Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hello From Kentucky

TEaglefeather

By TEaglefeather
in Meet Up Room

Recommended Posts

TEaglefeather Rookie
TEaglefeather
Posted

Is there any meetings in Kentucky for Celiac people ?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Welcome to the forum! :)

There are support groups in Louisville and Lexington.

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites
Rosewied Rookie
Rosewied
Posted

There is a group that meets in Louisville at Baptist Hospital East. I haven't been. I was recently diagnosed myself. They have a message board you can check out and newsletters if you join. There's an annual fee. They do a pitch in of gluten free food at each meeting as well. Hope this helps I don't know what part of Kentucky you're in.

Meagan

Link to comment
Share on other sites
heatherjane Contributor
heatherjane
Posted

I've been going to the one in Louisville at Baptist East and it's a great group with a good number of people. We meet once a month on a Thursday, 7pm. Every week a different topic is presented, and there's always food. :) We just had a picinic in August and will have a Christmas get-together over the holidays.

If you're nearby, hope you can make it!

Link to comment
Share on other sites
TEaglefeather Rookie
TEaglefeather
  • Author
Posted
I've been going to the one in Louisville at Baptist East and it's a great group with a good number of people. We meet once a month on a Thursday, 7pm. Every week a different topic is presented, and there's always food. :) We just had a picinic in August and will have a Christmas get-together over the holidays.

If you're nearby, hope you can make it!

WOW, we live in Pikeville which is abut 3 to 4 hours away from Louisville, I feel sure he would take that ride once a month how do we go about signing up for registering for meetings? And where exactly is Baptist East?

Thank You

Link to comment
Share on other sites
missy'smom Collaborator
missy'smom
Posted

No need to sign up. Just show up. They'll announce at each meeting about new members joining. The dues(it's an offical CSA-Celiac Spru Association- chapter) are not much and go to cover so many things, speakers, events etc. You'll get a new member packet with lots of info. from the local as well as national sources. Lately, the topics of the upcoming month's meeting have been posted on the site linked to above. There are folks who come in from outlying areas-Indianna etc. too.

Link to comment
Share on other sites
TEaglefeather Rookie
TEaglefeather
  • Author
Posted
No need to sign up. Just show up. They'll announce at each meeting about new members joining. The dues(it's an offical CSA-Celiac Spru Association- chapter) are not much and go to cover so many things, speakers, events etc. You'll get a new member packet with lots of info. from the local as well as national sources. Lately, the topics of the upcoming month's meeting have been posted on the site linked to above. There are folks who come in from outlying areas-Indianna etc. too.

When is the next meeting and could you tell me where Baptist East is ?

Thank you

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

I got to this page by clicking the pink glutenfreelouisville.org at the top left corner of the page. Looks like we just missed the Sept. meeting so next is November 12th Thursday at 7 p.m. Holiday cookie exchange is on the agenda.

Open Original Shared Link

I wish I could give good directions. I'm not familiar enough with the area and very poor at directions in general. It's just off Breckenridge. Actually not far from Norton. They're sort of back door neighbors with one of the major highways between them. Kresge Way is the street I think. If you park in the parking garage, there is a short covered walkway from the garage to the hospital on the 3rd floor? I think. The education center is the one to ask for. There are often other seminars and groups going on. The room is fairly consistant but it's a good idea to check the site as it sometimes changes. Hope that helps. Sorry I can't be a better help. You are always welcome to use the e-mail links or phone the officers or the gentleman who runs their site. They'd be more than happy to help.

Link to comment
Share on other sites
missy'smom Collaborator
missy'smom
Posted

Wait a minute, I just realized that unless I missed something, they didn't have a meeting for Oct. on the agenda. There most likely will be one. It should be 2nd Thursday in Oct. Maybe they haven't ironed out the schedule/agenda yet. I would recommend that you keep checking until time nears and if it doesn't show up, certainly get in touch with someone through the site.

Link to comment
Share on other sites
missy'smom Collaborator
missy'smom
Posted

Hope this helps with the directions.

Open Original Shared Link

Link to comment
Share on other sites
heatherjane Contributor
heatherjane
Posted

The next meeting in Louisville is scheduled for Thursday, October 8th, at 7pm. The topic is holiday meal planning. :)

If you're coming into Louisville via I-64 West, take the Watterson Expressway (I-264 West), and take the Breckenridge Ln NORTH exit. After you exit off of 264, you will eventually cross over Dutchmans Lane. (You will see a McDonalds, Wendy's, OCharleys on the left, Office Depot on the right.) Go through one more light, and the next light is Kresge Way. You will turn right at this light to enter the hospital campus. Follow the signs to the Main Entrance (C building). There is free parking out front.

We usually meet on the 2nd Floor in the Education wing, but you may want to check the glutenfreelouisville website before you leave just in case our room has changed. (We are always in the same building.) The Information Desk when you come in the Main Entrance can also direct you where to go.

Open Original Shared Link

Oh, and you don't have to sign up or anything, just show up. They'll just take your contact info when you walk in the door. A fee is only required if you would like to join the group, which is $20 for an entire year, but it's free just to come to the meetings.

I know it's a long trek for you, but if you can make it, we'd love to have you!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,046
    • Most Online (within 30 mins)
      7,748
    Averyreed8
    Newest Member
    Averyreed8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Finding out I’m coeliac whilst pregnant

      By cristiana · Posted

      Hi Katie I am so sorry you had two miscarriages in the past.  Try not to worry, though, because it could be that they were unrelated, perhaps? Well done for contacting your GP.  Is it possible that you can speak to your midwife in the meantime for a chat?    Cristiana  
    • Katiec123
      Finding out I’m coeliac whilst pregnant

      By Katiec123 · Posted

      @cristiana hi!  the things I’ve read online about having untreated coeliac disease whilst pregnant has really scared me and made me very hesitant to continue eating it. I feel like the best option might be to eliminate gluten from my diet now and then continue with testing after I’ve given birth. I’ve got in touch with my gp and am due to get a phone call back on Monday. Really worried now as I’ve had 2 miscarriages in the past 
    • cristiana
      Finding out I’m coeliac whilst pregnant

      By cristiana · Posted

      @Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy.  That went to term, in fact, I was 10 days over and had to be induced.  But my second baby, born 21 months later, arrived at 33 weeks.  He's now doing well, and taller than all of us - it was just an earlier than expected arrival! I agree, it would not be wise to eat gluten  if there is any suspicion that you have coeliac disease during a pregnancy.   It would of course be good to know for sure, one way or another, because I believe coeliacs receive extra monitoring during pregnancy in many countries.   I think it may be well worth asking your GP if you can be referred to a gastroenterologist for a formal diagnosis asap.   By the way you spell 'coeliac' I'm guessing you are posting from the UK?  If that is the case, the NHS may rush things along for you, I suspect they will.  If it appears that they cannot refer you urgently, if you have the money for a private consultation it might be well worth it, as there is a trend here in the UK (I'm British) to diagnose coeliacs without the need for an endoscopy if the blood test results are compelling. Sounds like this is the case for you.  If you can see a gastroenterologist privately s/he might be able to diagnose you there and then (make sure you take a printout of your blood tests). Generally, there is a lot of support for coeliacs through the NHS, with a nutritionist, annual reviews and blood tests to check for diet compliance and health related issues, DEXA scans to check bone density, extra vaccinations where indicated and in some areas, certain gluten free food available on prescription.  So for lots of reasons, if you can get a diagnosis it's worth it. I hope all goes well with your appointment, let us know how you get on.
    • Shireen32
      Still testing positive after being gluten free for one year ?!!

      By Shireen32 · Posted

      Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there  .  My symptoms have not improved at all since being gluten free.  Could this be refractory coeliac disease ?? How is that even diagnosed or confirmed  ?  I had tests recently and this is what they say :Endomysial abs (IgA) -Positive  TTG abs (IgA)U/ml : My result is : 0.9 U/ml The Range:0 - 10 U/ml What does this mean pls ??? How can I still test positive for Endomysial abs when I am gluten free and am very careful about cross contamination? Do I even have coeliac disease I’m convinced some other digestive disorder is causing these symptoms .   I also have not had a endoscopy and now the gastroenterologist calls me after one year ( I’m from the uk and have free healthcare which has been such a nightmare with all this and never help me  )  so as I am gluten free the gastroenterologist advised me to start eating gluten again to be referred for a biopsy .. Is a biopsy even worth me doing ? The only proof I have is when I was eating gluten I could never get my ferretin , vitamin d and folate levels up . And since being gluten free these have gone up a little bit  . But that doesn’t always mean coeliac as I know gluten stops absorption in even normal people  . Pls can anyone shed some light it’s much needed ! And share some advice or answer my questions above . I have no idea with this whole coeliac stuff and am very much struggling .Much Appreciated .  
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      Vitamin D deficiency.  Not enough Omega Threes. Another autoimmune disease like arthritis, maybe.    
×
×
  • Create New...