• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Soy/gluten Intolerant People, I Have A Question
0

12 posts in this topic

For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have a soy allergy and Yes, I get the same symptoms when I get glutened.

0

Share this post


Link to post
Share on other sites
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction presents as a bright red rash and extreme itching.

0

Share this post


Link to post
Share on other sites

My soy and gluten reactions are similar, but different. My reactions to being glutened are usually delayed. My reaction to soy are more immediate, usually within the hour of consumption. As far as what the symptoms are for me, both exposures cause nausea, intestinal cramping and bloating, and usually diarrhea (more so with soy).

A gluten exposure will take the body (villi) weeks to recover from. For me, a soy reaction is usually cleared within 24 hours.

Michelle

Western Washington State

I am gluten/soy/dairy/beef-free

Daughter is gluten/corn/dairy-free

0

Share this post


Link to post
Share on other sites

My reactions to soy are much different than my reactions to gluten. Soy binds me up really bad but I don't get the same neuro effects and arthritic pain that I get from gluten. Soy also makes me feel like my intestines are swollen but doesn't give me the bloat and gas that I get from gluten. Gluten also makes my ataxia worse, makes my hair fall out and once I get D, about 3 days after contact, I then have 3 days of GI bleeding and pass clots. That doesn't happen with the soy. The soy reaction also passes fairly quickly with gluten I am sick for up to 3 weeks.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Soy causes the symptoms I used to get with gluten...stomach cramping, diarrhea, and I am sick for at least 3 weeks...gluten now is mostly neurological symptoms, yet my tummy isn't right for 3 weeks to 4 months.

0

Share this post


Link to post
Share on other sites
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

You may be actually reacting to MSG (found in all soy products) and other foods (whole foods) that contain naturally occuring glutamates. I recently discovered this through researching for info and reviewing my food/medication/cosmetics diary. MSG and aspartate (artifiicial sweeteners) are both strong excitotoxins to the brain and can cause GI and neuro problems/symptoms. After almost three years of suffering from myoclonus, I have recently made this discovery. Gluten (gluten grains), Dairy, corn, and soy have the higest level of glutamic acid.

"Whole Foods" containing high levels (which triggered my myoclonus) include: Shrimp and shellfish, Parmesan cheese (and many cheeses), mushrooms, tomatoes, Boar's head deli meats, Boar's head hot dogs, many chicken broths that contain yeast extract, products containing hydrolyzed vegetable or soy proteins or hydrolyzed "anything". Most nuts (cashews are the worst), most beans (but not all), gelatin found in capsules, ice cream and some gluten-free flours...and commerically produced gluten-free bread! Most toothpastes and tooth whiteners contain artificial sweeteners. I reacted severely to Aquafresh White trays two weeks ago. Many cosmetic products also contain glutamates. I am currently investigating my Garnier hair color because I see one ingredient that could be a strong possibility. There are so many products containing hidden Glutamates but it is well worth considering as you may find a substantial improvement in symptoms if you make a "connection" with this.

Sylvia ann

0

Share this post


Link to post
Share on other sites
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My gluten reactions are annoying, my soy reactions are more extreme.

0

Share this post


Link to post
Share on other sites

Soy gets me faster than gluten with acne around my mouth and jaw line. I do recover within a day with soy but takes me a few days with gluten (fog and tiredness).

0

Share this post


Link to post
Share on other sites
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction is worse and more immediate than my gluten reaction. For me soy even small amounts of soy trigger within about an hour stomach cramps, then within 3-4 hours anxiety and insomnia, and hot flashes. Larger amounts of soy trigger moderate myoclonus and panic attacks in addition. It takes me about 1 to 2 weeks to recover from soy reaction. The anxiety and insomnia are the last things to go.

0

Share this post


Link to post
Share on other sites

My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day.

My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.

0

Share this post


Link to post
Share on other sites
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

I have the same problems with soy as Sylvia Ann has. If you take foods high in glutamates like soy and then process it, the glutamates are freed. If your sensitive to MSG (many people are and don't know it) you'll react to soy. Free Glutamates causes neurons or receptor cells to fire sometimes to the point of death. We have alot of these cells lining our digestive tract, along our heart, and across the brain or BBB.

Processed soy will in turn give me headaches, stomach distress and at night I'll wake up because my heart is beating like crazy in my chest. Then insomnia will follow. Not fun.

Gail

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,806
    • Total Posts
      932,572
  • Member Statistics

    • Total Members
      64,299
    • Most Online
      3,093

    Newest Member
    Lauren Leon
    Joined
  • Popular Now

  • Topics

  • Posts

    • I'm glad you have a diagnosis.  Fibromyalgia is recognized by western medicine, FDA has even approved several drugs for its treatment.  This article from the NIH is interesting, saying that not all doctors are familiar with it ( those are probably the ones who minimize it).   I hope your health improves now that you know what you have and can begin to do something for it. https://www.niams.nih.gov/health_info/fibromyalgia/#c
    • Hi Casy and welcome! I say welcome, you've been here before! Welcome back then You probably know already that you tick a lot of the celiac boxes (so answer to a) is no you're not crazy ). It's a bugger to diagnose however and you have to be eating gluten for the tests to work. So your previous test when the mess hall diet was eggs rice and chicken may not have been accurate.  I collected some faqs on the diagnosis process sometime ago. They're here along with a couple of links that may be of use in regard to the second question about the tests available:  There's also the board FAQ stickied above of course: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/  If I were you I'd be tempted to try cutting gluten. My advice would be not to do that at least just yet - if the test comes back positive they may want to run an endoscopy or other blood test. It's not pleasant to go back on it if its a problem for you, the 'gluten challenge' in other words.  One final point, I don't know what a positive diagnosis would do for your military career prospects. Maybe thats something you should think about or discuss with someone in confidence? The diagnosis can't do much for you practically, treatment is to not consume gluten. So you may be able to not pursue the diagnosis and just do your own test with avoiding gluten. Although I don't know how practical that is with MRE's etc... There may be others here who can help with that question.  Oh and theres a genetic element, so your son's GI issues may also be related... Best of luck! Matt  
    • Perhaps you were run down and your immune system was compromised? Here's a good paper on the subject: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3579488/ Not much definitive, but this for instance is interesting: In my own case I know that under gluten I lived for years with an impaired immune system. Any cold going around I got it and kept it for longer than everyone else. I was often 'under the weather' and I had unexplained urinary infections etc. The skin issues were one part of that and the SD the most visible. So many things resolved when going gluten free that I was upset that the SD, whilst improving, didn't also disappear.  I saw a consultant dermatologist and he diagnosed it and said that Nizoral had the best chance of impacting on it - in fact its the active ingredient: ketoconazole that you need to look for: I only use the shampoo now if its bad and it isn't too bad at all, I think because I'm broadly healthy, eating well and strict on the diet. I have an itchy scalp and occasional spots at bottom of scalp but I can always go back to the shampoo if needed. Like you I have a couple of others sat around for an alternative.  My research has suggested its a case of treating symptoms and staying well, but its control rather than cure.  Sorry!  
    • Yours looks safe I was using paleo pro back then and the company changed from gluten free to manufactured in the same facility as.
    • Hello all! Does anyone take the Claritin non drowsy reditabs for indoor and outdoor allergies? Its the dissolvable ones. I was prescribed loratadine as prescription but pharmacist told me the pill form had gluten in its ingredients and that this Claritin reditabs were gluten free. I will call manufacture company as well just wanted to see if my fellow celiacs took this or what type of allergy medicine do you guys take? Any advice is helpful. Also for my post nasal drip I was prescribed Fluticasone Propionate Nasal spray. I have yet to use this as it is the generic equivalent for Flonase. Anyone know if it is gluten free? The manufacturing company said they could not state if it was free of gluten because they do not test it but she did say nothing in the inactive ingredients looks like it contains gluten???? I really  need to you a nasal spray as I cannot breathe or swallow due to allergies in the air.
  • Upcoming Events