• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone On Cymbalta?
0

26 posts in this topic

I'm curious how many people are on cymbalta since fibromyalgia, chronic pain and neuropathy can occur with autoimmune disorders.

What have your experiences been?

Have you had to go off it? I was told before I went on it by 1 out of the 5 doctors (who all thought it would be a good medication for me for a variety of reasons), that withdrawal was bad with a capital B but here's what's happened to me so far:

I am 5 days off cymbalta (after only taking it for 6 weeks) too. I heard the withdrawal was VERY bad but I thought I'd be on it longer than this-it made me obsessive, anxious, amped and I couldn't stand the way I felt on it. One day I felt like I had been doing crack cocaine!

I've been on ADs for twenty years- imipramine then celexa (which both pooped out after ten years each) and NO lie- this withdrawal feels exactly like the traumatic, life-altering depression that started me down this path. I CANNOT believe how bad withdrawal from this medication is. I am:

nauseous

crying at the drop of a hat

severely anxious

brain zaps

eyes feel like they're falling out of my head

scared to drive

can't move my head without a zap

afraid to be alone

and much more. If I wasn't on sleep meds I know I wouldn't sleep. I can't even watch TV- I cried at Jurassic Park when they fed the cow to the raptors!!!!!!!!!!????????

It's Day 4 and I hope to god this ends soon.

Has anyone else been here? I'm staying sane because I know it's withdrawal. I've had my share of bad drug reactions, but I kid you not, this takes the cake!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have no answers for you, but I wanted to send you encouragement!

Have you discussed this with your doctors? It almost sounds like you should be doing this in a rehab center... sheesh. I hope it gets better for you very, very soon.

0

Share this post


Link to post
Share on other sites

Hi Beverly,

I have never taken an anti-depressant but took a benzodiazepine (lorazepam) for sleep following gall bladder surgery. Big mistake! I took this drug because I am allergic to most painkillers (morphine, codeine, NSAID's, etc). After 3 weeks of using low doses I had terrible withdrawal when I tried to stop taking it. I understand what you are going through. I had to do a very slow taper to get off of the drug. I followed the advice given in the Ashton Manual (Dr. Sylvia Ashton) a leading expert in benzo withdrawal. You can find a copy of this manual at www.benzosupport.org. The Yahoo benzo support group is excellent for individual, detailed advice. The manual deals mainly with benzo withdrawal but indicates that the same procedures should be used for withdrawal from anti-depressants. The owners of the Yahoo support group, Debra & Anthea, are very knowledgeable about withdrawal from benzos and anti-depressants.

Take care and I wish you the best in withdrawing from this drug.

Joyce

0

Share this post


Link to post
Share on other sites

Thanks- yes I am in touch with all my doctors and have done a lot of reading. I think that I just wanted people to be aware that it's about as tough as benzo withdrawal (and I saw my sis go through that so I know how bad it is!).

If you google cymbalta withdrawal and do some reading, you will be horrified. And I really do have an open mind, but there are so many reports out there.

There's a whole "Depression Hurts, Cymbalta's worse" community out there.

1

Share this post


Link to post
Share on other sites

I took Cymbalta a few years ago. I can say the withdrawals from that drug have made it so that I refuse to touch another psychological pharmaceutical ever again.

The side effects do go away. After a LONG time. I had the brain zaps for two months! The nausea calmed down after about a week. The anxiety after a few weeks.

I hope you have better luck and less duration of symptoms that I did. However, I wasn't on it much longer than you. 10 weeks.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Did you stop cold-turkey? I weaned off of it about two months ago, and had absolutely *NO* trouble with it. But I stepped down slowly - I was on the lowest dose, then switched to every other day for two weeks, every three days for two weeks, once week for two weeks.

0

Share this post


Link to post
Share on other sites
Did you stop cold-turkey? I weaned off of it about two months ago, and had absolutely *NO* trouble with it. But I stepped down slowly - I was on the lowest dose, then switched to every other day for two weeks, every three days for two weeks, once week for two weeks.

No, not totally cold turkey but a very quick taper because being on the medication was bad enough. I went from 60 to 30 straight but then tapered by taking some out of each capsule daily for a few days. I had withdrawal in the beginning just from trying to switch from taking it in the a.m. to taking it later in the day. About 4 hours after a missed dose, I had withdrawal.

I'm not an alarmist either- I realize everyone reacts diffferently to meds and supplements but this shook me up pretty badly.

The stuff made me feel like I had done some bad cocaine so I wanted to get off it fast (I'm going on nortriptyline) which I normally do NOT do but it was caught between a rock and a hard place. It's a bit better yesterday and today.

Tiffany- that's great you had no problems. Did you go on anything else? How are you feeling?

0

Share this post


Link to post
Share on other sites
No, not totally cold turkey but a very quick taper because being on the medication was bad enough. I went from 60 to 30 straight but then tapered by taking some out of each capsule daily for a few days. I had withdrawal in the beginning just from trying to switch from taking it in the a.m. to taking it later in the day. About 4 hours after a missed dose, I had withdrawal.

I'm not an alarmist either- I realize everyone reacts diffferently to meds and supplements but this shook me up pretty badly.

The stuff made me feel like I had done some bad cocaine so I wanted to get off it fast (I'm going on nortriptyline) which I normally do NOT do but it was caught between a rock and a hard place. It's a bit better yesterday and today.

Tiffany- that's great you had no problems. Did you go on anything else? How are you feeling?

I'm going to guess that the quick taper made it worse (not that it would have been smooth sailing without it, of course - coming off 60mg/day is almost certainly going to be rougher than coming off 20mg/day).

Nope, not on anything else, and also tapered off the Mirapex (restless leg) and Topomax (chronic migraines). We're looking at the possibility of trying for kids later this year, so I have to be off all my meds, if it's possible.

Ironically, right after I decided to start tapering off (the three drugs in a row, not at the same time), I was given a layoff notice at work, decided "yup, let's get out of this stressful job, and see if I can make teaching yoga full time work". So, my stress levels have gone down significantly (and activity level up a bit - yoga one to four times a day an all ;) ).

Everything combined, I'm doing fairly well. I've been a little less tired, but taking supplemental iron is helping with the RLS. And I've been a little less achy, but I've just started hike-a-thon (get sponsored to hike as much as you can in the month of August to raise funds for the Washington Trails Association), which is a lot too! :)

Are your symptoms from coming off of it lessening?

0

Share this post


Link to post
Share on other sites

My coworkers daughter stopped taking it several months ago and she had many of your same symptoms Bev. One of the worst she had was suicial thoughts- she was thinking of ending her life and made some attempts.

My coworker was so worried which I can't blame her. She came in and made all of promise to never take that med.

0

Share this post


Link to post
Share on other sites

Tiffany- Your whole post (especially the baby part part :D) made me sya YIPPEE!!!!!!! Little ypga instructor Tiffanys running around the world. That's great- all of it! And I'm glad you're feeling better.

My coworkers daughter stopped taking it several months ago and she had many of your same symptoms Bev. One of the worst she had was suicial thoughts- she was thinking of ending her life and made some attempts.

My coworker was so worried which I can't blame her. She came in and made all of promise to never take that med.

I pretty much just told ALL my friends the same thing. Yes- it is very very scary.

I'm doing a little better today but this weekend I felt like a psycho!

0

Share this post


Link to post
Share on other sites
No, not totally cold turkey but a very quick taper because being on the medication was bad enough. I went from 60 to 30 straight but then tapered by taking some out of each capsule daily for a few days. I had withdrawal in the beginning just from trying to switch from taking it in the a.m. to taking it later in the day. About 4 hours after a missed dose, I had withdrawal.

I'm not an alarmist either- I realize everyone reacts diffferently to meds and supplements but this shook me up pretty badly.

The stuff made me feel like I had done some bad cocaine so I wanted to get off it fast (I'm going on nortriptyline) which I normally do NOT do but it was caught between a rock and a hard place. It's a bit better yesterday and today.

Tiffany- that's great you had no problems. Did you go on anything else? How are you feeling?

Beverly, I'm so sorry you're going through this.

The husband of one of my best friends was on Cymbalta and tried to get off....he experienced all of the symptoms that you did but he didn't handle it nearly as well. Mike ended up at the hospital (ER) because his symptoms were so severe, but he was so disoriented he actually walked out of the ER while no one was watching. He was missing for several hours; his family was frantic!

He ended up walking home; it was only about 15 miles between his house and the hospital!!!

They decided that he had to come off of it extremely slowly....it took months to taper him down to zero.

I'm glad that you're feeling a little bit better!

Take care,

JoAnn

0

Share this post


Link to post
Share on other sites

Thanks JoAnn- I've heard some real horror stories. The way I was this weekend, if I hadn't known it was withdrawal, I probably would have done the same thing.

Today the nausea feels like seasickness. Crazy sh%$#t!

0

Share this post


Link to post
Share on other sites

I hope it gets better soon.

If not, can you talk to the doc about going back on it, and then - after a few weeks back on - tapering off more slowly. My doc *specifically said* that there are no clear instructions on how to get off it, other than "taper off". That's not very specific, and so she kinda had to make it up. (And I actually took longer than she initially suggested - she suggested over three weeks, as I recall, and that was from the lowest dose.)

0

Share this post


Link to post
Share on other sites

HI

Bev I got your email and Patti told me of your thread.

I didn't know there was one up.

Of course i'm saddend by your horrific experience.

these drugs are so scary.

Ones that work or don't work for me are so person specific.

You know I'm on cymbalta now.

think i started 2 months ago not even sure but he started me on 1/2 a 30 capsule.

for a month

then another am drug........didn't work

added another am ........didn't work

added another am ...........didn't work reactions to all 3

then weened off the cympalta b/c it flaired the fibro it was to HELP.

Weened back and off i think and then started back up and now still playing with less than the 30 in the tablet a day with dinner

you started with 30 and went up to 60 and only took once a day right.

Tiffany, glad your doing ok.

I'll be watching this thread as it has really opened my eyes big time.

it's the only thing that has helped me stop spinning since i stopped smoking in Dec and preparing for this move.

last nite put the cat on a addoption site like where you got angus Bev.

Very hard times bring out tough women i guess but don't feel very tough today or when i look into kittys eyes.

they are letting us house him and the addoption will take place in our home

Velcro will be on a local rescue site that i will have to look up before i lose this whole post.

hugs and love Bev

Judy

0

Share this post


Link to post
Share on other sites

I had an absolutely horrific experience on Cymbalta - the docs thought I had MS! I was falling down, slurring my words, couldn't think, couldn't use the bathroom (went six weeks without a bowel movement!) ... and they never considered the drug.

It was after I was released from the hospital with a grand "we just don't know..." that I found an obscure reference in the info provided for doctors (it wasn't echoed in the patient materials!) that these symptoms were possible.

I immediately stopped taking the drug. Withdrawl was horrific - especially the "zaps" which weren't just in my head, they were all over.

I echo a previous poster - I will never again take a drug that afflicts the brain chemicals in ANY way. Period.

Quite frankly I'm at a point where I distrust the pharma companies anyway... so I'm trying to avoid taking prescription drugs.

0

Share this post


Link to post
Share on other sites

Judy :( :( :( Hang in there- if it works for you and helps, then stay on it. Just be aware of how slowly you have to taper. It really did help my pain, it just made me feel too amped up.

The kittty? NO! I'd take her but that's a long drive :(

I agree- they don't know what taper means. Especially since it's a capsule- you can't cut it. But you CAN open the capsule and take a bit out every day.

Tiff- I would NOT go back on the stuff. Would rather go through withdrawal then feel like I did cocaine only to go through withdrawal again. I'm doing better. The zaps are calming down. I did vomit yesterday but it seems like it is slowly calming down.

I think the most important thing is to listen to your body going on or off any med.

0

Share this post


Link to post
Share on other sites

Day 9

Horrid headache, exhausted, major mood swings and nausea. The fun never ends! I cannot wait until this is O-V-E-R OVER!

0

Share this post


Link to post
Share on other sites
Day 9

Horrid headache, exhausted, major mood swings and nausea. The fun never ends! I cannot wait until this is O-V-E-R OVER!

Hang in there girl! Sending prayers and positive thoughts your way....

((hugs))

JoAnn

P.S. I'm on Effexor for my fibro..I've heard it's a nightmare to get off of that one too! My rheumatologist was talking about switching me from Effexor to Cymbalta.....! Scares me. :o

0

Share this post


Link to post
Share on other sites

Ah Shucks..........this sucks Bev :(:angry:

Day 9. How long did they say it would take?

I'm so sorry.

It is helping now with fibro but in the beginning i had headaches and bone, muscle and fibro pain.

go figure.

I'm wondering if after the sale on Sat and the house is staged and on the market if i should try to get off it.

I'm thinking of going to the daily strength site and look up what people say about it it.

Please know your in my prayers.

hugs and love honey, Judy

0

Share this post


Link to post
Share on other sites

I'm on Cymbalta 60 mg for chronic pain from arthritis. (Osteo)

I can only speak for myself since responses to antidepressants are very individual...but it changed my life. I was having so much pain for almost 2 yrs that when I was at the last straw all I could do was cry when I went to the doc. I started at 30 mg then once the typical side effects got better I went up to 60 mg once a day. The side effects I had going on Cymbalta were fuzzy, jittery head and really that's about it.

Coming off of it was a different story. If I don't take it at the same time I get very dizzy and nauseated. I also have a weird echo in my head. So...I make sure i take it.

0

Share this post


Link to post
Share on other sites

Ask the doctor to prescribe another SSI and start ASAP. That will take some of the edge off the zapping and other withdrawl symptoms. I won't go into the details, but 4 years ago, this was a combination that helped ease things a bit. Lexapro was the SSI I was given (I had taken it with limited success in the past). Also, during the time delay between the cold turkey and the lexapro, I self medicated a few times with benadryl and tylenol which made me sleep through the pain. I wasn't diagnosed with celiac disease at the time, so I don't know if benadryl is gluten-free.

I'm back on cymbalta because it the the most effective antidepressant for me and life is great. After that experience though, I keep an old bottle in the back of the medicine cabinet with a 3 week supply of 30 mg so I can wean off slowly if I ever need to again.

Welbutrin is similar in its withdrawl and don't let the doctor switch you cold turkey even if she says it is Okay. (also from experience)

If you are still having fibro symptoms down the road, lyrica is an option still. It works differently than cymbalta. I've never tried it though, because a fibro researcher explained to me that people usually only react to one of the two based on their genetics. Since cymbalta is magic for me, I've not bothered with the lyrica.

0

Share this post


Link to post
Share on other sites

I am on cymbalta 60 mg 1 time per day. I started on 30mg and have even gone to 90mg but it seems 60mg is the right amount for me.

I went into the Dr. begging for something. I have been on ADs off and on for years. I have been on paxil, zoloft, welbutrin and more.

Cymbalta is my magic! I love it! BUT I will say that it does have HORRIBLE withdrawal effects. I ran out of some once and boy the vertigo, upset stomach, aches and sadness were horrible.

Recently I was in the hospital and even though I told them I needed it they would not let me take mine from home and it took them 2 days and an emotional breakdown from me to get it. The nurse found me in my bed rocking and bawling like a lost child. It took her about 2 mins flat to get the med from the pharmacy and give it to me. I suppose my mood scared her.

My thoughts are if it works then great but if you have to go off of it be prepared. I have been on it for over a year now.

0

Share this post


Link to post
Share on other sites

Been on for 2 yrs for pain from Fibro. Getting off now but doing it slowly. Started taking every other day then every couple of days. Now take 2 times a week. Really haven't noticed any bad reactions. Hope you feel better soon.

0

Share this post


Link to post
Share on other sites

Stopped taking Cymbalta 5 days ago no problems feel fine. Was taking for Fibro pain but going gluten-free and eating low carb has helped in so many ways. This was one diagnosis I was happy to hear - Celiac ! After being sick most of all summer and now feeling like a new person. Taking lots of B6 B12 liquid is really helping.

0

Share this post


Link to post
Share on other sites

Free from this stuff and never had the first with drawal symptom. Which leads me to believe I didn't need it in first place. Feel good and am seeing some weight loss and inches too. If you need it take it! But do think doctors like to write Rx's wat too much.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,803
    • Total Posts
      932,560
  • Member Statistics

    • Total Members
      64,296
    • Most Online
      3,093

    Newest Member
    igone02@verizon.net
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ken, I have the same thing. Did you ever find a reason or solution? I'm tired of shampoos and creams that only work short term. My problem cropped up after I had gone gluten-free. Thanks!
    • Hi, I recently was tested (blood) and got a positive for celiac disease. I'm 31 and have had 3 kids, and no longer have the urge to urinate. I birthed all of my children naturally, no c-sections, no surgeries. I thought perhaps there was some trauma during the birth and attributed it to that. But have come across a few things online saying that bladder problems can be related to celiac disease? I have been to a few doctors for this problem, including a very confused urologist (I asked him about my stomach bloating issue with pictures of it- before having any clue it was from celiac!) and he wanted to run some tests but I have not been back. I had multiple (or perhaps just one very bad) urinary infections which would not go away for about 6 months. The last round of harder antibiotics finally killed it off. Has anyone else had this problem? I have not met with a GI yet to ask, I'm super poor right now! hah.
    • You're right on the extremes, I'm sitting in a gluten-free food festival right now and still unsure if to eat anything which I guess means I've hit the extreme end of the scale. Seem to be noticing the recovery pattern over the course of 6 weeks or so after a gluten hit. Will be very interesting to see what the blood test readings come out like when I eventually get them done again. And thanks for the good wishes
    • Your getting plenty of proteins for once and I would drop the L-glutamine supplement what brand is it? Paleo Protein as in the brand? They were not gluten free last I checked, I got sick from it 2 years ago or so when they changed to a non dedicated facility.
    • Very interesting. However, my positive on the DGP test is on the combined assay. When separated into IGA and IGG they are within normal range. Twice the IGA was a point or two above normal range, which can be easily disregarded per University of Chicago.  Much of the research done on NCGS is showing activation of cells which are different then in celiac. Placing it still in a gluten related illness spectrum, but an entirely different kind of mode of transport, if you will, then celiac disease. Odd, because I am pretty sure I read that 1st degree relatives of celiacs have a higher prevalence of NCGS suggesting it is, in part, that they are related. But I cannot recall where I read that.  I think my specialist doc is following the right track given that all of this began at the tail end of a 6 week challenge in 2015/16 and I have an increase in IELs.  which, as I've stated before, is a very non-specific finding however. Symptoms continued On a gluten free diet for me months after.  however I was only on it for that 3 months after they found some inflammation. So maybe I didn't give it long enough.  Or like I said, maybe it's something else. We shall see! 
  • Upcoming Events