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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Have C-diff?
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burdee    80

Almost 3 months ago, I was diagnosed by DNA Microbial stool test with clostridium difficile or c-diff. My NP first prescribed flagyl (with horrid side effects like nausea, stabbing stomach pain and strong metallic taste) for 10 days. My C-diff symptoms seem to decrease and I felt much better after the 10 day treatment. I followed that treatment with high dose (127 billion per dose) probiotics to replace the 'good bacteria' flagyl killed, although I took a lower dose probiotic while taking flagyl. However within a few weeks, my c-diff symptoms returned. After I told my doc and before I could consider a different drug, my NP phoned another prescription for flagyl (UUUGGHH!) into my HMO pharmacy. So I started another 10 day flagyl treatment. However, the c-diff symptoms increased while on that treatment. Then I developed both flagyl and c-diff induced nausea to the point I couldn't eat. When I told my doc, he told me to take a 2 day treatment break and then start vancomycin (a stronger drug for c-diff).

After 3 days of vanco, with relatively few symptoms, I got severe gut pain last night, followed by very soft stools (not quite diarrhea) this morning. Fortunately peppermint tea decreases the gut pain and I didn't have any diarrhea today. So I'm committed to endure whatever I must to finish this vanco treatment. (I read stomach pain is common with vanco, but I should contact my doc if the pain is severe. I've had soooo much excruciating gut pain over the past 10 years with first undiagnosed celiac disease, then food allergies, then klebsiella, enterobacter cloaecae and cryptosporidium infections, that my current pain seems tolerable.

So I want to know: Has anyone else had c-diff? How was it treated? Did you have any recurrence? Have you used vancomycin? What was your experience with vanco? Did you finally eliminate c-diff?

SUE

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mushroom    1,205

As I mentioned in another post, my lab report recommended two different treatments, one an antibiotic I can't remember, and the other a gentian formula which my c.diff was susceptible to. I chose the gentian formula :D and it worked very well. Vancomycin is pretty heavy duty stuff!!!

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trents    8

Sue,

I am staff chaplain in a hospital setting and have encountered many patients with C-diff. It's nasty stuff and my heart goes out to you. Take heart, though, you will eventually conquer it. It is contracted most often by those who have suffered an imbalance in their gut microbial mix such as those who have been on prolonged antibiotic therapy for other infections. Keep up the probiotic regimine and remembr that not all probiotics are really effective. A lot of money is wasted on ineffective probiotics. Do some research. Check out a brand called "Align".

And remember to practice good hand hygene with soap and water to protect your family and friends. Alcohol-based hand sanitizers which we normally usen in the hospital setting are not effective with this bug and we are required to wash with soap and water when leaving a C-diff patient's room.

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mamaw    133

C-dif is so hard to get rid of! I'm sorry you are going through this....Ecology health , you can google has probiotic listed Dr O'hirra's professional formula that states it can help rid the body of C-dif.

hth

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burdee    80

Thanks, all who replied with suggestions about c-diff treatment.

Trents and Mamaw, I'm taking a freeze dried live cultured probiotic with 8 billion active bacteria per capsule. I've had good luck with that in the past to raise my good bacteria (as evidenced by stool test results). When I finish the vanco, I will take a 7 day higher dose (127 billion live bacteria per dose) probiotic treatment, to restore what antibacterials killed. I know what you mean about worthless probiotics and probiotic products. I've seen lots. My naturopath recommends the probiotics I use.

Mushroom, I hadn't read about the gentian product in all the info about c-diff. I'm glad you had success with that product. My naturopath only recommends flagyl and vanco, especially for well-established c-diff. I may have contracted c-diff after treating for candida with nystatin for 5 months last year. We really don't know how long I had c-diff, because the symptoms increased rather slowly. I at least had it 2-3 months before starting flagyl treatment.

SUE

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ann72601    0
Almost 3 months ago, I was diagnosed by DNA Microbial stool test with clostridium difficile or c-diff. My NP first prescribed flagyl (with horrid side effects like nausea, stabbing stomach pain and strong metallic taste) for 10 days. My C-diff symptoms seem to decrease and I felt much better after the 10 day treatment. I followed that treatment with high dose (127 billion per dose) probiotics to replace the 'good bacteria' flagyl killed, although I took a lower dose probiotic while taking flagyl. However within a few weeks, my c-diff symptoms returned. After I told my doc and before I could consider a different drug, my NP phoned another prescription for flagyl (UUUGGHH!) into my HMO pharmacy. So I started another 10 day flagyl treatment. However, the c-diff symptoms increased while on that treatment. Then I developed both flagyl and c-diff induced nausea to the point I couldn't eat. When I told my doc, he told me to take a 2 day treatment break and then start vancomycin (a stronger drug for c-diff).

After 3 days of vanco, with relatively few symptoms, I got severe gut pain last night, followed by very soft stools (not quite diarrhea) this morning. Fortunately peppermint tea decreases the gut pain and I didn't have any diarrhea today. So I'm committed to endure whatever I must to finish this vanco treatment. (I read stomach pain is common with vanco, but I should contact my doc if the pain is severe. I've had soooo much excruciating gut pain over the past 10 years with first undiagnosed celiac disease, then food allergies, then klebsiella, enterobacter cloaecae and cryptosporidium infections, that my current pain seems tolerable.

So I want to know: Has anyone else had c-diff? How was it treated? Did you have any recurrence? Have you used vancomycin? What was your experience with vanco? Did you finally eliminate c-diff?

SUE

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ann72601    0
Almost 3 months ago, I was diagnosed by DNA Microbial stool test with clostridium difficile or c-diff. My NP first prescribed flagyl (with horrid side effects like nausea, stabbing stomach pain and strong metallic taste) for 10 days. My C-diff symptoms seem to decrease and I felt much better after the 10 day treatment. I followed that treatment with high dose (127 billion per dose) probiotics to replace the 'good bacteria' flagyl killed, although I took a lower dose probiotic while taking flagyl. However within a few weeks, my c-diff symptoms returned. After I told my doc and before I could consider a different drug, my NP phoned another prescription for flagyl (UUUGGHH!) into my HMO pharmacy. So I started another 10 day flagyl treatment. However, the c-diff symptoms increased while on that treatment. Then I developed both flagyl and c-diff induced nausea to the point I couldn't eat. When I told my doc, he told me to take a 2 day treatment break and then start vancomycin (a stronger drug for c-diff).

After 3 days of vanco, with relatively few symptoms, I got severe gut pain last night, followed by very soft stools (not quite diarrhea) this morning. Fortunately peppermint tea decreases the gut pain and I didn't have any diarrhea today. So I'm committed to endure whatever I must to finish this vanco treatment. (I read stomach pain is common with vanco, but I should contact my doc if the pain is severe. I've had soooo much excruciating gut pain over the past 10 years with first undiagnosed celiac disease, then food allergies, then klebsiella, enterobacter cloaecae and cryptosporidium infections, that my current pain seems tolerable.

So I want to know: Has anyone else had c-diff? How was it treated? Did you have any recurrence? Have you used vancomycin? What was your experience with vanco? Did you finally eliminate c-diff?

SUE

Hi Sue,

Yes, I have it too. I can't think of anything that hasn't been tried to resolve the issue until recently. My doctor finally ran some food allergy tests on me and found that I had severe allergies to casein, eggs(white and yolk), milk, soy, chicken, and then some moderate to mild reactions to many other common foods. When these were eliminated from the diet I my C-diff improved within 2 days.

I'm not saying that it will be your issue too, but after 10 years of having the same issue and suddenly seeing an improvement so quickly, I think it's probably safe enough to share this with you as a possibly remedy.

I hope you feel better soon.

Ann

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burdee    80
Hi Sue,

Yes, I have it too. I can't think of anything that hasn't been tried to resolve the issue until recently. My doctor finally ran some food allergy tests on me and found that I had severe allergies to casein, eggs(white and yolk), milk, soy, chicken, and then some moderate to mild reactions to many other common foods. When these were eliminated from the diet I my C-diff improved within 2 days.

I'm not saying that it will be your issue too, but after 10 years of having the same issue and suddenly seeing an improvement so quickly, I think it's probably safe enough to share this with you as a possibly remedy.

I hope you feel better soon.

Ann

Hi Ann:

How were you tested for c-diff? I was tested for food allergies several years before the DNA Microbial stool test showed I had high amounts of c-diff. So long before I developed c-diff, I had already abstained from gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg. I have no other food allergies. I took 3 different ELISA blood test for delayed reaction food allergies and one enterolab stool test for food allergies. Those diagnosed all my allergies.

I realized food allergy reactions and c-diff symptoms can feel similar. I get the same kind of cramping intestestinal pain from eating some of my food allergies, as I did from c-diff. However a stool test, not my reported symptoms, confirmed I had c-diff. I'm also adamant about avoiding my allergens. So I recognize my c-diff symptoms.

I'm glad your problem was really food allergies. Those are easier to resolve with dietary change, than a potentially lethal bacterial infection like c-diff.

SUE

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Korwyn    81
Almost 3 months ago, I was diagnosed by DNA Microbial stool test with clostridium difficile or c-diff. My NP first prescribed flagyl (with horrid side effects like nausea, stabbing stomach pain and strong metallic taste) for 10 days. My C-diff symptoms seem to decrease and I felt much better after the 10 day treatment. I followed that treatment with high dose (127 billion per dose) probiotics to replace the 'good bacteria' flagyl killed, although I took a lower dose probiotic while taking flagyl. However within a few weeks, my c-diff symptoms returned. After I told my doc and before I could consider a different drug, my NP phoned another prescription for flagyl (UUUGGHH!) into my HMO pharmacy. So I started another 10 day flagyl treatment. However, the c-diff symptoms increased while on that treatment. Then I developed both flagyl and c-diff induced nausea to the point I couldn't eat. When I told my doc, he told me to take a 2 day treatment break and then start vancomycin (a stronger drug for c-diff).

After 3 days of vanco, with relatively few symptoms, I got severe gut pain last night, followed by very soft stools (not quite diarrhea) this morning. Fortunately peppermint tea decreases the gut pain and I didn't have any diarrhea today. So I'm committed to endure whatever I must to finish this vanco treatment. (I read stomach pain is common with vanco, but I should contact my doc if the pain is severe. I've had soooo much excruciating gut pain over the past 10 years with first undiagnosed celiac disease, then food allergies, then klebsiella, enterobacter cloaecae and cryptosporidium infections, that my current pain seems tolerable.

So I want to know: Has anyone else had c-diff? How was it treated? Did you have any recurrence? Have you used vancomycin? What was your experience with vanco? Did you finally eliminate c-diff?

SUE

A massive bout of C. Diff is what triggered my celiac disease. I went two full rounds of anti-biotics, the first time was a full IV drip mega dose with a 10-day followup, the second time being a 21 day series of flagyl. You need to get onto VitaminShoppe.com (or someplace local) and get two or three bottles of Sachromyces Boulardi. It needs to be kept refrigerated, so have it shipped overnight if possible or at least 2nd day. This is a non-candida yeast which occupies the same niche in the gut as C. Diff and will help fill in the habitat that C.Diff likes. About 4 days before you finish your flagyl, start on the Boulardi at double or triple the normal dose. Please be aware that you probably will never completely get rid of it so ANY TIME you take another anti-biotic for anything you should run through a bottle of S. Boulardi starting a couple days before you go off the anti-biotic.

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chiroptera    0

Yes, I did and almost died from it. I had been taking an antibiotic at the time. I was in our major University hospital for 1 week. I was one step away from having toxic megacolon when your colons bursts and you die. I had numerous IV's and lots of Vanomycin and Flagyl. The Vancomycin saved my life. It developed into pseuomembraneus (sp?) colitis. TMI here but for over 1 year I had yellow "ribbons" in my stool; it was very bad. I had many re-occurances but fortunately was not hospitalized again.

I have since learned that another contributing factor to the toxins A and B overgrowth (c. difficile ) was that I was on prevacid for GERD for over 8 years. My stomach was all messed up.

Going gluten free has eliminated the severe GERD and I take nothing now. However, I did not have any gastro problems at all until the c diff infection; the infection brought on my gluten/dairy intolerance.

Once you have such a severe stomach/colon infection, the doctors said it can mess your digestion up for life; that's what happened to me.

HTH....

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