an area covered by my hair. So sometimes it's hard to see the reaction. But if you bring the foods in and out a few times you will notice things like that your DD itches her head or knees when she eats a certain food. I know this sounds like a pain in the a**. But it really is better than wandering and worrying about what to try next.

Hope this helps

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,453
    • Total Posts
      930,636
  • Member Statistics

    • Total Members
      63,878
    • Most Online
      3,093

    Newest Member
    crw
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Allie and welcome First off, I know 3 years was a long wait, but at 17 you've figured out celiac way before many people do. That should make a big impact on minimising its effects and helping you with the diet, so, bizarrely enough, congratulations!   A lot of good advice has been brought together in this thread:  Don't worry that your symptoms are bad now. As you follow the diet your body will begin healing itself and you're still very young so hopefully this will go really smoothly. Think in terms of the next 6 months rather than weeks however, recovery will likely take a little time. Eat as healthily as you can, lots of whole foods and try to avoid the gluten free processed substitutes as your digestive system needs all the help it can get at this moment.  You may want to avoid dairy as well for now and think about reintroducing it later. This site has been really helpful to me and others. I hope you find it just as useful. Best of luck!   ps, your increased reaction to gluten during the challenge phase was perfectly normal. Many find that reintroducing it much worse than the initial affects and take some time to get over the challenge. That's why you'll see lots of posts here urging folks to 'stay on gluten' till their testing is complete!
    • Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!
    • Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks 
    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
    • ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick.  also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some. 
  • Upcoming Events