• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Just Cant Put On Weight! Steriods Or Weightgainers
0

5 posts in this topic

I was diagnosed last year around October after being misdiagnosed for at least 5 years with IBS.

Some of my symptoms have subsided but alot are still present. I think i was probobly stage 3 or 4 upon reading other posts. I still have daily and weekly pains and symptoms and have felt that i have been really careful not to get glutenized!

I lost 50 lbs and CANNOT seem to put the weight back on!

I was 220lbs and thick and pretty fit.

Now i fluctuate between 176-180.....

I am 6'3" and look skinnier than i did when i was in my prime in high school!

Are there any "safe" weight gain powders or supplements?

OR are steroids the answer?

( i wasnt aware steroids where prescribed until reading some other posts..)

Any advice would be very appreciated!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


HI nailehead,

my husband has been put on steroids but not primarily to put on weight.

My husband has 'refractory' coeliac disease (meaning it's not getting better on a gluten free diet).

The steroids are prescribed to dampen down the immune system,by dampening down the immune response,this allows the bowel to heal(hopefully).

Of course a side effect of the steroids can be a huge appetite-helping with the weight gain.

My husband is around 120 pounds at 6ft tall ,so any weight gain would be a bonus!

However,these are extremely strong drugs,and should not be taken lightly.They can also have some nasty side effects-so I don't think you should be thinking of steroids just yet.Do you have a gastro doctor?.I would discuss your symptoms with him/her.Did you have a biopsy yet?.Maybe after a year gluten-free you should ask for a repeat biopsy to work out if your bowel is healing.

I believe my husband has had this disease for a long time undiagnosed,so I think that there is a lot of damage to undo,& will take a while(he's been gluten-free for 8 months.)

Another thing you may want to consider is other food allergies causing your symptoms i.e.lactose,casein,soy,yeast.

Do you see a dietician?.They would be able to advise on suitable gluten-free build up additives(my husband has enlive &ensure drinks packed with vitamins & calories).

I hope this is some help!

0

Share this post


Link to post
Share on other sites

Thanks Nikki!

I was diagnosed by my "primary care" doctor, which pretty much means an all around family physician, but at least she finally found it ( Celiac ) after 5 years and 5 other docs telling me it was IBS and to "live with it"!

I was referred to a specialist here in San Diego that i will be contacing today..hopefully and set up an appt.

I have been conversing with a nutritionis/celiac specialist over the phone, and she feels that i have a severe case of Celiac and DEF need to go see a specialist!

working on that now!

thanks for your input!

i am in pain and discomfort EVERYDAY even being on the gluten-free diet!

it is really frustrating and affecting my attitude mentally, and still my body physically...very depressing...

0

Share this post


Link to post
Share on other sites

First, have you made sure nothing is sneaking into your diet? Have you checked things like shampoos and stuff you put on your hands, face, or head that could possibly get into your mouth?

I lost close to 20 pounds before going gluten free but after I gained it back.

Ensure Plus (chilled) is really good to get some calories into you. They have 350 calories for 1 bottle= to 1 cup. Ensure Plus is made to help people gain weight. My favorite is the butter pecan...chilled always taste better. Ensure and Ensure Plus drinks are gluten free.

Sunflower seeds, peanuts, cashews, apples or a fruit with peanut butter. These are a few things that are good for gaining weight because they are high calorie.

You need to eat more calories then you burn. I know I have a fast metabloism on top of everything so I had to eat alot more in order to gain weight. Eat about 500 more calories then you usually eat.

Here is a link with a calorie counter...what you can do is put in your ideal weight and it will tell you how many calories you need to have to reach that goal.

http://www.cancer.org/docroot/PED/content/...sp?sitearea=PED

Here is another site for it as well...this one is a bit more in depth

http://www.dietitian.com/ibw/ibw.html

0

Share this post


Link to post
Share on other sites

It's hard going isn't it, to finally find out why you feel so bad-but to not feel any better with the 'cure'(gluten-free diet).

I think I also understand what you mean by all of this is affecting your 'mental attitude'.

My husband has been gravely ill with this disease,and he does get very down about it.Since diagnosis in the last 8 months he has been mostly bedridden,& it's affected us all as a family(we have 3 kids too).

It is so very frustrating when despite your best efforts you're not getting better,however,hopefully-you'll have a better idea of what's going on after seeing your specialist.

Hang in there-hope you feel better soon.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,761
    • Total Posts
      932,245
  • Member Statistics

    • Total Members
      64,224
    • Most Online
      3,093

    Newest Member
    Pameela Moore
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have been strictly gluten free for 90 days now. I went through a detox for two weeks after being gluten-free then started to do better but then 4 or 3 weeks ago I just got very very sick again. All my symptoms came back, but worse plus new symptoms. I have had diarrhea for 3 weeks every day now. I am in so much pain all I can do is sit in bed and go to school. Doctors won't see me because they don't know what is wrong. I am out of money for other docs. I don't know what to do or if celiac is really is my issue. So much fatigue and pain I had to quit my job and sit in bed all day. I am just getting worse and I don't know where to go for help. 
    • I have been strictly gluten free for 90 days now. I went through a detox for two weeks after being gluten-free then started to do better but then 4 or 3 weeks ago I just got very very sick again. All my symptoms came back, but worse plus new symptoms. I have had diarrhea for 3 weeks every day now. I am in so much pain all I can do is sit in bed and go to school. Doctors won't see me because they don't know what is wrong. I am out of money for other docs. I don't know what to do or if celiac is really is my issue. So much fatigue and pain I had to quit my job and sit in bed all day. I am just getting worse and I don't know where to go for help. 
    • My question was were you 100% gluten free, as in tossed out your contaminated cook ware, cutting boards, and used clean non contaminated cook ware, utensils etc. Did you get rid of all contaminated spices, condiment, jars with crumbs, clean out the house check your lotions, shampoo, etc. Stop eating out, changed to a whole foods diet. and supplemented for the common nutrients that cause issues for celiacs? Did you get tested for nutrient levels? Did you try removing dairy, and oats? On another note many of us develop food intolerance and random issues with other foods that normally has to be identified by keeping a food jounel and going through a elimination diet seeing how you feel eating different foods and eliminating the ones that cause you to feel bad.
    • Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Good luck. http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1723  I went there as an adult and they do provide virtual visits once you're established as well. So if you're not very close to Boston that is probably also an option.
    • You need to get a full celiac panel including ttg, dgp, ema and overall iga.  all of those should be ordered I would be suspicious of a doctor who did not order the entire panel.  a lot of people on here including myself started off with a GI doctor who was not too Savvy with celiac disease and ended up having to get second opinions.   you may want to consider getting the genetic tests as well however know that 30 to 40% of the population carries the gene it does not mean it will be activated. If you do not carry the gene It practically rules out Celiac. If you do carry it you will need to undergo further testing.  do not stop eating gluten until all the testing has been done. a lot of folks make that mistake as well. Keep us posted.   you should probably get some vitamin levels done as well iron, vitamin D, B12 to start.
  • Upcoming Events