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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Enterolab Results Are In
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I haven't posted much here at Celiac, but I have learned so much from all of you--which brought me to getting myself tested through Enterolab and Kimball. I feel so lucky to have found this site that has led me to some answers--I appreicate all of you who take the time to post and share.

These results give me hope now that maybe my health will contionue improve as I lead a gluten free life and I can regain some of my spunk that I miss so much. My IBS has improved with gluten reduction over the past year and I'm hoping 100% elimination will bring even greater results. After 16 years, it would be like a miracle!

Here are my results, for anyone interested in seeing them or wanting to comment on them. At this point I'm convinced gluten causes a immune response and I should never eat gluten again! Oh...I added the parenthetical values along side of my reported values.

For those interested in testing. I was 95% gluten free for a year and 100% gluten free for a month before the test.

Evie

Gluten Sensitivity Stool and Gene Panel

Fecal Anti-gliadin IgA: 23 Units (<10)

Fecal Anti-tissue Transglutaminase IgA: 16 Units (<10)

Quantitative Microscopic Fecal Fat Score: 465 Units (<300)

Fecal Anti-casein (cow's milk) IgA: 15 Units (<10)

HLA-DQB1 Molecular analysis, Allele 1: 0301 (gluten sensitivity gene - from one parent)

HLA-DQB1 Molecular analysis, Allele 2: 0602 (gluten sensitivity gene - from other parent)

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

HLA-DQA1 Molecular analysis, Allele: 0501/0505 (from Kimball lab testing)

Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal Anti-ovalbumin (chicken egg) IgA: 6 Units (<10)

Fecal Anti-saccharomyces cerevisiae (dietary yeast) IgA: 10 Units (<10)

Fecal Anti-soy IgA: 7 Units (<10)

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I am glad you got results that show you are on the right track. Now you can stop wondering and do the diet strictly along with eliminating casein and hopefully soon the fecal fat score will go down to normal levels. With your yeast score right at the cut off you might consider trying to reduce or cut that also. Happy healing.

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I am glad you got results that show you are on the right track. Now you can stop wondering and do the diet strictly along with eliminating casein and hopefully soon the fecal fat score will go down to normal levels. With your yeast score right at the cut off you might consider trying to reduce or cut that also. Happy healing.

Thanks for you comment. Interesting on the yeast, I rarely eat anything with yeast--it's really only been the gluten free bread the past year and not a whole lot of it. I'll avoid that for now. I'm so glad I did this testing and didn't procrastinate about it. Again, I'm so grateful to the board and you posters!

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Are you aware of the fact that the Kimball test proves you have half a celiac gene?

You officially have half a DQ2!

(it is in the alpha chain of your DQ7. But not all DQ7 do have this) (to read more, go to the HLA DQ page on wikipedia, and the HLA DR page too)

You might want to notify Enterolab, I wish they informed patients that they most likely do have half a celiac gene when they have DQ7, and not just call it gluten sensitive. They miss a lot of cleiacs that way. There have been several postings about that here before.

There have even been DQ7/DQ2,2 positive people here where Enterolab has not bothered to telle them that. The 05* alpha chain and the 2,2 beta chain together are the official 2,5 celiac gene in trans.

nora

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Are you aware of the fact that the Kimball test proves you have half a celiac gene?

You officially have half a DQ2!

(it is in the alpha chain of your DQ7. But not all DQ7 do have this) (to read more, go to the HLA DQ page on wikipedia, and the HLA DR page too)

You might want to notify Enterolab, I wish they informed patients that they most likely do have half a celiac gene when they have DQ7, and not just call it gluten sensitive. They miss a lot of cleiacs that way. There have been several postings about that here before.

There have even been DQ7/DQ2,2 positive people here where Enterolab has not bothered to telle them that. The 05* alpha chain and the 2,2 beta chain together are the official 2,5 celiac gene in trans.

nora

Thanks for pointing that out Nora. Yes, I did test with Kimball for the alpha (just incase) there was something there, and sure enough! I indicated the *05 to Enterolab in the voluntary survery.

I understand that the alleles DQA1 *0501/DQB1 *0301 (that I possess) make DQ7 (DQ7.5) So, this means the 0501 reported by Kimball as the 1/2 DQ2 completes this gene or(?) Kimball said *05 raised the risk about 3% (I've read 5% of celiacs in one study were solely 1/2 DQ2 *05). What does DQ7 mean in terms of risk--do you know? I couldn't find any numbers. I'm also curious now with these 3 alleles how this is expressed in DQ(?) DQ2/DQ7 (?) 0602 excluded?

Evie

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Hi, about 5% of celiacs have half a gene, maybe like you said 5% have half the DQ2, 05*.

In your case this does not make up anything else, since you do not have the DQ2,2.

Maybe you can call yourself DQ7,5, DQ6 and half a DQ2? What would you prefer?

I am still a bit upset that enterolab does not point that out, that DQ7 may be half DQ2, and thus have a celiac gene.

There are other genes that predispose towards celiac, like the Myo9b and another thing I forgot, DQ is just 40%. The greatest risk is still having a celiac relative.

nora

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By the way, I have been reading here for some years, and always wondered where all the half genes were.

Glad to have found you.

Just proves they did not est for them before, and that enterolab did not tell people that they might have half the gene (with DQ7) since most DQ7 are 7,5

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There are other genes that predispose towards celiac, like the Myo9b and another thing I forgot, DQ is just 40%. The greatest risk is still having a celiac relative.

nora

It would be nice if my immediate family would be tested, there certainly are indicators...but for the most part there is silence to my news, so that part I'm not likely to find out unfortunately. Not unless any of my siblings (or their children) symptoms get progressively worse like mine did and they get desperate for an answer.

It does seem, with the reporting of "gluten sensitivity genes" that Enterolab would make that acknowledgement if/when they know the association with *05 and DQ7 and relay the risk associated. Another case of multiple info sources payoff! Thanks for the info. Thank heavens for the internet!

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