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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac & Carrageenan Sensitivity?
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1 post in this topic

Hello,

I was never diagnosed with Celiac disease (my test came back negative). I decided to go with a gluten free/casein free and completely dairy free diet anyway, but I still have a few symptoms that haven't cleared up. I have lost almost all faith in modern medicine as the answer to my health problems - I don't believe that antibiotics or medications with side effects will do me any good. I have been working to cure my ailments by trying to eliminate offending foods before going to the doctor again.

Since cutting out wheat/gluten, my skin cleared up and I was no longer having really abnormal bowel movements (constipation and very hard stools). After removing milk and dairy from my diet, the blue hue under my eyes started to fade away and look natural again. I had intensely painful anal fissures/internal hemorrhoids which were bleeding whenever I went to the bathroom. The bleeding is gone now, but the hemorrhoids are still painful, and haven't completely cleared up. I was also still experiencing eczema breakouts around my nose and mouth. I am lightheaded on a daily basis even after drinking considerable amounts of water and eating a healthy diet. The last problem I am experiencing is pain in my right abdomen, which I can't attribute to anything other than my daily black coffee.

I came across some information on carrageenan recently and found that it is an additive that actually affects a lot of people - especially people w/Celiac or other food allergies/sensitivities. You can read posts people left here:

http://www.wisegeek.com/what-is-carrageenan.htm

Since cutting out carrageenan as carefully as I can, the eczema around my mouth/nose has been clearing up. My other symptoms (stomach pain, hemorrhoids, lightheadedness) have not completely cleared up, but it's only been a week since I've noticed the eczema is going away. I keep a detailed food journal and eat a good amount of fiber, fruit and vegetables daily.

Sorry for the long post and explanation. I am hoping maybe there is someone out there who has experienced similar issues and what you did to alleviate the symptoms. I have read a couple other posts who said they have cut out all grains completely. I would prefer not to have to do that, but I'm starting to feel like I'm insane. My symptoms never end and my doctors have yet to help me.

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