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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sleep
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When i accidently eat something or something i eat gets contamintaed, i end up getting sick i always get really tired and i can usually spend the rest of the time that my stomach hurts sleeping and i was wondering if this is normal and happens to anyone else

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I also get really tired when i have eaten something bad, that along with pain is normally how i know that something is up with my body.

I am not doctor, but i am guessing that since your body starts attacking your insides because of whatever you just ate, it takes a lot out of you and you get very weak.

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Thats a reaction you are getting.

I get other symptoms but what you have sounds like a normal reaction to me.

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Yes, I get very tired if I've had gluten, I need lots of rest and sleep.

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hello there - yeah quite simply if I eat - I have to lay down - its not suitable for us parents is it!!! Yeah I think the same - its your bodys way of letting you know that its not well after the food and that it needs to rest!!

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Absolutely. When I eat something with Gluten I fall asleep - not really a good sleep but rather like a drugged sleep - and sllep for hours; the more gluten the longer the sleep. I've got to find out everything that may contain gluten, e.g. Stilton cheese, because I gotta get outtta bed.

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Yep, yep, yep!!! Gluten=sleep for a week!!! :o

That is one way I know I have been glutened... sometimes the sleepiness hits before the stomach part. It is always different.

You are normal ~ for a celiac disease that is!!! ;)

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For those of us who have diarrhea, nausea, vomiting upon getting glutened, that is likely the tired culprit. It wipes out your electrolytes which keep your body in check and functioning. Gatorade or Pedialyte can help with the fatigue (I havent had to try yet so I dont know if they are gluten-free, double check) Electrolyte replacement is important, and rest is too. Push fluids if you can when it happens, and listen to your body-rest!

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Do any of you have trouble getting to sleep at night? I seem to be able to sleep during the day and certainly sleep-in in the morning but sometimes I have trouble at night. Like right now, I have to get up in 7 hours and I'm wide awake!

Not good.... Patty

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Lately I have had a hard time sleeping at night. I will sleep from 10:30 until midnight when I wake up for no reason and then watch the clock for hours!!!!

It is VERY frustrating!!! :blink:

Sue

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Fatigue and brain fog happen when I eat gluten,

I have trouble getting to sleep at night and have started taking melatonin and it really helps. I don't take it everyday and only use it when I have a lot to do the next day or am really having trouble getting to sleep. Haven't noticed any ill effects and it doesn't make me have a drugged kind of sleep either.

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;)

This is an interesting topic to me as I've had different sleep problems over the years, depending on my circumstances. <_<

I began having nightmares following cataract surgery. My Dr. made a note of it in my chart, but never offered a solution or even a suggestion. Fast Fwd to 2004, following a nasty bout with Shingles, followed by a stressful and complicated move to another State. A daughter who was helping with the move told me I was a basket case and should get some help with my Anxiety level. The Dr. suggested Xanax for immediate results, and put me on 0.5 mg 2X daily or as needed. :)

Following the first 0.5 mg, I went to bed and napped for 4 hours in the middle of the day! No nightmares.

The next dose I took 1/2 a pill at bedtime. Slept like a baby with no nightmares.

Six months later, I tried to go off Xanax (I don't like taking meds unnecessarily, and I take 6 different meds a day for heart condition and thyroid.) The first night I woke every 2 hours, but went back to sleep. The 2nd night, - the nightmares came back. Needless to say, I returned to taking 1/2 pill (0.2.5 mg) at bedtime and have no nightmares. :D

Please note: this all took place before I was dx with celiac. I have been gluten free for 2 1/2 weeks, and the sleep pattern continues just as before. I get a good night's sleep. Being retired, I often have the luxury to sleep until my body decides it needs to get up and that can be 9 - 10 hours. Usually I have to be somewhere by 9 a.m. or so, which requires that I get up around 7 to accomplish all my rituals which I'm pokey at. So, if I get to bed at midnight (usually) and get up at 7, I only get 7 hours sleep, which I think is plenty (unless I'm really below par). I also nap during the day (1-2 hours.) :rolleyes:

I don't know if any of this information will be helpful to anyone. But I'm sold on the idea of a light dose of Xanax at bedtime to ward off nightmares. They were pretty scary and I was afraid the fear they roused in me might trigger another heart attack.

During the day, I control my anxiety with self-talk and the comfort of knowing that all aspects of my life are in God's hands. But when you're asleep, you can't access the conscious to stave off anxiety. I think nightmares are a manisfestation of anxiety. :ph34r:

I found these message boards a few days ago, and am presently spending 2-3 hours a day here, browsing, reading and learning about my newly dx Celiac Sprue.

Thanks to all who contribute such helpful information. :)

Regards to all

Maryellen

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When i accidently eat something or something i eat gets contamintaed, i end up getting sick i always get really tired and i can usually spend the rest of the time that my stomach hurts sleeping and i was wondering if this is normal and happens to anyone else

<{POST_SNAPBACK}>

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It's comforting (sort of) that many of us have similiar responses to accidental gluten consumption, but I find tired thing to be really annoying. At the first sign of distress I try to drink as much water as possible. It helps to keep my body digesting the bad stuff. I usually console myself that the sooner it passes, the sooner I'll feel better. If it happens to be afternoon and not evening (the normal time for bad reactions), I recommend eating a light meal anyway-not skipping the meal. It seems to keep my stomach on a better cycle and proper nutrition is so important for us. (I am underweight still, no matter how hard I try to consume calories.) What's hard for the non-gluten-free to comprehend the exhaustion. It feels like a truck just ran over you, but satisfying sleep is impossible following an episode and a long day at work the following day is simply inevitable. Relaxing (or trying to) with a cup of tea helps my sanity on bad days.

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    • Yes I made it  Welcome Lakme, you've found a great community and resource and I'm sure myself and Ennis won't be the only ones that recognise elements of our own experiences in your account.  In addition to the links Ennis sent you above and the stickied forum faq, I tried putting down some info that may be useful to people just realising they may have an issue with gluten, you can find it in this thread:    Reading your account you do tick a lot of the boxes and perhaps you have found the underlying cause. As that thread explains however, we can't diagnose you, if you want answers you'll need to be eating gluten in order for the tests to work. I know this is probably the last thing you want at the moment, but do read the thread and think about it. You're young and that diagnosis could prove useful for a number of reasons in the years ahead. The longer you leave it, the more of a challenge the gluten challenge may prove.  Out of interest how long since you started on the diet and have you noticed any change in symptoms? You may want to consider keeping a journal, it can be very difficult to track the neuro type symptoms in particular, a written account helps you do that and tracking progress can help with anxiety issues and depression too. I get these too. It's not formally diagnosed, like you I had a physical exam of the eye which failed to show anything, but I believe it to be optic neuritis. It's vastly improved since my diet change, as has an awful lot of other stuff.  So if you're celiac or non celiac gluten sensitive you will hopefully see similar improvements in the weeks, months and even years ahead.  I wish you the best of luck.  Matt
    • Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming.  I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening.   I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well.  I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids.  And, yes, Gelato! At least twice a day while in Italy...:)
    • They do not work for prevention, they might help with getting over the gut pains. But will not stop the antibody reaction, or the damage. At $100+ a bottle your better off investing in Nima or EZ gluten strips and testing foods.   Other thoughts for quick alternatives. They sell microwave cookers out of plastic and silicon for eggs, bacon, etc. Might be worth getting and doing dishes that way. Steam bags and fresh veggies also to avoid pans and pots that could have issues. I been looking at MRE type stuff allergen friendly myself for trips and emergency's. Things get expensive at $6-7 a meal compared to bars or shakes.
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    • Thanks for the help! I didn't know Bacardi was gluten-free; that's a great option. 
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