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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptoms That Go Away
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41 posts in this topic

To discouragedmomof5- For at least 7 years my periods have been 3 days long, stop a day and then pick up again for 3 days. Weird. For the last two periods (month 2 and 3 gluten-free) they have been as normal as a 20 year old (I am 48). Also gone are the yeast infections. I hope this answered your question. We all know that mood swings go with gluten too. How are you?

To Bean- I Had a constant pain in my belly 2 inches to the right of my belly button for 5 years that magically went away at 3 months gluten-free. I still plan to get a colonoscopy because I am about the age to start worrying about polyps but I don't hurt anymore. Mine hurt from the inside though and was not there for so long that I guess you could rule out cancer. I hope you will find it in yourself to eliminate gluten (assuming you are tested positive). The miraculous improvement might be the inspiration to staying that way. I am not as hungry now and enjoy an even greater variety of foods. My hypoglycemia is gone and I am not so tired all the time. There are substitute foods out there for just about anything you might crave. I know you can do it!

Leslie

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Lesliean,

I am *aching* to go gluten-free!! The only reason I haven't done it yet is because I'm waiting for the biopsy. But the more wonderful things I hear about symptoms going away - the more I want to do it!

Thank you for everyone's encouragement :)

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Bean- Go for it! It's easier than you think and it continues to get easier when you realize how much better you are feeling. I was gluten-free for 2 months and the improvement was incredible. My only regret is that I let a doctor talk me into wheat for 10 days for a biopsy that came back negative anyway (duh- after 2 months gluten free of course there was a very high probability that it would). So I'm back to being gluten-free and I'm just patiently waiting to get back to where I was before the biopsy. It is soooooo worth it! Beverly

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Thanks for your input. I too have an almost constant pain in my abdomon. I am a little overwhelmed that gluten seems to be in everything, but on the same note I am sure that once we get the hang of this it won't be so difficult.

Most importantly I am really really excited to see what health problems go away once I become gluten-free. I don't know how to eat at restaurants, everything seems to have gluten in it. Any pointers?

Thanks

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Oh- eating out is tough at first so my husband and I made a compromise. We eat out less and eat at better places. At a better restaurant you are MUCH more likely to get the individual attention you need and it's worth it in the end. Alos, Outback Steakhouse has pretty good food and a GLUTEN FREE MENU! Bravo Outback! I was so excited when I went there the other night I almost kissed the waiter!

I'm peeved off right now because I've been trying so hard and yesterday we amde omelettes for breakfast and I used soy cheese (no lactose right now) thinking it was a no-brainer. Wrong! About four hours later I developed symptoms, checked everything and it turned out the soy cheese had maltodextrin. Arrrggghhh! Beverly :angry:

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What is the best way to learn about gluten-free foods and hidden sources of Gluten. My diet is so limited right now. I have also develpoed a lactose intolerance, small amounts aren't so bad, like I can tolerate half and half but never milk or icecream, heavy cream puts me in bed with stomach pain.

I have read the places here on this site that are posted, I was just wondering if there is even a more comprehensive list than that?

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Gluten-freeinfoweb seems to be a good sight. I have it bookmarked. I also bought the Clan-Thompson Smart List. I have so much info now, that sometimes my brain hurts!!!! :blink: J/K I also have milk, egg and yeast allergies so I have done many searches on the web to find out as much as I can about food allergies and labeling on food products. The Net has a wealth of info. You just have to make the time to do the searches! Find the things that are specific for your life and go with them. I am finding that all this gluten-free stuff and allergy stuff is easier than I thought it would be, just time consuming(at least until I get the hang of it all!!!!)

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Thanks for that additional list! It's a great help. I am however, mourning the loss of my beloved Reese's peanut butter cups as i can't seem to get any confirmation. :P

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Reeses are fine. They are made by Hershey which lists gluten ingredients clearly on the labels. If you don't see wheat, rye, barley or oats then it is safe. Enjoy

-Jessica :rolleyes:

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Well, I was gluten-free for two months before eating gluten for the biopsy in April (which came back negative anyway). After 2 months gluten-free the symptoms that went away or got better were:

Anxiety (I cut my anxiety meds in half)

sleep

night sweats

acne

ear infections

nail growth

weight gain (I've gained 10 pounds! I was a skeleton!)

better bowel movements

less nausea

intolerance to cold

goosebumps

fatigue

I'm sure there's others too. The fristrating thing now though is that after eating gluten for 10 days pre-biopsy (the biopsy was April 15) I feel like it's taking me forever to get back to where I was. It's been a month since I started eating gluten-free again but I just realized a week ago that one of my medications had gluten in it so technically I've only been gluten-free for a week now. I'm back to being lactose intolerant (milk chocolate gives me diarrhea for days!) and just feel like instead of being back to square one I'm back to -1. It's so frustrating. i wish I had NEVER eaten gluten for the biopsy. I'm looking forward to how good I felt at 2 months gluten-free again. Beverly B)

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Hi Berneses-

I think you are the first one that I see suffered from night sweats... I also was having that experience as well as other symptoms - I wondered if that was just me or celiac.

Mary

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Mary,

I had night sweats too when I was doing the gluten-challenge. They seem to have gone away... of course, today is only my 3rd day gluten-free... ;)

Anyway, I don't think you are alone! :)

- Michelle

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I had night sweats by the bucket full before going gluten-free. It took me longer than 3 days for mine to go away so it looks like you're on the right track Bean.

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My night sweats were outrageous- we're talking get up in the middle of the night, wake the hubby and change the sheets. Hideous! They are really minimal now. I barely even notice. The worst was they would wake me up and I couldn't go back to sleep. Ugh!

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Like many of us, I went undiagnosed for 6 months. My first Dr thought I had a brain tumor (because of dizziness, headaches, chronic fatigue, nausea) and I had a CT scan (negative). Next the Dr thought I had early signs of MS (because of tingling in my extremities, plus all other symptoms) and I had an MRI (negative). Then they thought it was a thyroid condition (negative blood test), next Addison's Disease because I had low blood pressure (negative), inner-ear disorder (dizziness, vertigo, brain fog), etc etc etc. I was referred to an internal medicine Dr who tested me for everything (except Celiac), including most communicable diseases, and all tests came back negative. Now I know what I don't have! My main symptoms were chronic fatigue (I went from running 5 miles/day to not being able to walk around the block or go to the store), brain fog, dizziness/lightheadedness (feeling like I was going to pass out numerous times a day), nausea, diarrhea, muscular aches, headaches, weight loss, anxiety, depression, tingling in fingers and toes, cold, shortness of breath, generally feeling uncomfortable all the time. Now I've been gluten-free for about 15 months and every symptom has disappeared. The stricter I am gluten-free, the better I feel. Sometimes, however, gluten sneaks by and I'll have diarrhea and get fatigued and not feel well, but in general, I feel like my old self again.

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gluten-free Jen- My God- that sounds exactly like my story to a T. I was tested for everything under the sun from HIV to lymphoma to TB (CT scan etc.) Based on my symptoms, my primary care doctor nailed it on the head when she said it's either Celiac's or a thyroid problem. I knew about Celiac's and went home that day and when I read the symptom list I thyought "My God, this is my medical history." i went gluten-free immediately. My bloodwork for Celiac's came back a weak positive so I was referred to a GI who told me Celiac's was really rare and did all those tests on me.

By the time I got to a GI who "sort of" had a clue, I had been gluten-free for two months and everything else had come back negative and I was feeling great. Ate gluten for 10 days for the biopsy (which came back negative anyway as i knew it would) but after eating gluten for those ten days I knew my first instinct wasright. No more tests for me! I'm sorry you went through this too. Beverly :angry:

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    • Hi ScarlettsDad, Sorry such a slow reply to this, but I also live in Toronto and definitely have a few safe suggestions. Of course, my tastes and your 5-year-olds are probably quite different, but I've got a few we might all agree on. First of all, as a general rule: don't order the gluten-free pizza/pasta anywhere unless the kitchen can prove they use dedicated equipment to prepare and cook it: fresh water for pasta, separate prep area and oven or other protective measures for pizza. Any place with flour flying around on a regular basis is going to be a real gamble no matter how careful the staff are. Anyway, here are a few Celiac safe and kid-friendly spots:

      Off the Hook: fish and chips, you say!? that are safe?! YES! It's true! This fantastic fish&chips joint is on Broadview just south of Danforth. They have a gluten-free chickpea batter, and keep everything safe by having a dedicated fryer for gluten free things, and another dedicated fryer just for fries! I have eaten there many many times and never gotten glutened (though it's still fried food, so have to go easy on it). It's a good spot to hang out if it's not busy, or you can get take out.

      The Dirty Bird: This is more of a takeout spot, but again with the fried food. They use a rice flour batter for the chicken, and the fries are safe too. They do make regular waffles, but can do gluten-free as well. There are 2 locations - one in Kensington market, and one on Bloor near Bathurst. Arepa Cafe - on Queen between spadina and bathurst. One of my favourite places to get a quick meal, but you could easly hang around for a while. Arepas are corn bread stuffed with stuff. Little tricky eating for small hands, so can get a platter instead. Almost everything (except I think for fried stuff) is gluten-free. Magic Oven - I can't do dairy either, so this is my occassional pizza splurge. They are very conscious of gluten free safety, have a dedicated fryer for fries (and wings!), make pretty decent pizza though it is not cheap.
      Il Fornello - another safe place for pizza, though also not cheap. I believe one of the owners is celiac, so they put gluten-free pizza in a special bag in the oven to keep it safe. If you like Mexican, the Playa Cabana family of restaurants is good option. One of their owners is Celiac, so they actually mark items WITH gluten on their menus. And if very adventurous, Chez Riz at Yonge and Lawrence, and on Mt Pleasant are both asian fusion (think dim sum and sushi) with completely dedicated gluten-free sections of their kitchens. There are lots of good restaurants that will accommodate gluten free, but they do tend to be on the "nicer" side, not likely a chain. Wherever you do want to go, be sure to call in advance and ask what they can do for your little one. And of course, if you want to take the family out but are afraid to feed her anything there, ask if you can bring something for her. Most restaurants are accommodating as long as everyone else is eating. It's also helpful to ask around your neighbourhood. Of course, there's always desert:
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