• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
eko413

How Long Til Things Are Back To Normal?

Rate this topic

Recommended Posts

Hi everyone, I'm so glad I found this forum...

I'm 23 years old and I was just diagnosed the week before Thanksgiving. Being right before the holidays, the timing wasn't ideal, but I was actually really excited to FINALLY know what was wrong with me. I was super-optimistic about going gluten free and have been very careful about sticking to my diet. I had a couple slip-ups early on, but I've learned from them and I've even ditched my beloved Aveeno lotion and switched shampoos. I've been dairy free for about a week, and I started taking a probiotic right after the new year.

My symptoms are daily D and brain fog. Since going gluten free I have had 2 days were I felt better. Do you think I'm still getting gluten from somewhere? Or could I have other intolerances I just haven't discovered yet? Or am I just being impatient? I get discouraged when I read about people who felt better right away...but then again we all heal differently. Did it take anyone else months to feel better?

Thanks for listening. Any advice would be greatly appreciated. I don't know any other celiacs...it's so good to be able to talk about this with people who "get it."

-Erin

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Brain fog: 4-6 months to clear.

Stomach problems: depends on your level of determination. You are well advised to eat a totally natural diet, no processed foods, and to start at a very basic level and go from there. Start with plain cooked brown rice for two days. If stomach is okay then add plain chicken for two days. If stomach is still okay then add potato...

Hi everyone, I'm so glad I found this forum...

I'm 23 years old and I was just diagnosed the week before Thanksgiving. Being right before the holidays, the timing wasn't ideal, but I was actually really excited to FINALLY know what was wrong with me. I was super-optimistic about going gluten free and have been very careful about sticking to my diet. I had a couple slip-ups early on, but I've learned from them and I've even ditched my beloved Aveeno lotion and switched shampoos. I've been dairy free for about a week, and I started taking a probiotic right after the new year.

My symptoms are daily D and brain fog. Since going gluten free I have had 2 days were I felt better. Do you think I'm still getting gluten from somewhere? Or could I have other intolerances I just haven't discovered yet? Or am I just being impatient? I get discouraged when I read about people who felt better right away...but then again we all heal differently. Did it take anyone else months to feel better?

Thanks for listening. Any advice would be greatly appreciated. I don't know any other celiacs...it's so good to be able to talk about this with people who "get it."

-Erin

Share this post


Link to post
Share on other sites

Erin,

Best of luck to you! Wish I'd found out in my 20's. After many years of supposed "IBS", it took probably 3 months before the D resolved itself. Don't worry - good times are ahead. Now I never ever get D unless I've been glutened - then the cramping etc. comes back with a vengeance. It's good to stay off dairy for awhile til you're healed - and wholesome foods are always good. I found I had trouble eating raw vegetables at first, but after cooking them for a few months I love my salads now. Just treat yourself as though you're recovering from a long and serious illness and give it time.

Be sure to check your soy sauce, salad dressings, OTC and presription pills, and lipstick - those are common culprits. I've learned to stay away from marinated meats and prepared soups and salads unless someone can positively identify the ingredients for me. Even those chicken chunks you put on your salad sometimes contain soy sauce and other forms of gluten. Read anything that comes out of a freezer bag - even something as innocent as frozen carrots - ya just never know.

Share this post


Link to post
Share on other sites

I think it might be the dairy. It takes awhile for dairy to get out of your system so 2 weeks free of it might mean you need a bit more time. With intestinal damage like we all have dairy is tough. Look for hidden dairy in things too and just get off dairy entirely. I would avoid soy too. It's not fun, but your body needs healing. When you are healed, then you can try it in moderation.

Share this post


Link to post
Share on other sites

Thanks for all the encouraging feedback. I'll stay off the dairy a little longer and try cutting out soy too. It's tricky--dairy and soy pop up in all kinds of unexpected things. It's really tough being in grad school and missing out on group lunches, happy hours, etc. Plus I'm so anxious to snap out of the fogginess so I can concentrate on finishing my thesis!

Thanks again for the support!

Share this post


Link to post
Share on other sites
Ads by Google:


Be sure to throw out your old lipsticks, chapsticks, lipglosses and anything else that you put on your lips before going gluten free. If you are anything like me, then you probably used to routinely eat a sandwich or donut or pizza, then just pull out your lipstick/gloss/chapstick and reapply without even thinking about it....and thus getting little itty bits of gluten all over them.

Also, be sure to buy a new toothbrush and toothpaste and any other thing that routinely goes into your mouth (if you have braces or retainers be sure to buy new cleaning brushes too).

Share this post


Link to post
Share on other sites

Good luck! I was diagnosed during grad school .... it is tough to juggle it all.

If you weren't already tested, you may want to talk to your doctor about vitamin/mineral deficiencies that are common among people with Celiac (especially when you are undiagnosed/just starting the diet) because of malabsorption.

Immodium can help cut down on some of your symptoms. Hang in there!

Share this post


Link to post
Share on other sites

Thanks for all the encouraging feedback. I'll stay off the dairy a little longer and try cutting out soy too. It's tricky--dairy and soy pop up in all kinds of unexpected things. It's really tough being in grad school and missing out on group lunches, happy hours, etc. Plus I'm so anxious to snap out of the fogginess so I can concentrate on finishing my thesis!

Thanks again for the support!

I was diagnosed this past fall as well and have been gluten free since Thanksgiving. I had a few days of incredible energy and clarity, but that faded and around the start of the year began to go down hill big time and it has pretty much been daily G & D ever since. The lesson for me has been that I need to go back to square one and proceed verrry carefully. I wasn't being careful enough on (what I assumed were) minor issues and am paying for it now. Fortunately the brain fog is mostly gone. I, too, am in grad school, and going gluten free enabled me to burst through on some deadlines. But if I am going to finish the degree I need to be very conservative regarding my diet.

I don't know if that helps... I thought you might appreciate knowing you are not the only one.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,951
    • Total Posts
      943,648
  • Member Statistics

    • Total Members
      67,252
    • Most Online
      3,093

    Newest Member
    LDaugherty
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
    • You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.   The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.     http://www.cureceliacdisease.org/faq/are-there-vitamins-created-specifically-for-nutrient-deficiencies-in-celiac-patients-2/  
    • First - there is no such thing as a "gluten allergy".  Celiac is an autoimmune disease.  Just so you understand. It could be Celiac or a different gluten intolerance.  I am guessing you aren't going to get tested for Celiac disease.  IF it were me, I would be more concerned that maybe there is still some sort of infection or parasite from the places you have been.  I think I would try to get a good work-up for that first.
    • Hello, I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.   Thank you!
  • Upcoming Events