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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Terrible Back/kidney Pain After Being Glutened. Why?
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5 posts in this topic

Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

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Hello,

I am newbee so I hope this is the right are for my question.

I am self diagnosed gluten intolerant at this point. Gluten free for 6 weeks. (But still learning and have been glutened several times!)

I ate in a restaurant two days ago and I could tell immediately that I had been glutened. I don't have the major stomach issues that so many people mention here, but I have terrible foot pain and pain in the kidney area. Within 20 minutes of eating spinach artichoke dip, my feet were aching and my back pain was so bad I could barely sit in the car on the way home. It has been two days. The back pain is still persistant and I don't understand it. Could it be kidneys, adrenals, gall bladder? I have no idea but it so uncomfortable. I had this symptom often if not all of the time (for years) before trying a gluten free diet.

It has been so much better and almost nonexistant since eating gluten free. I would appreicate any comments on this. Also, is it weird that I have terrible foot pain? That also seems so much better when gluten-free. Thanks for any replies!

Sandra

No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant!! I assume my back pain may be involved with the Kidney. Gluten can affect any part of the body and my only sign was an abnormal IgA Anti-gliadin blood test and gastritis in my endoscopy. After being gluten free for 2 years now I haven't had any back pain UNLESS I get cross-contaminated and I notice it almost immediately. If you are feeling better gluten free you are intolerant.

BTW I had the gene test and came up as a DQ8 celiac gene (which is not the typical DQ2). Hope this helps!

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Count me in to for the kidney issues. My reasoning is that since our bodies react to gluten as a toxin and the kidneys help with clearing toxins from the body it is not surprising that this would be an effect of gluten injestion.

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If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

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If you think the pain is centered in your kidneys you should get that checked out!! CKD (chronic kidney disease) is a lot more common than you might think. Ask a primary care doctor for a urinalysis... the presence of protein and/or blood will tell you if you have any damage. It's cheap and very easy.

BTW... although CKD is most common in people with diabetes and/or high blood pressure, it's not necessary to have either one. I don't.

[/quote

Thank you. I will have it checked. I have had some simple blood work where most things look fine.

But no doctor has tested for protien/blood in a few years. I certainly can't get much help for my local doctors. If I specifically ask, they will test for it. Thank you, I greatly appreciate the reply!

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