• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Anyone Recover From Chronic Insomnia After Going gluten-free?
0

Rate this topic

75 posts in this topic

Recommended Posts

hi, i'm new to the forum. i was recently diagnosed with gluten sensitivity and i have been gluten free for about three weeks now. i discovered i was gluten sensitive after going to my naturopath for chronic insomnia, which i've had for the past seven years. as of now, i can see no improvement in my sleep and am worried that gluten is not the cause of my insomnia...

so i'm just wondering if any of you suffered from chronic insomnia before going gluten-free, if going gluten-free cured the insomnia and if so, how long did it take after going gluten-free before you got sleep?

thanks so much! i've really enjoyed this site and look forward to hearing from other gluten intolerants.

carrie

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Carrie,

I've had trouble sleeping for years, too. I thought it was just me. I never took any medication for it, but I was tempted sometimes. It wasn't everyday, but at least three times a week. I would go to work a lot with no sleep at all & feel horrible. I also felt a lot of anxiety & brain fog. Now that I've been gluten free for four months. I think it took about a month or more for my insomnia to go away & then I started sleeping so good & I felt so calm. It was wonderful. Then I was getting glutened again two weeks ago & now , of course, along with all the other GI symptoms, I'm having trouble sleeping again. I think it is getting better, but it just takes a while for the body to recover from the gluten. Just make sure you're on a very strict gluten free diet & recheck everything you're taking -vitamins, medication, hand & face lotion. I realized I was getting glutened from my synthriod medication. It was driving me crazy. It was the last item I thought of & as soon as my doctor changed my medicine I started to feel better. But I still having some brain fog & having a hard time falling to sleep. I do listen to soft music & meditation celiac disease's (BelleRuth Naparstek) right before I go to sleep & that does help me a lot. If you think a mediation celiac disease would help you, you might want to try it. You can buy them on (Company Name Removed - They Spammed This Forum and are Banned). I have a few of her celiac disease''s & they helped it really helps me to relax.- not trying to sell you anything, just trying to help. :)

Hang in there. It'll get better soon.

Share this post


Link to post
Share on other sites

thanks so much for the advice! it's encouraging to hear that it took a while for your sleep to improve. just curious, what thyroid medication are you taking now? i started taking Levoxyl recently and i've heard it's gluten-free, but not 100% positive. i too have the brain fog and a bit of depression - really hoping to feel like a normal person soon...

thanks again and good luck on your gluten-free journey!

carrie

Hi Carrie,

I've had trouble sleeping for years, too. I thought it was just me. I never took any medication for it, but I was tempted sometimes. It wasn't everyday, but at least three times a week. I would go to work a lot with no sleep at all & feel horrible. I also felt a lot of anxiety & brain fog. Now that I've been gluten free for four months. I think it took about a month or more for my insomnia to go away & then I started sleeping so good & I felt so calm. It was wonderful. Then I was getting glutened again two weeks ago & now , of course, along with all the other GI symptoms, I'm having trouble sleeping again. I think it is getting better, but it just takes a while for the body to recover from the gluten. Just make sure you're on a very strict gluten free diet & recheck everything you're taking -vitamins, medication, hand & face lotion. I realized I was getting glutened from my synthriod medication. It was driving me crazy. It was the last item I thought of & as soon as my doctor changed my medicine I started to feel better. But I still having some brain fog & having a hard time falling to sleep. I do listen to soft music & meditation celiac disease's (BelleRuth Naparstek) right before I go to sleep & that does help me a lot. If you think a mediation celiac disease would help you, you might want to try it. You can buy them on (Company Name Removed - They Spammed This Forum and are Banned). I have a few of her celiac disease''s & they helped it really helps me to relax.- not trying to sell you anything, just trying to help. :)

Hang in there. It'll get better soon.

Share this post


Link to post
Share on other sites

Carrie,

I'm wondering if you've seen any improvement in your sleep since you last posted. My son, who has sleep problems, is on day 10 of a Gluten-free Casein-free diet. I know results take a while, but it's hard to be patient!

Kathy

Share this post


Link to post
Share on other sites

The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.

  • Upvote 2

Share this post


Link to post
Share on other sites
Ads by Google:


Carrie,

Let us know if your sleep improves.

Mine is better now that I am gluten free but I still have issues. I found out I have a lot more food intolerances than gluten so am hoping that by limiting my diet even more that my sleep will continue to get better.

I never know when I go to bed what is in store for me. I have absolutely no sleep pattern. Some nights I go to sleep right away but wake up after a short time and then can't get back to sleep. Some times I am awake most of the night and don't fall asleep until after 3 a.m. Some nights I don't sleep at all. I do get some wonderful nights when I sleep all night. All in all, it is getting better.

I have tried so many approaches with sleep and for now I just stay in bed and rest. I do know that if I get up and do something else, it won't help me get back to sleep later. I am absolutely not able to sleep during the day. I would love a good nap.

Good luck!

Share this post


Link to post
Share on other sites

Carrie,

I didn't think you were alone (and the responses above prove that). I too have experienced sleep problems. I have been "keeping" a gluten-free diet since October and besides the digestive improvement I did experience a sleep improvement. B12 is something to keep your eye one, B12 is absorbed in the colon which is why so many individuals who suffer with celiac or gluten sensitivities end up needing supplements.

I wish you luck and hope that you find the rest you need to heal and function. Remember to talk to your doctor so that he/she is aware of your issues. It is the only way (s)he can help.

char

Share this post


Link to post
Share on other sites


Ads by Google:


The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.

i thought the b vitamins were responsible for energy and was surprised to read you take them so close to bed time. i feel like i haven't slept for 13 1/2 years now and hated when night time rolled around because i knew it was gonna be a looooong night. i don't want to take any sleeping meds but i will give the b vitamins a try. it would be so great to look forward to bed time and actually get a full night's rest!

Share this post


Link to post
Share on other sites

i thought the b vitamins were responsible for energy and was surprised to read you take them so close to bed time. i feel like i haven't slept for 13 1/2 years now and hated when night time rolled around because i knew it was gonna be a looooong night. i don't want to take any sleeping meds but i will give the b vitamins a try. it would be so great to look forward to bed time and actually get a full night's rest!

Yes, B12 can provide an energy boost. I just haven't noticed that, only how I seem to sleep more deeply if I take the B12 towards the end of the day. Of course, once you're levels are up, the effects may be more evened out. That is, perhaps the boost is more noticeable when the deficiency is more severe. I can only guess at that. I suppose it may vary from person to person too.

Share this post


Link to post
Share on other sites


Ads by Google:


Carrie,

I didn't think you were alone (and the responses above prove that). I too have experienced sleep problems. I have been "keeping" a gluten-free diet since October and besides the digestive improvement I did experience a sleep improvement. B12 is something to keep your eye one, B12 is absorbed in the colon which is why so many individuals who suffer with celiac or gluten sensitivities end up needing supplements.

I wish you luck and hope that you find the rest you need to heal and function. Remember to talk to your doctor so that he/she is aware of your issues. It is the only way (s)he can help.

char

Char,

You didn't mention sublinqual B12 supplements but most people using this forum do. If B12 is absorbed by the colon, how does taking it sublinqually help?

Share this post


Link to post
Share on other sites

I wonder why so many people who can't have gluten have insomnia. My daughter has had severe debilitating insomnia for about 20 months. We have gone to so many specialists and no one has been able to help her. She went gluten free in October after finding out that she tested positive through Enterolab. We still haven't seen any improvement. She is on several supplements (B12, B6, zinc, b complex to name a few) and nothing is helping her.

It is so bad that I had to pull her out of school last fall and have been teaching her at home. It is even difficult for her to learn at home. She can never fall asleep before 3:00 and often not until 4 or 5. Then she wakes up pretty much every hour and can't get back to sleep. I let her stay in bed until 10:00 but she still isn't getting very much sleep. It is so difficult for her to get through the day.

Any more suggestions?

Share this post


Link to post
Share on other sites


Ads by Google:


Char,

You didn't mention sublinqual B12 supplements but most people using this forum do. If B12 is absorbed by the colon, how does taking it sublinqually help?

The B12 we get from food is absorbed as it passes through the digestive tract. There are actually several steps which need to occur for proper absorption to take place. Eventually, the liver must convert it into a usable form. However, in the case of Celiac Disease, malabsorption apparently effects the absorption of certain nutrients more than others, B12 being one of the more typical ones.

That's when a sublingual form really helps. It gets absorbed directly into the bloodstream, and when taken in the right form (methylcobalamin being one of the best known), it doesn't require conversion by the liver either. So whether you're dealing with malabsorption, Pernicious Anemia, or liver problems, the sublingual B12 will bypass all of that.

Share this post


Link to post
Share on other sites

The B12 we get from food is absorbed as it passes through the digestive tract. There are actually several steps which need to occur for proper absorption to take place. Eventually, the liver must convert it into a usable form. However, in the case of Celiac Disease, malabsorption apparently effects the absorption of certain nutrients more than others, B12 being one of the more typical ones.

That's when a sublingual form really helps. It gets absorbed directly into the bloodstream, and when taken in the right form (methylcobalamin being one of the best known), it doesn't require conversion by the liver either. So whether you're dealing with malabsorption, Pernicious Anemia, or liver problems, the sublingual B12 will bypass all of that.

RiceGuy,

Thanks so much for clarifying this. It makes so much sense. I'll see if my doctor sells this and if not, I'll order some online. It will be interesting to see where I come out with my nutritional blood work because B12 (from what I've read) doesn't always show up as being deficient when tested because it draws it from the bones.

Are there other nutrients that are better off taken sublingually?

Share this post


Link to post
Share on other sites

i thought the b vitamins were responsible for energy and was surprised to read you take them so close to bed time. i feel like i haven't slept for 13 1/2 years now and hated when night time rolled around because i knew it was gonna be a looooong night. i don't want to take any sleeping meds but i will give the b vitamins a try. it would be so great to look forward to bed time and actually get a full night's rest!

bluebonnet,

Have you tried the B12 yet and had any luck with it?

Share this post


Link to post
Share on other sites


Ads by Google:


The B12 we get from food is absorbed as it passes through the digestive tract. There are actually several steps which need to occur for proper absorption to take place. Eventually, the liver must convert it into a usable form. However, in the case of Celiac Disease, malabsorption apparently effects the absorption of certain nutrients more than others, B12 being one of the more typical ones.

That's when a sublingual form really helps. It gets absorbed directly into the bloodstream, and when taken in the right form (methylcobalamin being one of the best known), it doesn't require conversion by the liver either. So whether you're dealing with malabsorption, Pernicious Anemia, or liver problems, the sublingual B12 will bypass all of that.

Riceguy..thank you. You said that so much better than I could have. Each Dr. tells his or her patients how to take the B12. I was injecting it for a few months and taking supplements. Once the levels got up, I was told to stop the injections and just take the supplements. They will continue to test my levels for a while to see if they change. Depending on the change, a rise or fall the treatment may be tweaked to compensate.

Good Luck.

Share this post


Link to post
Share on other sites

@Jackay, Char and Bluebonnet – wow, it’s really fascinating that so many of us “gluten intolerants” have sleep issues. My insomnia has been so bad that it prevented me from going to grad school and I could only hold a part-time job, so needless to say, I feel for all of you! Thanks so much for your comments and suggestions. Around the same time I went off gluten, I also discovered I’m hypothyroid, as well as melatonin, vitamin d, zinc and b12 deficient, so this might be contributing to the insomnia as well… Just out of curiosity, do any of you have thyroid issues?

Thanks to all of you and sweet dreams!

[No known thyroid issues on me.] I've had Non-24 symptoms since possibly birth, definitely since 13+. I went gluten free a year or two ago and have tried orthomolecular solutions, which helped with other things, but no effect on sleep.

I'm glad to hear your melatonin's been tested. Were you also tested for circadian rhythm disorders?

Share this post


Link to post
Share on other sites

The best thing I found to cure insomnia is vitamin B12. It makes total sense too, because B12 is vital for the production of serotonin and melatonin, amongst other things. These are critical for regulation of sleep/wake cycles, mood, energy production, and lots more. Also, those with Celiac Disease are very often deficient in B12, so there again it makes sense. I find I sleep quite well now, especially if I take the B12 about 30 minutes or so before I go to bed. The one I prefer is a 5mg methylcobalamin sublingual tablet made by Source Naturals.

Other nutrients are also helpful with sleep. For instance, magnesium is known as the calming mineral. And interestingly, people with Celiac Disease often have a deficiency of magnesium too. A co-enzyme B-complex can also be very helpful, as can a multivitamin/mineral, so I'd suggest these as well.

All of the things you say are true! One other thought is the Candida issue. My son wakes up in the middle of the night( and never seems tired at bedtime) whenever his Candida grows out of control. Our naturapath doctor treats him with an anti-fungal for systemic yeast and he is feeling right as rain. Just food for thought!

Share this post


Link to post
Share on other sites

I started sleeping when I sorted out the psych issues, which requires gluten-free, fish oil, and lots of a high-potency vitamin/micronutrient supplement. If I get into gluten or slack off on the handfuls of vitamins and fish oil, I'm lying awake at 4am, anxious and deeply worried about something that would be trivial if I felt normal.

Share this post


Link to post
Share on other sites

when I first went gluten free, I had insomnia bad for about a week...and I got the jimmy legs (RLS)....it stopped about about 2-3 nights.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,146
    • Total Posts
      939,913
  • Member Statistics

    • Total Members
      66,133
    • Most Online
      3,093

    Newest Member
    Whhyyy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sometimes when those chilly winds begin to blow, and the temperatures fall, the days get visibly shorter, what we need and what we want is comfort food. Well, look no further than this simple, easy twist on scalloped potatoes. A little ham and a bit of cheese work wonders to turn that old favorite into a meal all its own. View the full article
    • Good luck with the holistic doc. I saw a naturopath for months who set me on a good path until I couldn't afford all the supplements anymore. Be careful with that. I found nothing helped me more than decent whole food and good quality vitamins. And of course sleep and lots of water!
    • Kirsty, do you have copies of the blood tests & biopsy reports? If not, get them. It's always a good idea to get copies of tests so you can refer to them later. If you have them or get them, you could post them here. It makes a difference whether you were given the full celiac panel and how many biopsies were taken from what portion of the small intestine. Also, why did you have a biopsy? Did the doc suspect celiac? What was the reasoning for doing that? Honestly, a   lot of your symptoms when you stop gluten sound like gluten withdrawal. It's something most of us experienced. Use the search box here & put in gluten withdrawal. You get a ton of threads.
    • Keep eating the bread. Get your primary care doc to do a full celiac panel although I will mention that depending on your insurance, some require you to go to a GI to get the full panel. Here's the list: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA 
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • I often get rapid heartbeat after meals that raise the blood sugar. But especially so after eating gluten, which is only once a day now. Sometimes I have days where it won’t get up or falls too fast, other days it gets and stays to high. In general, the more inflamed or stressed (usually from my cycle) I am, the more the blood sugar shoots up. Most important is that when I stop all gluten, it won’t get worse. I am asking a doctor for help. Endocrinologist did not take it seriously. I often have blood sugar problems without extreme values. The gastreneterologist did not think gluten was the thing to stop, but wanted me to try anti allergy medication, which made me more ill. Now I am going to see a holistic doctor, who is specialised in adrenals, female hormones and food issues. Maybe she can have a chat with my gastroenterologist. I need the backup of a doctor. Victoria, I am so glad you got over it. I don’t care if it takes a year. As long as the stomach and gut problems and itching subside. 
  • Upcoming Events