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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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NOT-IN-2gluten

Terrible Back/kidney Pain After Being Glutened. Why?

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Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

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Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant!! I assume my back pain may be involved with the Kidney. Gluten can affect any part of the body and my only sign was an abnormal IgA Anti-gliadin blood test and gastritis in my endoscopy. After being gluten free for 2 years now I haven't had any back pain UNLESS I get cross-contaminated and I notice it almost immediately. If you are feeling better gluten free you are intolerant.

BTW I had the gene test and came up as a DQ8 celiac gene (which is not the typical DQ2). Hope this helps!

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Count me in to for the kidney issues. My reasoning is that since our bodies react to gluten as a toxin and the kidneys help with clearing toxins from the body it is not surprising that this would be an effect of gluten injestion.

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If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

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If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

[/quote

Thank you. I will have it checked. I have had some simple blood work where most things look fine.

But no doctor has tested for protien/blood in a few years. I certainly can't get much help for my local doctors. If I specifically ask, they will test for it. Thank you, I greatly appreciate the reply!

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