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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Awareness Letter Writing Campaign
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44 posts in this topic

The folks over at USASillyYaks noticed that on Oprah's site that they are looking for people with odd disorders, so many people have been posting their letters under that topic at the Oprah site. Just thought I would give you all a heads up on that.

How is the letter writing going for everyone??

-Jessica :rolleyes:

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Hey. I just got finished e-mailing about 20 companies (most of them that were on here already). But I also added about 2 --one news station & one newspaper -- from my area to the list. I e-mail the generic e-mail, but with a msg at the top, explaining how long I've had it, and that it's imporant to me, and to get the msg out...etc...so that it'd be a bit more personal. Well, I hope it works! Good luck everyone! :D

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I just got finished e-mailing about 20 companies

WOW! Nice work!!! Let us know if you hear anything back from them.

-Jessica :rolleyes:

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I emailed about 50 news stations and shows so far.

I also put in for the Oprah show and gave my story with a brief letter.

I plan to snail mail some companies and am finishing up the letters now...also contacting local stations.

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I emailed about 50 news stations and shows so far

Keep up the great work Kati!!

-Jessica :rolleyes:

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Hey there! I am a newbie but wanted to kick in some support. I sent a bunch of emails out to the places that Katie listed. Hopefully someone will hear something! I live near Milwaukee. There was a big article in the paper in past years about celiacs. They were referencing the Gluten Free Trading Company here in Milwaukee. It will be exciting to see if this campaign gets responses! I'll watch for updates!

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OOPS! Sorry Kaiti not Katie!!

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Today is our last official day for sending letters out!! Keep up the

great work folks!!

-Jessica

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Hey guys,

I'm on the e-mail list for Stlouisalerts and this came around today. I guess all the hard work of letter writing paid off!!!!!!!!

I already set my TIVO!

Roo

In a message dated 4/28/05 7:41:10 AM, kl_king@swbell.net writes:

I rec'd an email from the TODAY Show.

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that is so great! okay, can ya do me a favor? what channel is it on? ABC? (I used to watch it, but not anymore, so I forgot) :unsure: And it comes on @ 7 am central right? :unsure: Haha..please let me know. Good work everyone! ;):lol: Even if it's only one, it's something! :D

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I think it's NBC May 10th at 7:00 A.M.

Roo

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I think it's NBC May 10th at 7:00 A.M.

Roo

Wow...making progress :)

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Just thought I would share my response from 30 min. meals on the food network.

-Jessica :rolleyes:

Thank you for your recent e-mail and your comments regarding programming on Food Network.

All of our programming is dedicated to addressing our viewer's infinite connection to entertaining, eating and dining out in unique and original ways. Though it is our hope that every viewer enjoys the great variety of programs offered on Food Network, we realize that not every program is suited for every taste.  The comments and suggestions offered in your e-mail will be kept in mind as we plan future programming.

Once again, thank you for taking the time to write to Food Network.  Your views on our programs provide the most direct and accurate information upon which we can make programming decisions.  Please know that your comments will be employed in evaluating current and future programming on Food Network.

Best regards,

Food Network Viewer Services

Food Network

HGTV

FINE LIVING Network

DIY - Do It Yourself Network

Shop at Home

Great American Country

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I rec'd an email from the TODAY Show.  They are going to air a segment

on Celiac May 10 with cooking demos.

Not for sure on this, trying to still do some checking, but I believe it is an Australian today show that is having the segment.

-Jessica :rolleyes:

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This excerpt comes from the USASillyYaks Website http://health.groups.yahoo.com/group/USASi...ks/message/3360

Jenn has gotten it where we can watch the Australian Today show online!! Awesome!!

-Jessica :rolleyes:

Alright hopefully I've included everyone who's gluten free. The upcoming Australian gluten free segment on TCN 9 is going to be available to all of us here in the states too! Jenn in LV

"Beaumont, Melissa" <MBEAUMONT@nine.com.au> wrote:

Subject: FW: Americans interested in an upcoming program on TCN 9 Today Show

Date: Mon, 2 May 2005 07:39:45 +1000

From: "Beaumont, Melissa" <MBEAUMONT@nine.com.au>

To: "TCN Today Show" <todayshow@nine.com.au>,

<jendenise0401@yahoo.com>

Hi Jennifer,

Thanks for your email.

I'll put the video on the web at www.ninemsn.com.au/today

Melissa

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:D

1.How did you manage to write all those letters in two days!

2.Please can we copy your letter in the U.K. but with adaptations (to cater for the fact that some people get certain foods on doctor's prescription at a flat rate - not me though - and that our national coeliac society publishes a food and drink directory with monthly amendments).

3.Our coeliac awareness week is around 20th of May but we ought to be thinking of 2006. I can't write any letters in time this year!

Fabulous work, hoping lots of benefit comes!

:D

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You are welcome to use my letter.

Copy and paste the letter and send it as an email is the fastest way for me personally.

Good luck with your letter writing campaign in the UK!!! Let us know how that goes.

-Jessica :rolleyes:

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:lol:

Shall have to discuss with people whom to mail it to. Perhaps this will be ready for 2006!

:)

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ok here are some more:

Kaiti you are a doll! I just love you! You never stop amazing me. Thanks for all the info. I don't know you but, you have helped me on the darkest day of my life with the death of my Auntie her feeding tube and celiac disease testing. I am forever a fan. I thank God for your big heart and kindness.

I'm going to do some letter writing.

Its blogged.

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