Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Latest In Tsh Levels Controversy?


beanpot

Recommended Posts

beanpot Apprentice

Does anyone have a handle on the latest ideas about what a person's tsh levels should be? Last I heard they were saying that the old lab standards .5 to 5.0 were too broad. My tsh levels are 4.31, and up from last year, but are considered normal because the lab my GP uses has a range from like .5 to 5.40 or something. I do have some mild symptoms, but don't want to take medicine unless necessary or unless recommended.

Bleh!

Thanks for any info!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Link to comment
Share on other sites
Gemini Experienced
According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Agreed! The lab I am tested through is very progressive and they use an upper limit of 2.5 for the TSH. I would have to agree with them, judging from my symptoms when my TSH goes over 2!

Beanpot....you would not be taking medication for a low thyroid but a hormone replacement for what you are lacking. I don't consider that medication because thyroid hormone is supposed to be in your body, at the correct levels. If you have mild symptoms, you need to be treated for it. Your TSH is well into the hypo range.

Link to comment
Share on other sites
Tigercat17 Enthusiast
According to the American Endocrinology Association, TSH levels above 3.0 indicate Hypothyroid, which needs to be treated. Unfortunately, too many Endos look at the old levels. They need to be re-educated :blink:

Totally agree! My endo follows this new giudeline also.

Link to comment
Share on other sites
Roda Rising Star

The reference range in the lab I get my blood work states "The TSH reference interval of 0.3 to 3.04 uIU/ml reflects the guidline recommendations from the American Association of Clinical Endocrinologists and many others because of the finding that repeated TSH levels above 3.0 may indicate the early stages of thyroid failure. In addition, a TSH level less than 2.5 uIU/ml is considered optimal in pregnancy." This is what is directly typed underneath my latest results. On 10/13 my TSH was 0.81, free T4 of 1.17ng/dl (0.58-1.64) and free T3 of 4.20 pg/ml (2.50-3.90). My doctor called me to tell me all looked good no dosage change. I take 112 mcg levothyroxine(T4) once a day and 5 mcg leiothyronine(T3-generic cytomel) twice a day. I function better with my free T3 in the upper limit if not slightly over.

Link to comment
Share on other sites
Wolicki Enthusiast

My endo uses the old standards. I am waiting for an appointment with a new guy next month. In the meantime, I would love opinions about what treatment you are receiving. He wrote me a scrip for Levoxyl, 7mcg, which is WAY too low a dose, according to the package insert. I wonder if those of you with similar labs take Cytomel or other T3 scrips? Here are my labs:

Tsh 3rd gen 5.05 (.2-4.7)

t4 free 1.0 (.8-1.8)

t3 free 335 (230-420)

I can't find the antibody thyroid tests, but they were in the normal range. Thanks!

Link to comment
Share on other sites
beanpot Apprentice

Okay, thanks everybody! I guess its worth calling and telling the doc then. Maybe I can find the new guidelines on the web to back myself up.

I am having a lot of the symptoms, and my mother and my aunt have it too. Oh well.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaryJones2 Enthusiast

There is some good info on TSH in here: Open Original Shared Link

My Endo thinks that anything above 2 is cause for concern especially if you are exhibiting symptoms. I tend to agree with him.

Link to comment
Share on other sites
  • 9 months later...
SaraKat Contributor

My endo likes to keep me at 2-2.5. I take 25 mcg of synthroid now. I just started this in April. I have to get my levels checked again soon. They were around 4.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,986
    • Most Online (within 30 mins)
      7,748

    Mazzamaloo
    Newest Member
    Mazzamaloo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...