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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Vent....
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This year for social studies my son's class switches with the other fourth grade class which means he has a different teacher. This woman has been teaching for 30 years and is set in her ways. She is not flexible in any way. One of the projects she has my son's class working on is a cookie in the shape of our state. The kids make the cookies then use decorations to designate landmarks. Sure, it's a fun project, but when you have a child with severe food restrictions in your class you have to be flexible! My son has an IHP (Individualized Health Plan- like a 504 Plan) and one of the accomodations is for teachers to let me know in advance of projects that require food so I can get an alternate for my son. This teacher did not do this! I only found out about the project because my son told me! Now I have to scramble to find sugar cookie dough, specific icing and decorations that will match the rest of the class. We live in a small town and that means I must travel 90 minutes round trip to go to a store that sells gluten free sugar cookie dough. When I confronted this teacher about all of this she still didn't get it! She said she would provide all the icing and decorations but when I explained to her that they must be gluten free and not come in contact with the other student's gluten filled cookies she acted like I was overreacting! I am outraged. I am so upset I might go to our principal (I teach in this school too). She is not following the IHP which, by law, she must follow.

Okay, deep breath, end of vent. :angry:

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hannahp57    2

i would be angry too! you have every right to confront her (and the principal since it looks like that will be necessary). make sure she knows the severity of it! surely she doesnt want him to feel left out

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taweavmo3    1

Oh I would be fuming!!!! That must make it more difficult that you actually work in that school. I hope you get something worked out, that is really awful. I swear I sprout 100 new gray hairs each new school year, it is so stressful having to start over with someone new, and just praying that they undestand!

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JennyC    2

I'm so sorry. You should go to the principle. She obviously is not taking the health of your son, the law, or her career seriously. Keep us updated! :)

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Mtndog    18

As a fellow teacher, this makes me fume too!!!!!!!! You should confront her. She should have read your son's 504- it's the LEAST she could do.

It sounds like a fun project BUT with the amount of children out there with food allergies, it's time for a change.

PS My pet peeve is teachers who have been doing the same thing the same way forever. GRRR!!!

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CeliacAlli    0

That is tough. I've never been there as the teacher but Ive been there as the student and it stinks. I really really do not understand how they can just ignore it when we have a 504 plan in place. My mom is a teacher and always reads it if a child has one. It becomes very frusterating and is continuing to happen first with art projects then when I tried getting school lunch and now when teachers bring in snacks for homeroom. Its unbelievable. Sorry to hear this is happening to you too...

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I would be furious! What if you hadn't found out and he licked his fingers or ate a peice of cookie dough? I know you don't want to cause lasting hard feelings in your work place but it's time for this teacher to learn something herself.

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debmidge    7

Put your foot down.

This teacher must either change to accomodate the students' needs

or retire as she's a danger to her charges.

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Nancym    3

And they wonder why even kids are joining the obesity epidemic and getting non-alcoholic fatty liver disease and type 2 diabetes and ever younger ages. Schools shouldn't be fostering an environment where kids are getting sweets all the time. They could easily do this project with clay.

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This is a really tough situation. I am also a teacher, but sadly received a pink slip this year... which may have been a blessing I suppose. My son, five years old, just started kindergarten, and was just diagnosed with Celiac although my Mama instinct told me so a while ago. I also was diagnosed last year after several years of struggle and pain, so at least I can understand what he is going through although my spirit weeps for him. I guess as a middle school teacher with over 180 kids a day, there were some things that slipped through the cracks from time to time, even though I consider myself a good teacher. It's just that you don't want your kid's need slipping through the cracks, which is completely understandable.

I have been volunteering in the kindergarten classroom the past few weeks, and it is so empowering for my son. I have had to explain about the play-doh table, why matching the ABC cookies to the chart is not for him, why Jakey needs to constantly wash his hands, etc... In other words, I am training him to be self reliant, and so far, it is working. I mean, we're only in week three. When we went to the park the other day, his friend offered him cookies, and he said, "No thanks. I can't have wheat, and those probably have wheat." He also asked me why I have gluten-free written on a few of our cutting boards, and I explained. He said, "Oh, we have special tummies that can't have gluten?"

When I read your post, I was bummed for the teacher, your son, and you. It must be hard to work with someone so inflexible. I thought it was great that your son alerted you to the project! Too bad he didn't give you a bit more time to get the supplies. (We also live 50 miles from the nearest Trader Joes/Lassens/etc.) Hang in there mom! It sounds like you are on the right track, and fighting for your son is the right thing to do. Maybe you can use some of your prep time to go in and help out or observe and make some simple suggestions to the principal or teacher... that's what I've had to do. They seem almost grateful though, because otherwise I don't think they would know what else to do. I have even talked to the lunch ladies to let them know what snacks (cheese, milk, and these fruit bar thingies) are the ONLY things he may have. They were very responsive. But, I know that my being there once a week helps. I can keep an eye on him, and help guide him through this. For now.

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