• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
angel_jd1

Tired Of The Cheaters And Skeptics

Rate this topic

Recommended Posts

Ok, so I need to vent. I'm sick and tired of comming to the board and seeing titles such as cheaters and so what if I ate gluten blah!! <_<

What is up with all this lately?? It is making me not want to even visit the board anymore.

If you don't want to be healthy and stay on the diet then what in the world are you doing on these boards to begin with? If you don't want to stay healthy, then FINE!!!

It is just rediculous, you were diagnosed, you have celiac, you NEED TO FOLLOW THE DIET!! geesh.

The research is out there folks, if you don't follow the diet then you can get cancer, lupus, diabetes, infertility, etc etc etc You do not HAVE to have symptoms to get those ugly things. Many people have NO symptoms at all!!

Can we please get back to the topics here on the board. This board is for people who FOLLOW the gluten-free diet. Not people who want to cheat or who think the diet is bogus, they aren't getting anything out of the board. It is depressing having to come here everyday and defend why we SHOULD follow the diet. Look at the facts, if you are diagnosed and have celiac and are not following the diet you are only hurting yourself !!!

-Jessica :rolleyes:

*sigh* Ok, i'm done venting now, thanks for listening ;)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Ok, so I need to vent. I'm sick and tired of comming to the board and seeing titles such as cheaters and so what if I ate gluten blah!! <_<

What is up with all this lately?? It is making me not want to even visit the board anymore.

If you don't want to be healthy and stay on the diet then what in the world are you doing on these boards to begin with? If you don't want to stay healthy, then FINE!!!

It is just rediculous, you were diagnosed, you have celiac, you NEED TO FOLLOW THE DIET!! geesh.

The research is out there folks, if you don't follow the diet then you can get cancer, lupus, diabetes, infertility, etc etc etc You do not HAVE to have symptoms to get those ugly things. Many people have NO symptoms at all!!

Can we please get back to the topics here on the board. This board is for people who FOLLOW the gluten-free diet. Not people who want to cheat or who think the diet is bogus, they aren't getting anything out of the board. It is depressing having to come here everyday and defend why we SHOULD follow the diet. Look at the facts, if you are diagnosed and have celiac and are not following the diet you are only hurting yourself !!!

-Jessica :rolleyes:

*sigh* Ok, i'm done venting now, thanks for listening ;)

I know where you are coming from Jessica so don't feel alone

but I also realize that alot of the people that think that are new people to the disease and I was the same way when I was first diagnosed.

I don't think some people get the seriousness of this disease and what it can do because they have no symptoms...

Doctors don't just hand out a diagnosis for no reason and when you are diagnosed you have it..thats the end of it...

People..your fate is in your own hands...nobody can control what you eat but you...

the thing is ..people that choose to eat gluten with celiac disease will eventually have the consequences that come with that...

And I hope all of you with celiac realize the seriousness of it because I don't want anything bad to happen to any of you.

Share this post


Link to post
Share on other sites

I can see why the cheating question/poll was asked, I will admit that I was interested to see how many people actually cheated. However, I can also see how the cheating topics can give newbies the wrong idea. When these topics are posted we should always emphasize that cheating is harmful to your health and give examples (like cancer, osteoporosis, infertility, ect). Although it's unhealthy and harmful to cheat, it is a personal choice. And we should encourage those who do cheat to stop.

I personally don't cheat because I'm not willing to put my health on the line.

Share this post


Link to post
Share on other sites

The fact that a number of people cheat is something that, as a community, we have to deal with. If we want additional respect for the conditon, we need to start with all the people who have the condition but not the respect for it themselves.

For people who do NOT feel unhealthy if they eat gluten, it's in no way obvious that they need to avoid gluten to be healthy. It's just not that cut and dry for everyone.

I think we need to be a little more understanding and patience the changes that people need to make - and those changes are a little bit different for everyone because we all have our own different lives and our own different ways of thinking of things. I admit that I sometimes see the "oh my god how can I possibly make this change it's impossible" post and get annoyed for a minute (for various reasons) but then remember that maybe people don't cook as much as I did when I made the change (that would make it harder), maybe people don't know as much about ingredients in foods (that would make it harder), maybe people have a different family/social dynamic (that would make it harder), maybe people haven't ever made a dietary change of any kind before (that would make it harder), maybe people don't have the same resources (that would make it harder), maybe people aren't as creative just yet (that would make it harder)...

There are so many reasons why the journey of living celiac is different for everyone, and I think I've learned a lot from hearing about those different journeys - all of them.

Share this post


Link to post
Share on other sites
Ads by Google:


I think we need to be a little more understanding and patience the changes that people need to make

I'm actually very understanding. However, I'm not understanding with people who continue to cheat and damage their bodies. Usually comming back to say how sick they were and wondering why they feel so bad? DUH!! :blink:

I am also not understanding when people come here to this board and criticise the diet and the people who follow it. There is a thread going on currently where a man said he about fell off his chair laughing at the kissing and gluten thread. He goes on to be rude to several folks on the board. There have been several other instances of this, not just from this person. How is that helping others??

Believe me, I remember how hard it was in the beginning. You have your doubts, you want it to all go away and have a slice of pizza!! :lol:

Fact is, you have a diagnosis, no matter how hard that is, cheating and having that doughnut or whatever isn't helping. It also isn't helping to come here and knock down people who are trying to get better and trying to make it on this diet. The board is for support, support of people who FOLLOW the diet. If they aren't following it, or if they don't believe in it, then why in the world are they here?

-Jessica :rolleyes:

Share this post


Link to post
Share on other sites

The doubters really don't bother me so much. The way I look at it, if reading all the posts of all the hell we have gone through sheds some light on their knowledge of the dangers of the disease, then I am glad they are here....

A different perspective to look at it is this way. Take into consideration the philosophy of AA. If the people in AA didn't keep on trying to get alcoholics to "see the light", then their power would be greatly diminished and their successes would be few and far between if they just gave up on people and didn't understand their "denial" and work with it......

Karen

Share this post


Link to post
Share on other sites
I'm actually very understanding. However, I'm not understanding with people who continue to cheat and damage their bodies. Usually comming back to say how sick they were and wondering why they feel so bad? DUH!!  :blink:

I am also not understanding when people come here to this board and criticise the diet and the people who follow it. There is a thread going on currently where a man said he about fell off his chair laughing at the kissing and gluten thread. He goes on to be rude to several folks on the board. There have been several other instances of this, not just from this person. How is that helping others??

Believe me, I remember how hard it was in the beginning. You have your doubts, you want it to all go away and have a slice of pizza!!  :lol:

Fact is, you have a diagnosis, no matter how hard that is, cheating and having that doughnut or whatever isn't helping. It also isn't helping to come here and knock down people who are trying to get better and trying to make it on this diet. The board is for support, support of people who FOLLOW the diet. If they aren't following it, or if they  don't believe in it, then why in the world are they here?

-Jessica :rolleyes:

*sniff sniff* ;)

Share this post


Link to post
Share on other sites

I think we should stone 'im ;)

  • Like 1

Share this post


Link to post
Share on other sites
I think we should stone 'im ;)

With whole wheat bread?

Share this post


Link to post
Share on other sites


Ads by Google:


I was thinking about using barley actually (the grains are bigger) ;)

Share this post


Link to post
Share on other sites

I dunno, Kamut has some pretty darn big grain!!!

Kamut pellet gun... now that would be some serious action.

Stephanie

Share this post


Link to post
Share on other sites

Kamut? :huh:

Can Celiacs have Kamut? What the hell is Kamut anyway? :blink:

I think we should stick to toxic grains ;)

Share this post


Link to post
Share on other sites

Nah, get a 24 of some good ol' Canadian beer. Lots of barley in those! (We would get better results with bottles then cans though, bottles can be nasty!) That would do the trick, eh? ;)

Karen

Share this post


Link to post
Share on other sites

We could just drown him in the beer... ;)

There's enough of us! We could take 'im!! :angry:

Share this post


Link to post
Share on other sites
We could just drown him in the beer... ;)

There's enough of us! We could take 'im!! :angry:

Mmmmm, beeeer.....donuts...

Share this post


Link to post
Share on other sites
Kamut? :huh:

Can Celiacs have Kamut? What the hell is Kamut anyway? :blink:

I think we should stick to toxic grains ;)

Kamut is a pasta wheat,...not safe for us

Share this post


Link to post
Share on other sites

:lol:

Thanks for making me laugh out loud, Mr. I'mNotGonnaBeGlutenFreeForLongAndYouCan'tMakeMe ;)

Share this post


Link to post
Share on other sites

Thanks Kaiti :)

Share this post


Link to post
Share on other sites

Thanks Bean! My four yr old twin boys are looking at me right now wondering why their mother is howling at the computer!!!! :lol::lol::lol:

Karen

Share this post


Link to post
Share on other sites


Ads by Google:


Hey mmm..gluten, if you're going to go, you might as well go in style, eh? LOL! :lol::lol:

Karen

Share this post


Link to post
Share on other sites
Hey mmm..gluten, if you're going to go, you might as well go in style, eh?  LOL! :lol:  :lol:

Karen

Take off, eh? You know I was thinking the same thing, eh? Might as well go out with a Coffee Crisp and a cup o Horton's finest, eh?

:)

BTW - checked my stash last night...Coffee Crisps are NOT gluten-free.. :(

Share this post


Link to post
Share on other sites

I bought some whole grain Kamut a couple of years ago. I was intimidated by how big of a grain it is! Like four times the size of a rice grain. Never ate any of it. I had Kamut bread but preferred Spelt bread to it. Supposed to be really healthy, but not for us. It's an ancient version of wheat.

Beer would be ok, but he'd enjoy it way too much... (I know I would! Death by beer!!!)

Stephanie

Share this post


Link to post
Share on other sites

Aw, come on, don't be such a hoser, eh? ;):D

Better watch it, I just might storm out of my igloo and come lookin' for ya! :rolleyes:

Karen

Share this post


Link to post
Share on other sites
I'm sick and tired of comming to the board and seeing titles such as cheaters and so what if I ate gluten blah!!

Can we please get back to the topics here on the board. This board is for people who FOLLOW the gluten-free diet. Not people who want to cheat or who think the diet is bogus, they aren't getting anything out of the board. It is depressing having to come here everyday and defend why we SHOULD follow the diet.

It was my impression that this board, in particular this section on coping with the disease, exists to SUPPORT people who follow the diet, people who are trying to follow the diet, people who are trying to understand celiac disease and all its implications, including how other people cope or don't cope with it. Attacking people with a "follow the diet or die and don't question anything" attitude is neither helpful nor supportive.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,567
  • Member Statistics

    • Total Members
      67,198
    • Most Online
      3,093

    Newest Member
    EdenLatoya
    Joined
  • Popular Now

  • Topics

  • Posts

    • There was a study where they checked 2 weeks on a gluten-free diet , and antibodies were still going up .  The study wasn't about that, so I think that is why they didn't go any further.   So... looks like 2 months gluten free?  If we think that antibodies are still being made at least two weeks gluten free.... account for the fact that most people need a few weeks to actually figure out and eat gluten-free...I would say it was a bit soon to re- test antibodies.     Edit it to add- if you were tested sept 12 and ate gluten for 6 more weeks before going gluten-free - who knows how high it got.  Shame on your doctor for doing the re- test so soon and discouraging you!  
    • Your numbers should not be going up at all. You are getting gluten somewhere. Do you eat out? Have you read the Newbie 101 at the top of the coping section? That will help you to ferret out how you may be getting glutened. Do you have a gluten free household or is it a shared household? Do you read ingredient labels?
    • Thank you so much!!!! I have a severe allergy, I can not even walk through a grocery store without getting a migraine. I have always used dreft but now I know for a fact that it is safe.
    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
  • Upcoming Events