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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Louloulouisa

Finally Managed To Get Pregnant By Going Gluten Free, But Want To Go Back To A 'Normal Diet'

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Hi Everyone

I'm new, and from the UK.

I finally got pregnant after 6 miscarriages, by going gluten free (and other medical treatment) I am now 26 weeks pregnant.

After 2 years of trying and having recurrent miscarriages, I found a book by Alan Beer, "Is your body baby friendly" I basically found out my immune system was over active and attacked everything, including my poor little babes.

I had raised antithyroid antibodies (444) normal range should be below 50. (I also had raised natural killer cells, raised tumor nucrosis factor & blood clotting issues.)

I researched and found out that a gluten free diet can reduce antithyroid antibodies, plus I took Selenium. In 4 months, my antithyroid antibodies had reduced from 444 to 214.

I had some IVIG, and had them tested again 4 months later, and they were 22 :)

Now I am 26 weeks pregnant, and because of all the complications, I am at risk of an early baby.

My question is, After I have the baby, I want to go back to a 'normal diet' But is this Ok? will my antithyroid antibodies go back up, and does that present any medical problems for me?

can I go straight back to a 'normal diet'? or is it better to wean off of it?

(By the way, I tested negative for celiac)

Thank you so much

Lou xxx

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Hi Everyone

I'm new, and from the UK.

I finally got pregnant after 6 miscarriages, by going gluten free (and other medical treatment) I am now 26 weeks pregnant.

After 2 years of trying and having recurrent miscarriages, I found a book by Alan Beer, "Is your body baby friendly" I basically found out my immune system was over active and attacked everything, including my poor little babes.

I had raised antithyroid antibodies (444) normal range should be below 50. (I also had raised natural killer cells, raised tumor nucrosis factor & blood clotting issues.)

I researched and found out that a gluten free diet can reduce antithyroid antibodies, plus I took Selenium. In 4 months, my antithyroid antibodies had reduced from 444 to 214.

I had some IVIG, and had them tested again 4 months later, and they were 22 :)

Now I am 26 weeks pregnant, and because of all the complications, I am at risk of an early baby.

My question is, After I have the baby, I want to go back to a 'normal diet' But is this Ok? will my antithyroid antibodies go back up, and does that present any medical problems for me?

can I go straight back to a 'normal diet'? or is it better to wean off of it?

(By the way, I tested negative for celiac)

Thank you so much

Lou xxx

Hi Lou,

Congratulations on the pregnancy, I hope all goes well. I would NOT drop the diet after you have the baby. I think it is pretty clear that your body is reacting adversely to gluten. Look at all that has gotten better gluten free. To go back to gluten is to risk losing your thyroid and developing other issues. Please stay gluten free, your baby will need you as healthy as possible.

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Hi Lou,

Congratulations on the pregnancy, I hope all goes well. I would NOT drop the diet after you have the baby. I think it is pretty clear that your body is reacting adversely to gluten. Look at all that has gotten better gluten free. To go back to gluten is to risk losing your thyroid and developing other issues. Please stay gluten free, your baby will need you as healthy as possible.

Hi ravenwoodglass

Thanks for your reply

how about if i was to try to go back to a 'normal diet' for a short while, then get tested, if my results show a problem, i could stay gluten free?

Lou x

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Hi ravenwoodglass

Thanks for your reply

how about if i was to try to go back to a 'normal diet' for a short while, then get tested, if my results show a problem, i could stay gluten free?

Lou x

I just wanted to say that I had pretty bad symptoms before I went gluten free. I was tested through the blood test, which im assuming you had too, three different times, all coming back negative.

I then tested through enterolab, an online ordered stool and gene testing kit, and my results came back positive. Enterolab cant say you have celiac or not, but it can tell you if you are reacting to gluten.

Ive been gluten free 5 months now and every single thing that was wrong before is better now. Even with all my tests through my doctors being negative.

I am just worried because if you go back to a normal diet, things may go wrong again. What if you want another baby? You might be silent celiac, meaning you dont FEEL any symptoms, but still, you are being damaged inside.

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Hi ravenwoodglass

Thanks for your reply

how about if i was to try to go back to a 'normal diet' for a short while, then get tested, if my results show a problem, i could stay gluten free?

Lou x

The problem is that there are false negatives with testing. You were already tested and showed up negative so I can't say if you would ever show positive or not. It is also not uncommon for us to have our celiac symptoms become worse after a stressor like childbirth. In fact giving birth is a trigger for some women. The choice is yours but personally I wouldn't go back to gluten. If you do though you should make sure that you are eating it for at least 3 months before you get tested.

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I can only agree with ravenwoodglass. If you had to do so much to make yourself able to have a child, why go back to eating what put in that place to begin with? Some people never experience true 'celiac' symptoms, but discover problems as you did, when their thyroid is being attacked, or something else horrible is happening.

I am another one who tested negative on the celiac panel. But I can tell you, I cannot eat gluten at all. My doctor and I truly believe I have celiac, but I'm just not willing to go through a challenge for testing purposes. In fact, he told me that I would probably never test positive on a blood test.

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NO, do not go back to your "regular" diet unless it is gluten free. You have already been shown how badly gluten destroys your body. You really want to be as healthy as you can be for your child/children.

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Hi Maceroni, ravenwoodglass, lizard00 and Ahorsesoul

Thanks for your replies.

I didn't seem to have any of the symptoms of celiac, no bloating, cramps etc etc. Thanks for the info on Enterolab Maceroni.

my thryoid homone level is 1.69

I definately won't be having any more children, I have 2 already, and it was just a third child we had trouble having. Plus I can't have anymore, as the treatment for this baby was over

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Hi Maceroni, ravenwoodglass, lizard00 and Ahorsesoul

Thanks for your replies.

I didn't seem to have any of the symptoms of celiac, no bloating, cramps etc etc. Thanks for the info on Enterolab Maceroni.

my thryoid homone level is 1.69

I definately won't be having any more children, I have 2 already, and it was just a third child we had trouble having. Plus I can't have anymore, as the treatment for this baby was over

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