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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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VegasCeliacBuckeye Collaborator

I have to give credit to Erratic - -she mentioned animal crackers as her last "gluten" item she intentionally ate.

What was the last Gluten-Item you INTENTIONALLY ate?

For me, it was a mug full of beer. Around the summer of 1998 at Ohio State...it was wonderful, for a few hours... :o

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Guest nini

right before my appt. with the GI to get my results I had a HUGE avocado sandwich from the Atlanta Bread Company on sourdough bread. OMG it was so yummy.

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bklyn Enthusiast

Believe it or not, right after my endoscopy (when my dr. told me I probably had Celiac) I went home and ate a Thomas' english muffin. I had never heard of Celiac and I thought he was crazy!

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celiac3270 Collaborator

A bagel with cream cheese. :)

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skbird Contributor

I'm not certain if this is it or not but it's when I finally knew it was the problem. We were just about to tear out our kitchen as the pipes in the 60 year old walls had rusted through and flooded the place. I was excited because I had just discovered a pizza parlor nearby that made pizza on whole wheat crust and as a hypoglycemic, I thought this would be an acceptable "take out" meal that we'd probably be ordering a couple of times a week through the remodel. So we got a pie and had some friends over (had a two for one coupon) and I pigged out. The next day I felt terrible. That's when wheat and I finally decided to part ways...

Stephanie

PS in case you're curious, I survived mainly on Annie's Rice Pasta Mac and Cheese (found it for $.99 each at the Grocery Outlet! Score!!!), quinoa flakes cereal, and canned tuna... oh it was SOOOOO great to have a kitchen again!!!

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Guest ~wAvE WeT sAnD~

A Krispy Kreme donut, and several of the South Beach diets wheatty products--such as Bulgar (which is disgusting).

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Generic Apprentice

Oreo cookies and pizza :)

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tarnalberry Community Regular

The last thing I intentionally ate with gluten? Hold your stomachs and cover your mouths, 'cause it was my test item: yogurt with a tablespoon of vital wheat gluten in it. It certainly worked as a test, alright!

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KaitiUSA Enthusiast

It was a piece of pizza(my favorite food has always been pizza)and 1 bite of a cupcake...I threw the rest of the cupcake out it didn't even taste like I was expecting it...I guess my mind was making it up to be something it was not...I had a little voice in the back of my head saying "your going to regret this" so i didn't really enjoy it because I knew I would pay with damage and symptoms . I didn't feel so hot after eating it either.

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KarenCM Rookie

The first day that I saw the GI in November 2004 and he was almost certain that I had celiac disease he told me to start the Gluten Free Diet right away. That night we were planning on making homemade pizzas for dinner and there was no way I was missing out on my homemade pizza. I felt the effects the rest of the night and the next day when I started the diet.

Karen

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anewsprue Newbie

Two chocolate chip bagels for breakfast and a Subway Club for lunch...and I remembered every minute of it for about three days! <_<

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Rikki Tikki Explorer

Those were funny. Mine was half a cheese sandwich. The funny thing was it didn't taste as good as I remembered!

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ianm Apprentice

I think it was a chocolat donut. It was quite a while before I would eat chocolat again. Last donut I ever ate that's for sure. Not a pleasent time in my life.

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Guest gfinnebraska

Before I found out I had celiac I just thought I was "allergic" to wheat. So, one weekend the family was going to be away, and I had a small meat lovers pizza and cookies and cream ice cream! But, as others have said, it didn't taste like I had remembered it tasting. THEN I found out later that I had celiac disease... I have NEVER intentionally eaten gluten since. When you find out it could kill you... it kind of takes the fun out of it!! :(

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Rikki Tikki Explorer

Hey Ian:

What is the president thing in your signature?

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cdford Contributor

I did not know I was celiac disease. We thought it was just my daughter. I had been keeping the diet with her (only 11 at the time) as an encouragement so she wouldn't feel so out of place. She went off for a long weekend with the grandparents and the rest of us pigged out...homemade wheat bread, pizza, blueberry muffins, cookies, the whole nine yards. I was broken out, itching, and all the usual gastro stuff. Whent to the doctor by Monday and never ever wanted to do that again. It took months for all the DH spots to finally clear. I am left with a body full of scarring to remind me why I don't eat gluten.

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minibabe Contributor

A milky way bar..... <_< I had no idea what it was that made me sick, but....I just happened to look it up while I was in class and yup there it was of the Gluten list

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Guest gfinnebraska

Dark Choc. Milky Way is gluten-free. You will have to eat one of those next time! :D

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minibabe Contributor

Yea, that is where I made my mistake. I just read it fast and thought that it was all of them. Unfortunatly i dont like the dark chocolate <_<

But thanks!!! :)

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celiac3270 Collaborator
Dark Choc. Milky Way is gluten-free. You will have to eat one of those next time! :D

LOL...I'm eating one now :lol:

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VegasCeliacBuckeye Collaborator

Optimus Prime is the leader of the Autobots...

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ianm Apprentice

And now you are probably going to ask "What is an Autobot?" The Autobots are the good Transformer robots and the Decepticons are the evil robots. My son is a big fan and I was into them when I was his age. :o

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stef-the-kicking-cuty Enthusiast

Mine was an Amstel light. Because somebody on this message board ;) told me the European celiacs could have it, because it's glutenfree. Well, it's not. I felt it the next day.

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Rikki Tikki Explorer

Thanks Ian. My son played with transformers. I just didn't remember the names.

I thought maybe you were going to run for president. A celiac president, that would be a wonderful thing. I have read there is some thought that JFK had celiac, but they really didn't know about it then. I would like someone really famous to have it and bring more awareness to this. Guess I went on too long.

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gabrielle Contributor

The day before my test results came back, i had some ben and jerry's fudge brownie frozen yogurt... :D sure glad i did that before i found out!

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
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