• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is Miralax Gluten-free?
0

16 posts in this topic

I was told by my doctor to take Miralax for the C and I'm having the worst gluten reaction I've ever had. I'm actually afraid!! I looked at my gluten-free books and I couldn't find that it was actually a gluten-free product in the 2009 updates, but trusted that she knew what she was talking about or she wouldn't have told me to take it. I know that manufacturer's tell us that they can change a product at any time and not alert us, and they did apparently. I worry about kids and this product since it's so mainstreamed as a 'safe' treatment, but it certainly is not........anymore. Anyone else had this issue?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was told by my doctor to take Miralax for the C and I'm having the worst gluten reaction I've ever had. I'm actually afraid!! I looked at my gluten-free books and I couldn't find that it was actually a gluten-free product in the 2009 updates, but trusted that she knew what she was talking about or she wouldn't have told me to take it. I know that manufacturer's tell us that they can change a product at any time and not alert us, and they did apparently. I worry about kids and this product since it's so mainstreamed as a 'safe' treatment, but it certainly is not........anymore. Anyone else had this issue?

I don't know what your gluten reactions are like, but the listed known side effects http://www.rxlist.com/miralax-drug.htm (Choose Side Effects from the left sidebar) sound like they could mimic a lot of people's gluten reactions pretty well. I couldn't find any statement saying whether or not it had gluten either. If your reaction is all that scary, don't hesitate to go to the emergency room; otherwise, talk to your doctor about it in the morning.

0

Share this post


Link to post
Share on other sites

Doctors don't have the slightest idea what is gluten free and what isn't. We have to check everything they prescribe whether it is OTC or script. The Miralax should have a contact number for the company I would call them and ask them directly or ask your pharmacist to help. I am sorry this got you.

0

Share this post


Link to post
Share on other sites

That's true. My dr made it clear to me that he doesn't have that information available to him. So if he prescribes a drug, I have to research for myself whether it's gluten-free or not. Don't assume what your dr knows, always ask. Dr's really don't know much about nutrition.

0

Share this post


Link to post
Share on other sites

I am pretty sure Miralax is gluten-free (my doctor is at the leading celiac center in Boston and she prescribed it for me); however, I felt horrid on it. And it didn't really work.

I would recommend Cleanse More by Renew Life (health food stores and Whole Foods carry it) or OxyPowder (you can get online) or just taking a magnesium supplement. Those have all worked for me with no side effects.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Hello Ann,

I've used Miralax to undo a glutening. I don't like it because it takes three days to move through my system but it works and it did not cause a gluten reaction in me. (itching on knees, elbows and eyelids, constipation, so tired it feels like I'm carrying a medicine ball).

I think we need to look for another reason for your reaction. Everyone is different but if I were taking Miralax for constipation and I started itching I would know that something else I ingested was not safe. I know it's hard to do while you are sick but you are going to have to be a detective. Read every label (or stop ingesting foods that come with a label), google everything, don't overlook your pets food, or fellas kisses, cutting boards, et. I know it sounds crazy but I even got glutened from the steam coming off the cheap macaroni I cooked for the not celiac children I was babysitting. Their mom brought it. I cooked it. I was leaning over the pot to get a good look, trying to see if it was done. The steam got on my forehead and I started itching. The next morning I had a rash.

I hope you are feeling better soon,

OptimisticMom42

0

Share this post


Link to post
Share on other sites
Hello Ann,

I've used Miralax to undo a glutening. I don't like it because it takes three days to move through my system but it works and it did not cause a gluten reaction in me. (itching on knees, elbows and eyelids, constipation, so tired it feels like I'm carrying a medicine ball).

I think we need to look for another reason for your reaction. Everyone is different but if I were taking Miralax for constipation and I started itching I would know that something else I ingested was not safe. I know it's hard to do while you are sick but you are going to have to be a detective. Read every label (or stop ingesting foods that come with a label), google everything, don't overlook your pets food, or fellas kisses, cutting boards, et. I know it sounds crazy but I even got glutened from the steam coming off the cheap macaroni I cooked for the not celiac children I was babysitting. Their mom brought it. I cooked it. I was leaning over the pot to get a good look, trying to see if it was done. The steam got on my forehead and I started itching. The next morning I had a rash.

I hope you are feeling better soon,

OptimisticMom42

Oh my.........I just don't know. I check everything so carefully and still this happened. I've not slept all night. I get ringing in the ears, heartburn, nausea, my colon just stops workin and sits there like I'm going to birth an alien; I tingle down my arms and hands and they swell, my feet swell; I have heart palpitations, I can't breathe, my lung burns, and I'm so confused and tired! Does this sound like a glutening or an allergic reaction? I'm only in the process about 1 month. I thought I had cleaned out the house of all gluten and I still can't think of anything I had that wasn't listed as safe. I even peeled my peach, just in case. I'm so frustrated and tired. I am so tired of being a detective and putting my husband through this too. This disease seems like a cruel joke and I wish I had more control over my attitude today.

I had a peeled peach, a slice of Oscar Meyer ham (verified gluten-free), and the Miralax. In a matter of 30 minutes, I was sick. Any thoughts?

0

Share this post


Link to post
Share on other sites
Oh my.........I just don't know. I check everything so carefully and still this happened. I've not slept all night. I get ringing in the ears, heartburn, nausea, my colon just stops workin and sits there like I'm going to birth an alien; I tingle down my arms and hands and they swell, my feet swell; I have heart palpitations, I can't breathe, my lung burns, and I'm so confused and tired! Does this sound like a glutening or an allergic reaction? I'm only in the process about 1 month. I thought I had cleaned out the house of all gluten and I still can't think of anything I had that wasn't listed as safe. I even peeled my peach, just in case. I'm so frustrated and tired. I am so tired of being a detective and putting my husband through this too. This disease seems like a cruel joke and I wish I had more control over my attitude today.

I had a peeled peach, a slice of Oscar Meyer ham (verified gluten-free), and the Miralax. In a matter of 30 minutes, I was sick. Any thoughts?

Sounds like a glutening to me, but it may not have been any of the items you listed. We all know how you feel, I think most of us have been there especially in the beginning. It can be very frustrating at first, in part because not every company is as good at labeling and diclosing shared facilities. Some companies don't disclose barley malt for example so we need to call if we see the words natural flavoring. Also throw in the fact that for some of us the gluten reaction is delayed by up to a couple days and it can make it hard to figure stuff out. A food diary can be helpful in pinpointing suspect items. You've only been on the diet a month and may be experiencing some withdrawl. We can become very emotional when first off the stuff. Take it easy on yourself for a bit. I hope this passes soon.

If you haven't already you should get some sublingual B12, make sure it is sublingual and gluten free of corse. That should help with the tingles and other nerve type impact.

0

Share this post


Link to post
Share on other sites

I take Miralax from time to time due to C from percocet. I have never had a reaction. But just in case they changed the ingredients I just called the 800 number. They confirmed it is gluten-free.

0

Share this post


Link to post
Share on other sites

I had a peeled peach, a slice of Oscar Meyer ham (verified gluten-free), and the Miralax. In a matter of 30 minutes, I was sick. Any thoughts?

I started reacting to ham last summer. I'm guessing it's the nitrites/trates. I only eat Hormel Naturals now, no added bad stuff. Maybe it was the ham. Does it also contain MSG? Some people react that. I try to avoid it.

0

Share this post


Link to post
Share on other sites
I had a peeled peach, a slice of Oscar Meyer ham (verified gluten-free), and the Miralax. In a matter of 30 minutes, I was sick. Any thoughts?

I started reacting to ham last summer. I'm guessing it's the nitrites/trates. I only eat Hormel Naturals now, no added bad stuff. Maybe it was the ham. Does it also contain MSG? Some people react that. I try to avoid it.

I can't eat peaches or ham without a reaction. I would try to eat both on their own and see which ones you react to.

0

Share this post


Link to post
Share on other sites

I've been on miralax for several years with no problems...some people just have problems with any fiber in general.

0

Share this post


Link to post
Share on other sites
I was told by my doctor to take Miralax for the C and I'm having the worst gluten reaction I've ever had. I'm actually afraid!! I looked at my gluten-free books and I couldn't find that it was actually a gluten-free product in the 2009 updates, but trusted that she knew what she was talking about or she wouldn't have told me to take it. I know that manufacturer's tell us that they can change a product at any time and not alert us, and they did apparently. I worry about kids and this product since it's so mainstreamed as a 'safe' treatment, but it certainly is not........anymore. Anyone else had this issue?

What are the ingredients? Have you called and checked with the manufacturer, which should have been your first move?

Please do not post a headline to a topic declaring that a product is not gluten-free simply because you didn't react well. That proves nothing at all. Maybe it isn't gluten-free, but nothing you've posted has proven that. You need to call the manufacturer.

richard

PS -- I tried getting onto the Miralax website but it froze up.

0

Share this post


Link to post
Share on other sites
I've been on miralax for several years with no problems...some people just have problems with any fiber in general.

Thank you. I'm new and confused.

0

Share this post


Link to post
Share on other sites
What are the ingredients? Have you called and checked with the manufacturer, which should have been your first move?

Please do not post a headline to a topic declaring that a product is not gluten-free simply because you didn't react well. That proves nothing at all. Maybe it isn't gluten-free, but nothing you've posted has proven that. You need to call the manufacturer.

richard

PS -- I tried getting onto the Miralax website but it froze up.

Miralax is PEG-3350 (Polyethylene Glycol.) It is gluten free. We can't buy Miralax in Canada, so we get PEG-3350 from the compounding pharmacy.

Michelle

0

Share this post


Link to post
Share on other sites
Miralax is PEG-3350 (Polyethylene Glycol.) It is gluten free. We can't buy Miralax in Canada, so we get PEG-3350 from the compounding pharmacy.

Michelle

You're right. Miralax is just one gluten-free active ingredient and no inactive ingredients. It should be gluten-free.

richard

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,439
    • Total Posts
      930,578
  • Member Statistics

    • Total Members
      63,865
    • Most Online
      3,093

    Newest Member
    vprovenzatn
    Joined
  • Popular Now

  • Topics

  • Posts

    • Well guys, my blood test came back negative for celiac disease. Total IGA =161 (normal), IGA-TTG was < 1. I'm really quite surprised. My GI appointment was bumped up to 5/10 at least, so I won't wait til June to see them. My quest to find out where my lost 40 lbs went continues. Thank you all for your kidness and expertise while I waited for my answer. I can come back and let you know what they found out, in either case. Thank you very much again. All of you stay well!
    • Hi,  I am very sorry for posting back again. I have visited the consultant today and he said that the TTG is mildly elevated - does this mean it is a positive? The consultant said that as I tested negative for Celiac on three previous times, he thinks something else could be going on so came home worrying even more. The consultant has organised an endoscopy and requested it as a fast track and requested an urgent CT scan.  I was wondering if there is anything that I can do to best prepare for the endoscopy? Does my gluten amount seem to be enough with the 2 slices of bread on a morning? Is it also possible for the TTG to have become mildly elevated because of other conditions?  He mentioned to me that the colonoscopy didn't work really because of how it was clogged up and that the bowel prep didn't work.  I have also noticed that I am experiencing major constipation as well - I will have diarrhoea then it will fluctuate to constipation as well and have an awful gurgling sensation as soon as I eat anything like bread.  Thank you again for everyone on here. It is a wonderful forum. 
    • Hey y'all so I realized my allergy medicine probably affected the results of the IgE allergy blood tests. I tried to start eating gluten again so that I would be able to get the full blood panel from my GI but I can't do it. I ate two meals with gluten yesterday and ended up spending half the night in the bathroom throwing up because my body couldn't digest any of it. Do you know if there are any other ways a GI could diagnose possible celiac without me having to consume it?
    • Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware.  I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge. I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip. Can anyone offer the following advice: - have any of you traveled to these places or somewhere similar and how did you manage? - with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places) - CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce) - are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima? Thank you so much! Any advice will be really helpful! (Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it  I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!) Thanks Jes  
    • Hello. Been a while since I've been here. Not that I am necessarily better. But you've (the great peeps on this forum !  have been incredibly helpful and I know how to cope better, and I've made positive changes in mine and my daughter's lives. So, as you can see I am writing to ask you about this new EVIL I've just recently discovered is a neruo toxin, used often in frozen sea foods: Sodium triphosphate. For example; I've been eating frozen fish with gluten-free herbs and spices, added veggies for years and also frozen shrimp with hot butter and garlic. YUM! With no *apparent* side effects. I am not sure anymore...A few days ago, I had good serving of shrimp and the usual, butter with fresh garlic and a bowl of green leaf salad with olive oil and Himalayan salt and again garlic lol (a big fan of garlic here ) . Within an hour of eating, my abdomen was so bloated. I looked like I was pregnant and in my second trimester  . Wow! ...Ok, I thought to myself: WHAT did I ingest with gluten or milk, that could be the cause for this?...Everything seemed ok, over the last few days. So I had to read the ingredients of this shrimp. I guess something like instinct told me to do it. And BAM, I came across that thing: Shrimp, water, Sodium triphosphate. I did some searching online and did not find too much except that 'The United States Food and Drug Administration lists STPP as "generally recognized as safe." '  https://en.wikipedia.org/wiki/Sodium_triphosphate   THIS means very little to me personally. NOT reassuring at all.  I found something which DID scare me: " Even though deemed safe for ingestion, this is one chemical you want to avoid if you've experienced reactions due to eating frozen fish.  Check for seafood products labeled as "dry" which means they have not been contaminated with the chemical.  Food products labeled as "wet" have usually been treated with sodium tripolyphosphate.

      STPP, is a suspected neurotoxin according to the National Institute for Occupational Safety and Health’s (NIOSH) Registry of Toxic Effects of Chemical Substances. Food-grade STPP may cause acute
      skin irritation, and prolonged contact with skin should be avoided. STPP  is listed on the U.S. Environmental 
      Protection Agency’s Federal  Insecticide, Fungicide and Rodenticide Act as a registered pesticide and  it is also registered as an air contaminant under California’s  Occupational and Safety Health Act. The material safety data sheet lists STPP as toxic to the lungs with prolonged exposure having the potential to produce organ damage.  This neuro toxin also has the ability to cause internal inflammation from those suffering from autoimmune diseases.  Inflammation leads to painful flare-ups."   From this site: http://www.yourfibrosupport.com/fibro-relief-blog/side-effects-of-frozen-seafoodtreated-withsodium-tripolyphosphate It seems that there is one more evil to avoid. It's very hard to eat healthy, when you are on disability. It really is upsetting that even frozen fish which some of them I actually CAN afford, now are off the menu. The list just keeps getting smaller. I would like to point out that I have Candida, so it also means I can't eat things like Lentils or beans and the other gluten-free grains by the bucketfuls. I need to maintain a Paleo type diet. So, that's not cheap. We always have a lot of eggs at home and tuna and what meat I can afford, what is on sale, etc.   Been considering looking into free range meats and so on but that's not cheap. So, if I go that route, I'd have to split it with a person or two and probably buy a large freezer. Oh god. Just thinking aloud here...   I'd really appreciate any and all comments and suggestions.  Thanks very much for being so kind, L. 
  • Upcoming Events