• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Medications & Frustrating Pharmacists
0

11 posts in this topic

Recommended Posts

pdx.lila    1

Yesterday my doctor called in a prescription for me (nothing serious,just a little infection) and when I went to pick it up I asked the pharmacist to make sure the medication was gluten-free. I explained to him that I have celiac disease and even the smallest amount of gluten can be harmful. He stared at me and then said he'd look in to it. He spent about 30 minutes trying to figure it out before telling me he didn't think it had gluten in it,but that the manufacturer was closed.

Today I called the pharmacy back and told them that I needed them to call the manufacturer again to make sure there was nothing in it that would make me sick. The pharmacist asked me what happens when I have gluten and then told me that because I didn't have an anaphylactic reaction than she didn't understand why it was such a big deal if I ingested some. I nearly started crying,I was so frustrated that she was telling me this.

I just needed to vent,thanks everyone! Has anyone else had this problem with pharmacists? I know lots of meds don't have gluten,but it seems important to make sure any ones we take absolutely don't.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yesterday my doctor called in a prescription for me (nothing serious,just a little infection) and when I went to pick it up I asked the pharmacist to make sure the medication was gluten-free. I explained to him that I have celiac disease and even the smallest amount of gluten can be harmful. He stared at me and then said he'd look in to it. He spent about 30 minutes trying to figure it out before telling me he didn't think it had gluten in it,but that the manufacturer was closed.

Today I called the pharmacy back and told them that I needed them to call the manufacturer again to make sure there was nothing in it that would make me sick. The pharmacist asked me what happens when I have gluten and then told me that because I didn't have an anaphylactic reaction than she didn't understand why it was such a big deal if I ingested some. I nearly started crying,I was so frustrated that she was telling me this.

I just needed to vent,thanks everyone! Has anyone else had this problem with pharmacists? I know lots of meds don't have gluten,but it seems important to make sure any ones we take absolutely don't.

What Pharmacy was it? What Country / State or other information? If it's a Chain, Email the home office.. Contact the Goverment body that the Pharmacist holds their License in...

Share this post


Link to post
Share on other sites
Lisa    457

That was a very cold response and none of her darn business. But, you will come across many people who are ignorant to our issues. That's why self education is such a big part of our success.

It is best to contact that manufacturer and use the experience of hundreds here, who have been where you are now. There's great information here.

Share this post


Link to post
Share on other sites
ravenwoodglass    1,211

This pharmacist needs to be educated. Meanwhile is there another pharmacy you could go to? I also agree that the pharmacist should be reported, they are responsible for making sure that what they give you is safe for you. As to a lot of meds being safe, well unfortunately that really isn't the case. All your meds need to be checked and if they are generic they need to be checked at each refill. I would never wish celiac on anyone but it this persons case.......

If you can tell us what the med is someone here may know if it is safe or not.

Share this post


Link to post
Share on other sites
missy'smom    78

My pharmacist doesn't get it either and thought they could just read the label. I always ask the doc. to write the generic and brand name of the med down for me. That way if I can't track one down maybe I'll have better luck with the other. I often end up with a day or so delay. I also have to call them myself and often have to track down the phone numbers myself. They finally are starting to get used to me so last time I was able to call from the pharmacy phone. If I have to look up the numbers myself, I try the manufacturers website or one of the gluten-free meds lists, but I'm not sure how up to date they are. There needs to be a better way! Unfortunately, I've heard your story many times here before from others.

Share this post


Link to post
Share on other sites
Ads by Google:


pdx.lila    1

The medication is metronidazole, for treating BV and it was at a Walgreens. I asked for either the manufacturer's name/number or for them to call. They called and told me that the one thing that could possibly have gluten in it is made from potato. I'm still suspicious because they were so dismissive,but I think it's safe. has anyone else had experience with this? As I understand it,this is the generic of Flagyl.

Thanks everyone! It's always nice to hear the comforting comments and "oh yeah,I've been there". I know it's just a matter of informing them and patiently reminding them of what I need.

Share this post


Link to post
Share on other sites


Ads by Google:


lizard00    33

I just finished taking that very drug for that very reason. Flagyl (the brand name) is gluten free, but it is hard to find and is super expensive... even with our insurance 7 days was going to cost me $75.

Metronidazole is a serious antibiotic, and it's likely it will make you feel sick, but not from gluten. Make sure you take it after you eat a full meal to ease the stomach affects.

**I should add that mine was made my Pliva (which is part of Teva Pharmaceuticals). I'm not sure if someone else also manufactures it, though.**

Share this post


Link to post
Share on other sites
jerseyangel    409
Metronidazole is a serious antibiotic, and it's likely it will make you feel sick, but not from gluten. Make sure you take it after you eat a full meal to ease the stomach affects.

And by all means, don't drink any alcohol while on it.

Share this post


Link to post
Share on other sites


Ads by Google:


The medication is metronidazole, for treating BV and it was at a Walgreens. I asked for either the manufacturer's name/number or for them to call. They called and told me that the one thing that could possibly have gluten in it is made from potato. I'm still suspicious because they were so dismissive,but I think it's safe. has anyone else had experience with this? As I understand it,this is the generic of Flagyl.

Thanks everyone! It's always nice to hear the comforting comments and "oh yeah,I've been there". I know it's just a matter of informing them and patiently reminding them of what I need.

i just finished a dose of this "flagyl" is the brand name and metronidazole is the generic name. i had no problem with it. i too use walgreens, but my pharmacist understands celiac. i had to tell him about it, and in the beginning there were many times that i could call the manufacturer myself. they will give you the number or the company's name. on every drug website you can call, there is a pharmacy or allergy promt. the person on the other end will ask you many questions, ie: allergies, doc, address etc. they will put you on hold for a little bit, but when they come back they will tell you with 100% if there is gluten in it, or in the generic brand. most of the time my pharm with do the research, but sometimes it is easier for me. i would report your pharmacist for their words, they of all people understand contraindications with medications. that remark was uncalled for. I am sorry you had a hard time with this particular pharmacist. i finally have one i trust, to the point that my nasal inhaler is now only covered by generic brand and it had gluten. it took them about a week but they found one that i could use and ordered for me. sometimes its all about customer service, one person can make everyone else bad. good luck. remember with this medicine absolutiely no alcohol, or red wine vinegar. it will give you an antibuse effect and you will vomit until the cows come home. make sure you drink plenty of water with this to prevent a yeast infection in your throat. don't forget as well side effects to this med as well as other antiinfectives is diarrhea, headache, cramping, and metallic taste in your mouth. the do subside eventually, but the taste is awful, use sugar free hard candies to help with that (gluten free of course) good luck

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,864
    • Total Posts
      938,371
  • Member Statistics

    • Total Members
      65,762
    • Most Online
      3,093

    Newest Member
    don1938
    Joined
  • Popular Now

  • Topics

  • Posts

    • So where oh where to begin. I read all and everyone's post because as a community I think it's extra special when people have others they can vent to that understand how each other are feeling. Ok enough with the gushy stuff. Down to business. I have been gluten free for almost 9 months October 4 (im counting)  the relief I have felt is diarhea is gone. Another good positive symptom and sign is I'm 5'7 so at diagnosis I withered away to about 108 (very sickly all muscle was gone) I now I got weighed in at 122 today! And I'm literally eating whole foods some extra food maybe some chips here and there but I've always been a chip person. I haven't weighed 122 since I was 18 (Im 29) so that part had me excited. Except for the last few weeks my fatigue has come back with a vengeance. I don't know where it's coming from, i got my thyroid (just tsh until I see endo at end of month when she will check all thyroid hormones) and it was at 3.45 I'm not on thyroid hormone so I wonder if this is causing my fatigue and fast weight gain since I started gaining weight pretty fast (even though I needed it, it happened all at once over a month) I'm also having severe hair loss. I had my iron checked and it's all went up except my ferritin which was at 15 last week's blood test. My symptoms consist mainly of hair loss, shortness of breath, dizziness especially from sitting to standing, really bad raynauds attacks everyday all day (on feet) neck pain (severe) now new symptom started about 4 months ago the back of my shoulder bone to the elbow and clavicle bone are all hurting so so bad. I don't expect anyone to know what's wrong with me I just felt like venting. Also I was prescribed neomycin and xifaxin because a hydrogen breath test showed high methane in my test but normal level hydrogen so the actual SIBO test was negative but she was confused about the high methane and said I may benefit from the antibiotics. I still am waiting to get them from my insurance. I'm a seronegative celiac with positive biopsy. We've already gone through and rules out other scenarios for the villous blunting and IEL's. Any info would help me. I feel so weak some days. And all doctors want to say it's anxiety. I've heard that for far too long I actually went to a hematologist today because I've been freaked out the last year my wbc have been at 3.3 which my lab range is 4.5 and above to whatever the higher limit is. He told me to do a bone marrow biopsy because of the pain in my shoulder and arm and my "low wbc "which he wasn't even concerned about. Is this necessary right now or am I just spooking myself. Is it common to have low wbc. Could it be the extra methane in my breath or whatever. Any help would be great. Listen I have friends and family but they won't listen to all this. They think most of this is in my head. 
    • I've been having diarrhea for the last year which I attributed to stress. In the last three months I've been having INTENSE abdominal pain(all over not from gas bc I took anti gas medicine) gas, and bloating. The doctor ordered an upper and lower endoscopy. He found a precancerous polyp (not the cause of symptoms) removed it, performed biopsy on the irritated tissue he saw in my small intestine. Biopsy results came back as increased IELS. he said the results are a sign of celiacs and said he was ordering a blood test to "confirm the diagnosis" he ordered a celiac panel, t4 free, TSH, and lipase test. These other tests make me think he isn't really sure what it is. Could it really be celiacs with just the elevated IELS? (As a Longtime NSAID user I read online could have caused damage to small intestine although hadn't taken any for two months prior to endoscopy). I haven't heard anyone else's story like this, having endoscopy prior to blood work and starting to think I might not have celiacs. Just him saying "to confirm the diagnosis" made me think that's what HE thinks it is. Thoughts ? Appreciate any input! 
    • I know this is an old post but I was happy to see it here!!  There have been numerous times lately that I swell up (like 3 to 4 lbs heavier) the morning after excess salt (chips, salted nuts, pickles, etc...). This happens even when I know I haven't been exposed to gluten plus I don't have the emotional side and GI issues that come with gluten.  I deflate typically within a day or two and have just recently figured out that seems sodium related.  I am now wondering if the sensitivity to salt is related to a decrease in magnesium.  I quit taking my calcium/magnesium supplement not too long ago (not for any reason... just ran out/got lazy)
    • Hey guys - For the last few years I've dealt with energy issues, emotional lethargy, grogginess, and recently OCD, so I decided to go gluten-free 4 weeks ago. After a week of dizzy spells, irritability and insane cravings it felt like a veil had been lifted from me - I felt lighter on my feet, endlessly energetic, and most of all, so very happy.  Two days ago, I ate a LOT of gluten - a whole plate of breaded chicken thinkig it was battered in corn starch (newb issues, I guess) and within 30 minutes it felt like I had been hit by a truck: extreme fatigue, sudden depression, sense of hopelessness. The next morning was worse, and today I have felt no better and am experiencing swollen eyes and sinusitis. Before going gluten-free I had never had a reaction like this. Can anybody relate?         
    • Ok so is this really true?!?! Conventional? Remember, the fecal transplant was first described in the 1950s, but took decades to catch on as a conventional treatment for gut disorders, such as c-dif bacteria, partly because it was seen as crude and somehow objectionable. But it proved to work. Really well. So much so that it's now a fairly conventional treatment.
  • Upcoming Events