• Ads by Google:

    Get email alerts Celiac.com E-Newsletter

    Ads by Google:

       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Does It Take For The Muscle Weakness/Pain To Go Away?

6 posts in this topic

The achy joints and sore muscles are going away. I've been off gluten for two weeks after a gluten trial which really did me in, but I'm impatient!

How long did it take you to get back to normal after ditching gluten? Did any of you end up feeling even stronger than before? (admittedly, that's what I'm hoping--I'd had a gluten-free period before the gluten trial, and it felt so good).

Did your iron levels improve?

And a question for long-distance runners--did the wall become much smaller/later after a while off gluten? I've run 6 or 7 marathons so far and had fueling problems with all of them except for one. I didn't carb load, didn't eat wheat the night before, no breakfast just juice, and had bananas, sports drink, and coffee during the race. No gels. And there was barely any wall, somewhere around mile 22 I felt kind of tired all of a sudden, but it went away after a few minutes. During all the other marathons, I'd hit the wall early and permanently, from mile 11 to 16. I didn't make the carb/wheat connection until recently. Wish I'd known about that earlier. lol

These days, my 'tough' runs are just 40 min jogs, but I'm recovering, I think. My mileage is still under 20 miles/week...used to be 50-60+, but a few weeks ago it was under 10 so I'm getting there slowly and surely. I'm hopeful and curious to know how it's been for other runners.



Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

I may not be much help. I am not a runner, but have always wanted to be. My joint pains and issues were holding me back most of my life as well as breathing problems that seem to be getting better this past week. I've only been gluten free for about two weeks, and it seems that for the most part my joint pains are gone. I actually feel like I could finally start running! I also do in fact feel A LOT stronger. So it is definitely a possibility for you! Good luck :)


Share this post

Link to post
Share on other sites

Thank you, and best wishes for your recovery!

I've had gut/absorption issues for years, and they interfered with running and daily life quite a bit but there were ways around that. I ran in the woods or planned my routes around bathrooms. When things got really unpredictable, I was told I had IBS and was prescribed Bentyl...at any rate, throughout all this, my muscles and joints felt fine. Wheat made me drowsy though so I gradually reduced my intake over the years. Then I had to eat it every day for the blood tests and after a few weeks, those aches started, and they were getting worse and worse. That took me by surprise. I never expected to feel arthritic! I just thought I was going to be pooping more.

I gave up wheat 25 days ago (and have had only one slip up at a restaurant, lol)....already it's made a huge difference. I still have a few sore joints, mainly in my fingers and one in my right foot, but running has become a lot better. I was down to running 15 minutes once or twice a week and it was very painful (worse than any marathon I've run--it felt like I had already run a marathon!), and now I can jog comfortably for 40 minutes, and I even jogged for 1.5 hrs last weekend because it felt so good.

So I really really hope that things go as well for you and that you can take up running. You'll have to start off slowly to avoid injury--there are plenty of learn-to-run programs out there. Most people start off by running intervals--jog 1 minute, walk 2 minutes (or more) and repeat. Eventually the running intervals get longer and the walking intervals get shorter. Let me know if you want more info or links.


Share this post

Link to post
Share on other sites

I am a super sensitive celiac. I was pretty athletic when I was younger, mainly skiing and ballet. I ran to condition for skiing. I got very sick before diagnosis and was unable to do much of anything. It would take me four days just to mow our 1/3 acre.

It took me almost a year to figure out the diet enough, and to heal enough, so that I could exercise like before. It's been two years now and I am training for a mini triathlon. I have a rowing machine and have records of my training times that go back 20 years, and now I am doing better than I was even 20 years ago when I had no idea that I was sick, despite being over 50 now.

One thing I've noticed is that strenuous exercise will really point out deficiencies (trace gluten) in your diet. I have had to be even more careful with what I eat. If I stay rigorously gluten free I have much less trouble with fueling that if not. When even slightly glutened I have all sorts of blood sugar level problems and get lightheaded and dizzy, problems with reflux, no energy, and just a plain inability to push. Rigorously gluten free, I can go and go. I'm sure that a whole marathon would quite another matter. I'm thinking dried fruit?

It is really wonderful to be able to exercise hard again.


Share this post

Link to post
Share on other sites

That's my question! I've been off running for almost 3 months now-- joint pain, digestive issues/uncertainty-- and am really hoping to be able to get back into it. Vaguely want to do a fall half or full marathon, but unless I can get the energy and feel confident that I won't be banging on someone's door to borrow a stranger's bathroom, it's not going to happen. Biking, meanwhile. Much easier to reach bathrooms ASAP :-).

Just started gluten-free three days ago, and feeling less pain. Not sure that removing gluten is the full diet (lactose, nightshades?) or that my kitchen is fully decontaminated yet, but hopefully will solve problems quickly.

Any general suggestions for distance fuel? I know Clif bar just created a gluten-free bar, and L'Arabar works, but what about Gatorade sorts of things?


Share this post

Link to post
Share on other sites
Ads by Google:

Gatorade & powerade are gluten free. Gu, gu chomps, and clif bloks are as well. I am really wary of consuming a lot of protein when you are out for long distances (ie - clif or larabars), but that's my personal fear. For longer distance stuff I have used a bite of purefit bar. (literally a bite - like 1/12 of a bar). There is also this stuff called Infinit. You can personalize everything - from the amount of carbs, caffeine, sodium/electrolyes, protein, and the strength of the flavor. it's a pretty cool concept. I think the website is infinit.com or something like that. Hope this helps!!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • So to repeat, you will have to do a gluten challenge which is 12 weeks of eating 1 slice of bread per day for the blood tests or 2 weeks of gluten eating for an endoscopy.
    • I'm celiac for less than 3 months.   I'm starting to get concern about getting all the necessary vitamins being gluten free.   Recently my joint pain has increased, pulsating pain in my head, and sore areas in legs and neck have started recently.  Or course, anxiety too. I'm currently taking a Centrum Men's Multivitamin.  Here's what in it: Vitamin A 3,500 IU (29 % as Beta - Carotene)  70%
      Vitamin C 90mg  150%
      Vitamin D 1,000 IU  250%
      Vitamin E 45IU  150%
      Vitamin K 60mcg  75%
      Thiamin 1.2mg  80%
      Riboflavin 1.3mg  76%
      Niacin 16mg  80%
      Vitamin B6 2mg  100%
      Folic Acid 200 mcg  50%
      Vitamin B 126mcg  100%
      Biotin 40mcg  13%
      Pantothenic Acid 15mg  150%
      Calcium 210mg  21%
      Iron 8 mg  44%
      Phosphorus 20 mg  2%
      Iodine 150mcg  100%
      Magnesium 100 mg  25%
      Zinc 11mg  73%
      Selenium 100mcg  143%
      Copper 0.9mg  45%
      Manganese 2.3mg 115%
      Chromium 35mcg  29%
      Molybdenum 50mcg  67%
      Chloride 72 mg  2% Potassium 80 mg  2%   I really can't believe after being diagnoses that my doctor didn't get me a list of recommend supplements to include the vitamin deficiencies by not having gluten in my diet.   Everyone has to do it on their own. I don't really want to avoid taking a bunch of pills in the morning if I can.   But I'm concerned I'm not getting enough Magnesium and Iron.   Other too? Any recommendations of supplements to increase what I'm currently taking.   Or just on supplement that includes everything I need? Thx.            
    • As far as the grey hair goes, I understand how you feel as I started going seriously grey in my mid 20's also.  As cyclinglady stated, there is nothing you can do about that except color you hair or live with the grey hair.  I chose to color it. Grey hair is generally either a genetic thing or it can be the result of vitamin deficiencies or illness.  It also can't be reversed, which would be heavenly, I agree! You definitely need a full  thyroid panel done because you cannot diagnose Hashi's on antibodies alone.  I have Hashi's so know the drill.  No doctor should tell people to just go gluten free without some level of testing for Celiac.  Those with Hashi's can benefit greatly from going gluten free but that is because those that it helps noticeably also probably do have full blown Celiac.....without Celiac or non-Celiac gluten sensitivity, the gluten-free diet won't help. The supplement you mentioned is just that....a supplement.  If you do have true Hashi's, you'll need more than that to help keep thyroid function normal for you.  I think you need to see another doctor because your doc is missing the boat here.  You really should have a full thyroid panel done and a full Celiac panel.  It is important to diagnosis (or not) these 2 conditions early so you won't have more problems down the road.  Can you request more blood work?
    • Lotions used topically are not a concern at all unless they contain gluten and you ingest them into your mouth.  Gluten has to get into your GI tract, (which begins in your mouth) for damage to occur.  Ditto for hair care products.  As most salons have you bend your head back into a sink to wash, the odds of any shampoo or conditioner getting into your mouth are slim to none. If you shower and let the soap and water run down your face, then make your home shampoo/products gluten free.  
    • YES get the blood test and the endoscope done if you can, if your doctor will put the dia. formally on your records without these then your blessed in a way. I had a similar issues getting mine done. You have to be eating gluten for 12 weeks at least a half slice of bread a day for the antibodies to build up for the blood testing, 2 weeks for the damage etc to show up in a endoscope.
  • Upcoming Events