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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Soy/gluten Intolerant People, I Have A Question
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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

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I have a soy allergy and Yes, I get the same symptoms when I get glutened.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction presents as a bright red rash and extreme itching.

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My soy and gluten reactions are similar, but different. My reactions to being glutened are usually delayed. My reaction to soy are more immediate, usually within the hour of consumption. As far as what the symptoms are for me, both exposures cause nausea, intestinal cramping and bloating, and usually diarrhea (more so with soy).

A gluten exposure will take the body (villi) weeks to recover from. For me, a soy reaction is usually cleared within 24 hours.

Michelle

Western Washington State

I am gluten/soy/dairy/beef-free

Daughter is gluten/corn/dairy-free

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My reactions to soy are much different than my reactions to gluten. Soy binds me up really bad but I don't get the same neuro effects and arthritic pain that I get from gluten. Soy also makes me feel like my intestines are swollen but doesn't give me the bloat and gas that I get from gluten. Gluten also makes my ataxia worse, makes my hair fall out and once I get D, about 3 days after contact, I then have 3 days of GI bleeding and pass clots. That doesn't happen with the soy. The soy reaction also passes fairly quickly with gluten I am sick for up to 3 weeks.

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Soy causes the symptoms I used to get with gluten...stomach cramping, diarrhea, and I am sick for at least 3 weeks...gluten now is mostly neurological symptoms, yet my tummy isn't right for 3 weeks to 4 months.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

You may be actually reacting to MSG (found in all soy products) and other foods (whole foods) that contain naturally occuring glutamates. I recently discovered this through researching for info and reviewing my food/medication/cosmetics diary. MSG and aspartate (artifiicial sweeteners) are both strong excitotoxins to the brain and can cause GI and neuro problems/symptoms. After almost three years of suffering from myoclonus, I have recently made this discovery. Gluten (gluten grains), Dairy, corn, and soy have the higest level of glutamic acid.

"Whole Foods" containing high levels (which triggered my myoclonus) include: Shrimp and shellfish, Parmesan cheese (and many cheeses), mushrooms, tomatoes, Boar's head deli meats, Boar's head hot dogs, many chicken broths that contain yeast extract, products containing hydrolyzed vegetable or soy proteins or hydrolyzed "anything". Most nuts (cashews are the worst), most beans (but not all), gelatin found in capsules, ice cream and some gluten-free flours...and commerically produced gluten-free bread! Most toothpastes and tooth whiteners contain artificial sweeteners. I reacted severely to Aquafresh White trays two weeks ago. Many cosmetic products also contain glutamates. I am currently investigating my Garnier hair color because I see one ingredient that could be a strong possibility. There are so many products containing hidden Glutamates but it is well worth considering as you may find a substantial improvement in symptoms if you make a "connection" with this.

Sylvia ann

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My gluten reactions are annoying, my soy reactions are more extreme.

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Soy gets me faster than gluten with acne around my mouth and jaw line. I do recover within a day with soy but takes me a few days with gluten (fog and tiredness).

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction is worse and more immediate than my gluten reaction. For me soy even small amounts of soy trigger within about an hour stomach cramps, then within 3-4 hours anxiety and insomnia, and hot flashes. Larger amounts of soy trigger moderate myoclonus and panic attacks in addition. It takes me about 1 to 2 weeks to recover from soy reaction. The anxiety and insomnia are the last things to go.

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My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day.

My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.

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For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

I have the same problems with soy as Sylvia Ann has. If you take foods high in glutamates like soy and then process it, the glutamates are freed. If your sensitive to MSG (many people are and don't know it) you'll react to soy. Free Glutamates causes neurons or receptor cells to fire sometimes to the point of death. We have alot of these cells lining our digestive tract, along our heart, and across the brain or BBB.

Processed soy will in turn give me headaches, stomach distress and at night I'll wake up because my heart is beating like crazy in my chest. Then insomnia will follow. Not fun.

Gail

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