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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Dh Ever Go Away?
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5 posts in this topic

I have been gluten free for a little while now, but I still am getting a rash on my hands and knees. Does the DH rash ever go all the way away? Or is it that I may not be totally Gluten Free yet?

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I have been gluten free for a little while now, but I still am getting a rash on my hands and knees. Does the DH rash ever go all the way away? Or is it that I may not be totally Gluten Free yet?

how long is "a little while"?

People's experiences vary, but generally what I've gathered from this board is that it can take some time.... patience as well as staying gluten free is required!

I'm just about at the 3 months mark for being gluten free. My rash was confined to feet, ankles, lower leg...and although I saw improvement fairly quickly, it took a month and a half before new blisters totally stopped appearing. (And then I glutened myself and erupted again!)) Now I have three small spots that may itch a bit from time to time; they are somewhat red, tho not the angry red they used to be. The rest of the spots are healed over but have left purply-tan spots that are in various degrees of fading.

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I have some that are fading, but others that seem to be reacting worse, hot, angry, red, weepy.

I wonder if it is a get worse before it gets better detoxing type reaction. I also wonder if mild infections and fungus rashes get mixed in with severe DH and those rashes are not clearing up. I just did a vinegar bath soak and it seems to be helping.

I would love to hear a scientific explanation on why the rash picks certain areas, and its motivation to rotate around the body. The symmetrical action is interesting, also. The rash must release some god awful histamines because the itch is unbelievable.

It is so easy to get cc and hidden gluten when you are new at this. I am trying to be ultra careful.

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The worst part of my rash was active for about 2 months and took just as long to heal. Now I only get it when I'm glutened. I have one bump on my hand from some bean soup my Mom made this week. I did ask her what was in it but I should have read the bean can labels. Just goes to show that even someone with experience makes rookie mistakes.

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I have some that are fading, but others that seem to be reacting worse, hot, angry, red, weepy.

I wonder if it is a get worse before it gets better detoxing type reaction. I also wonder if mild infections and fungus rashes get mixed in with severe DH and those rashes are not clearing up. I just did a vinegar bath soak and it seems to be helping.

I would love to hear a scientific explanation on why the rash picks certain areas, and its motivation to rotate around the body. The symmetrical action is interesting, also. The rash must release some god awful histamines because the itch is unbelievable.

It is so easy to get cc and hidden gluten when you are new at this. I am trying to be ultra careful.

I'm with you; the pathophysiology of DH is quite interesting. There are some great online discussions to check out - they really helped me understand my DH and why it does what it does:

http://emedicine.medscape.com/article/1062640-overview (this is not written for the average lay person and so the very medical terminology can be a bit tough but it's a really thorough discussion of the disease)

This one is more reader friendly: http://celiacdisease.about.com/od/whatisce...matitisHerp.htm

I hope these are helpful. I'm dealing with a new breakout about 4 weeks into the gluten-free life. I'm thinking I cross-contaminated myself after making my niece a hotdog on a regular bun. I must not have washed my hands and counter carefully enough before making my own lunch. Dumb mistake!

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