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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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sc875

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Hi,

I'm new to this forum...having browsed before but never posted. I have some type of intestinal problem, which the doctors thought was likely celiac (becuase I have autoimmune thyroid disease)

Initially, had a salivia IGA test for gluten through diagnos tech that was positive. I also had a fecal fat test that showed I was not properly absorbing or digesting fats and starches.

Then, I had antibodies (antitissue, antiendomysal and antigluten) tested through two different labs and they were all normal. I even had a small bowel biopsy which was normal.

So, we had concluded that I don't have sprue or gluten sensitivty.

But I don't know how to explain my symptoms. I have lost 15 pounds and am underweight despite a healthy diet, have stomach pains, diarrhea and am exhausted. My doctor is puzzled but says that I look healthy and since my weight is currently stable not to worry. I don't feel healthy and would like to be a normal weight for my height.

Could I still have gluten sensitivity? I found out about Dr. Fines work through this forum and am considering getting the test. I don't know how reliable it is and if others have found it helpful. It is expensive, and wonder if I should just try the diet?

Also,has anyone else had the salvia test from diagnos tech? I know these are many questions...

Thank You.

I would appreciate any advice.

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Guest jhmom

Hi sc875, welcome to the board!!! :)

I too had negative blood-work and biopsy. My biopsy showed patchy inflammation but my doc said it wasn't enough to be considered Celiac (they want to see villi damage before making a diagnosis.)

I also had a lot of the same symptoms as you and after I lost 40lbs my doc became concerned, that's when he began testing me for Celiac and when all the test came back he still thought I had IBS.

I eventually ordered a stool panel test from Dr. Kenneth Fine at Enterolab which is more sensitive than blood and cost me around $120.00. I received my results within a couple of weeks and they were positive. I immediately started a gluten-free diet and could tell a difference in the way I felt within a couple of days, the abdominal pain was gone!!!!

So to answer your question, YES you can still have gluten sensitivity even tho the tests are coming back negative. I would suggest ordering the test through Enterolab OR you could try the gluten-free diet for a couple of months to see if your health improves.

I hope you get some answers soon and feel better! :D

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