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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Passing Blood Clots

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Hello,

I had a negative biopsy a while back, although the specilist did say there was some inflammation, i was diagnosed with IBS. Since then i have'nt been gluten free (im a student and really cant afford it). The last few days i have been passing blood clots/balls. The first day i had urgency and went to the toilet separte from my stools was a ball of blood. I went on to have diarrhoea 3 more times that day and felt very week and hot for an hour. last night i woke up with stomach cramps/pain and this morning i had muesli for breakfast i straight away had stomach pain and urgency however i only passed wind and another blood clot no stool, one minute later i had urgency again and passed a bigger ball of blood (about the size of two peas) 3minutes laster i had urgency and passed a stool (no blood). Since then i have stomach pain (mild-moderate) for 3hours ongoing, i have taken co-codamol but can still feel it.

Im really worried about this blood, has anyone with celiac experienced this. My mum has had bowel problems all her life (never been tested for celiac) three years ago she heamorrhaged from her bowel and they never found a course she lost pints of blood and was critical, it hasn't happened since.

Is bleeding a symptom of celiac because i'm sure this cant be IBS i think thats just my specialist's way out as i havnt had an endoscopy and only a gastroscopy down my throat with four biopsies. The bleeding is not a completely new things i have had blood running through the cracks of my stools since march but not clots/balls.

I have been checked for heamrroids (poor spelling).

Any information would be great thank you.

Emma

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Hello,

I had a negative biopsy a while back, although the specilist did say there was some inflammation, i was diagnosed with IBS. Since then i have'nt been gluten free (im a student and really cant afford it). The last few days i have been passing blood clots/balls. The first day i had urgency and went to the toilet separte from my stools was a ball of blood. I went on to have diarrhoea 3 more times that day and felt very week and hot for an hour. last night i woke up with stomach cramps/pain and this morning i had muesli for breakfast i straight away had stomach pain and urgency however i only passed wind and another blood clot no stool, one minute later i had urgency again and passed a bigger ball of blood (about the size of two peas) 3minutes laster i had urgency and passed a stool (no blood). Since then i have stomach pain (mild-moderate) for 3hours ongoing, i have taken co-codamol but can still feel it.

Im really worried about this blood, has anyone with celiac experienced this. My mum has had bowel problems all her life (never been tested for celiac) three years ago she heamorrhaged from her bowel and they never found a course she lost pints of blood and was critical, it hasn't happened since.

Is bleeding a symptom of celiac because i'm sure this cant be IBS i think thats just my specialist's way out as i havnt had an endoscopy and only a gastroscopy down my throat with four biopsies. The bleeding is not a completely new things i have had blood running through the cracks of my stools since march but not clots/balls.

I have been checked for heamrroids (poor spelling).

Any information would be great thank you.

Emma

It would be a good idea to check with your personal physician on this...there are many reasons why persons pass blood clots...

Many times they want to do a Colonoscopy to check up on things... just a look see up there to make sure things are "A OK"....

Bleeding like that can be caused by hemorrhoids, polyps and other conditions...so it is very important that your Dr. know this...

Hope you feel better...

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It would be a good idea to check with your personal physician on this...there are many reasons why persons pass blood clots...

Many times they want to do a Colonoscopy to check up on things... just a look see up there to make sure things are "A OK"....

Bleeding like that can be caused by hemorrhoids, polyps and other conditions...so it is very important that your Dr. know this...

Hope you feel better...

Thanks for the reply

I have spoken to my specialist's secretary today as he is not in till tomorrow and hopefully he will bring my appointment forward from january. I have already been checked for hemorrhoids although im not sure what polyps is?

Is this not a symptom of celiacs then?

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I am not a Dr but I have not heard of this as a symptom of Celiac. I would strongly urge you to see your dr asap. Better safe than sorry! Go to your school's health center if you cant get in to see your doctor.

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Hello,

I had a negative biopsy a while back, although the specilist did say there was some inflammation, i was diagnosed with IBS. Since then i have'nt been gluten free (im a student and really cant afford it). The last few days i have been passing blood clots/balls. The first day i had urgency and went to the toilet separte from my stools was a ball of blood. I went on to have diarrhoea 3 more times that day and felt very week and hot for an hour. last night i woke up with stomach cramps/pain and this morning i had muesli for breakfast i straight away had stomach pain and urgency however i only passed wind and another blood clot no stool, one minute later i had urgency again and passed a bigger ball of blood (about the size of two peas) 3minutes laster i had urgency and passed a stool (no blood). Since then i have stomach pain (mild-moderate) for 3hours ongoing, i have taken co-codamol but can still feel it.

Im really worried about this blood, has anyone with celiac experienced this. My mum has had bowel problems all her life (never been tested for celiac) three years ago she heamorrhaged from her bowel and they never found a course she lost pints of blood and was critical, it hasn't happened since.

Is bleeding a symptom of celiac because i'm sure this cant be IBS i think thats just my specialist's way out as i havnt had an endoscopy and only a gastroscopy down my throat with four biopsies. The bleeding is not a completely new things i have had blood running through the cracks of my stools since march but not clots/balls.

I have been checked for heamrroids (poor spelling).

Any information would be great thank you.

Emma

My best friend has Ulcerative Colitis...started when she was 24. If you look it up it is common to flare or start in your 20's to 30's. She had a colonoscopy that confirmed it. She would have a little blood in her stool - but always the "urgency". That is one of the big indicators even if you do not produce alot - the urgency along with mucous or blood in the stool. She said she was told not to eat things that were hard to digest such as corn or seeds as well. She is otherwise very healthy. You should google search it and see if you have any similarities then bring it up to the doc.

Good luck!

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My best friend has Ulcerative Colitis...started when she was 24. If you look it up it is common to flare or start in your 20's to 30's. She had a colonoscopy that confirmed it. She would have a little blood in her stool - but always the "urgency". That is one of the big indicators even if you do not produce alot - the urgency along with mucous or blood in the stool. She said she was told not to eat things that were hard to digest such as corn or seeds as well. She is otherwise very healthy. You should google search it and see if you have any similarities then bring it up to the doc.

Good luck!

Thanks for the reply, i have wondered about this and have called my specialist and will be requesting a colonoscopy. My stomach pain has not gone away all day which is unusual for me and i have taken 30/500 cocodamol. As their was inflammation on the biopsy im wondering if my large bowel is inflammed too and IBD could be the problem. The only thing is when i think about these things part of my mind always flicks back the the positive celiac blood test. The urgency blood and mucus has been the main syptoms for months along with bad wind pains and stomach cramps. Does your friend get stomach pain? i notice in your signature you have IBS how are my symtoms in relation to yours?

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Thanks for the reply, i have wondered about this and have called my specialist and will be requesting a colonoscopy. My stomach pain has not gone away all day which is unusual for me and i have taken 30/500 cocodamol. As their was inflammation on the biopsy im wondering if my large bowel is inflammed too and IBD could be the problem. The only thing is when i think about these things part of my mind always flicks back the the positive celiac blood test. The urgency blood and mucus has been the main syptoms for months along with bad wind pains and stomach cramps. Does your friend get stomach pain? i notice in your signature you have IBS how are my symtoms in relation to yours?

If you had a postive blood test you are celiac. Inflammation can often be found on the endo and the damage to the villi can be spotty and missed with the biopsies. You should have been told to give the diet a strict try after the endo. There are no false positives on blood tests but lots of false negatives. I would get on the diet ASAP.

I did have a great deal of mucous before diagnosis but for me the bleeding and passing clots didn't start until after I had been gluten-free for a while. Now when I get glutened I usually pass clots for about 3 days. I don't think it is a common symptom though. You do need to get it checked out, and IMHO you need also to get on the diet.

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Hi, just thought i'd give you all an update.

I went to see my specialist yesterday as an emergency visit, due to concern over the blood clots. He felt my tummy and said he would like to do some more blood tests and an ultrasound and colonoscopy. His train of thought at the moment is that it could be inflammatory bowel disease crohns/ulcerative colitis. I asked him about the positive blood test for celiac to see if it could mean anything else and he informed me that a positive for this test could also point to inflammatory bowel disease. I had read this in research yesterday, was anybody else aware of this?

Ravenwoodglass, i believe that the positive blood test means something too and if the next investigations dont show anything up im going to go with a gluten free diet, even though it does cost a packet (better than feeling like this). First id like to get the blood clot situation checked out as iv been informed this is not really a symptom of celiac.

Thanks for all your advice and comments

Emma

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Hi, just thought i'd give you all an update.

I went to see my specialist yesterday as an emergency visit, due to concern over the blood clots. He felt my tummy and said he would like to do some more blood tests and an ultrasound and colonoscopy. His train of thought at the moment is that it could be inflammatory bowel disease crohns/ulcerative colitis. I asked him about the positive blood test for celiac to see if it could mean anything else and he informed me that a positive for this test could also point to inflammatory bowel disease. I had read this in research yesterday, was anybody else aware of this?

Ravenwoodglass, i believe that the positive blood test means something too and if the next investigations dont show anything up im going to go with a gluten free diet, even though it does cost a packet (better than feeling like this). First id like to get the blood clot situation checked out as iv been informed this is not really a symptom of celiac.

Thanks for all your advice and comments

Emma

Glad your doctor is helping with this. If you are done with testing for celiac you can start the diet anytime. You don't have to wait until after the colonscopy as that is not a test for celiac. If by any chance the issue is gluten related you may find you have relief before they even scope.

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