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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dealing With Rude Family Members
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33 posts in this topic

I've been gluten-free now for 4 months. I was just diagnosed with Celiac a week ago. No testing, just the basis of my health issues improving with gluten-free diet. I've been struggling with health issues since 1996.

My problem is family members. Some of them rather loud and rude. The word hypochondriac is frequently thrown in my general direction when speaking about the food I have to eat now. Or the food I can not eat. Even after informing them about Celiac Disease, and before that generalized gluten intolerance, I can not make them understand that Celiac is no laughing matter. I have had comments ranging from "wow, you're really taking this too seriously..." to "if it's not an actual allergy, it's not real".

How can you get family to take the disease as seriously as it should be taken, and how can you teach them that it's not something to snicker at? Any ideas or advice is appreciated! Thanks, in advance!

RBTX

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I've been gluten-free now for 4 months. I was just diagnosed with Celiac a week ago. No testing, just the basis of my health issues improving with gluten-free diet. I've been struggling with health issues since 1996.

My problem is family members. Some of them rather loud and rude. The word hypochondriac is frequently thrown in my general direction when speaking about the food I have to eat now. Or the food I can not eat. Even after informing them about Celiac Disease, and before that generalized gluten intolerance, I can not make them understand that Celiac is no laughing matter. I have had comments ranging from "wow, you're really taking this too seriously..." to "if it's not an actual allergy, it's not real".

How can you get family to take the disease as seriously as it should be taken, and how can you teach them that it's not something to snicker at? Any ideas or advice is appreciated! Thanks, in advance!

RBTX

It's been my experience that the people who behave disrespectfully about something as simple as food are generally completely disrespectful, period. I think of it as an American epidemic.

My only advice would be to simply ignore the naysayers and change the topic whenever possible. In a few months when you look totally great and feel totally great, and people say 'Wow! You look great!' and they're still giving you a hard time, tell them it's all about the gluten! It's sometimes hard to accept, but it doesn't really matter what those people think. You're better, and good for you.

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Well it's not an allergy. It's an autoimmune disorder which is worse. With an allergy your body doesn't perceive the food as poison and destroy your own intestinal tract to avoid ingesting the perceived poison.

I'm sorry they are being jerks to you. I can't imagine going through this without the support of friends and family. I hope that you have some support from some of them. The ones who are saying that need to receive large packets of reading material and daily emails until they get their heads out of their behinds and get a clue.

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Sadly, you just may never convince some people. These folks have known you for years and seen you eat gluten for years - and they often don't get it. No one can feel what you feel when you are on gluten - they don't feel it, they don't get it.

Stick to it - eventually most of them will get it. I agree they will see you feel better, act better (I know I get quite snarly when I eat gluten !), and so forth. Consistency will prove it to them - why put so much work in to not eating gluten if it isn't worth it ?!?!

I went through several stages myself - it took awhile for ME to believe it - and believe it to the point where I had to have my own baking sheets, colander, etc. (get the whole cross contamination thing). Immediate family took a bit longer - though I gotta admit my husband was very supportive, he saw the way NOT eating gluten changed me. Oddly, strangers, co workers, seem to just accept it easier !

I do have a brother who still doesn't get it - took me & my family to a pizza only place at Christmas - I was not impressed (had a couple of glasses of wine for "supper"). However, that's him & his problem, not mine (though I won't go out like that again - next time I look ahead to make sure there is something I can eat). I would have thought that it would help that I am very strict about my diet - it is not a weight loss style diet where you can cheat !!!!

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Maybe I'm in a mood here, but I guess I might come back with:

Do you know how ignorant you sound right now? I doubt there's anything I can say that would help you understand, so you just worry about your health and I'll worry about mine.

Of course that might just be my mood right now...I'm sure others have better, more civil answers. But seriously, why is it any of their business? People can be incredibly rude. When I was talking to the mother of the boy who thought it was funny to throw bread on my son's lunch (first gluten-free lunchtime experience at school) she thought it was completely ridiculous that my son referred to gluten as poison. Some people are just jerks.

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Maybe I'm in a mood here, but I guess I might come back with:

Do you know how ignorant you sound right now? I doubt there's anything I can say that would help you understand, so you just worry about your health and I'll worry about mine.

Love this CeliaMom. Would you mine if I use this?

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If your relatives admit that you have celiac. They have to consider that they may also have it. If you're wrong then they are safe and can keep eating junk.

My doctor wrote my diagnosis on a sheet from his prescription pad. I carry it in my purse and have whipped it out on a couple of co-workers and said in my most diva like voice, "Well, my doctor doesn't agree with you!" toss of the hair, show them my back, get a drink of water and sit right down! Never leave the room while they feel like talking behind your back :lol:

My boss has Lupus and says she would rather die than eat like me. She would rather pay for pills than give up cheap cookies. So we don't discuss it. She has her pop tarts and ramen noodles and I have my eggs and fruit and Wendy's chili.

You'll figure out the best way for you to handle it. RA

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Maybe I'm in a mood here, but I guess I might come back with:

Do you know how ignorant you sound right now? I doubt there's anything I can say that would help you understand, so you just worry about your health and I'll worry about mine.

Of course that might just be my mood right now...I'm sure others have better, more civil answers. But seriously, why is it any of their business? People can be incredibly rude. When I was talking to the mother of the boy who thought it was funny to throw bread on my son's lunch (first gluten-free lunchtime experience at school) she thought it was completely ridiculous that my son referred to gluten as poison. Some people are just jerks.

LOL! The "mood" must be catchy because my first thought was "And this affects you HOW???".

Some people really are ignorant. And those same ignorant people have no problem stuffing their faces with non-foods (things made with petroleum, coal tar, car wax) while having the nerve to judge others who are eating real food. Items that are manufactured, processed, artifically flavored, colored, sweetened and chemically "created" are now the "normal" diet. Anything else is considered "extreme". A whole food diet? You must be crazy to deprive yourself in such a way!

Ultimately, you have to be comfortable with yourself and with your choices. If you're feeling better and seeing positive results, than the people who care about you should rejoice for you and with you. If they don't, they have a pretty messed up view on what it is to be a caring and considerate human being.

The problem is theirs, not yours. Don't try to justify your life. You have every right to live it as you deem fit.

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I have to wonder if you were doing a diet by choice for weight loss, such as Atkins, would they be so difficult?

Sometimes I think that it scares the heck out of people to face the fact that this disease is even possible. I think they want to pretend like it doesn't exist so that they can pretend that they can't get something like this. It's really illogical when you think about it. How can simple food be THAT dangerous to you? It doesn't make sense. And yet it is the truth.

The first time I heard of celiac was when a friend was diagnosed and she was so sick they thought she was going to die. It freaked me out to think that food could kill you and when I heard about how difficult it was to find hidden gluten and give up all those foods, it did scare me. I remember telling my husband, I hope I don't have THAT. Well 7 years later here I am!

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I've been gluten-free now for 4 months. I was just diagnosed with Celiac a week ago. No testing, just the basis of my health issues improving with gluten-free diet. I've been struggling with health issues since 1996.

My problem is family members. Some of them rather loud and rude. The word hypochondriac is frequently thrown in my general direction when speaking about the food I have to eat now. Or the food I can not eat. Even after informing them about Celiac Disease, and before that generalized gluten intolerance, I can not make them understand that Celiac is no laughing matter. I have had comments ranging from "wow, you're really taking this too seriously..." to "if it's not an actual allergy, it's not real".

RBTX

I bet these people were loud & rude before you had Celiacs. Might want to minimize the amount your around them. If not Celiacs, they would probably find something else to bother you about.

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I have been very lucky that my friends are very supportive of what I am going through. They saw me at my worst, when even my family hasn't see that( they all live out of state so they don't know the everyday troubles that I have...and even when you call regularly you don't crash the mood with I have been sick again.) The hardest part is that most of my friends do not understand the severity of the disease. They think that well if you have a little bit it won't be so bad, so now I am trying to educate them on the full concept. But again overall they are very supportive and are willing to compromise to eat or go places that I can enjoy too.

Hopefully you can educate these people on the new way of life for you, otherwise I agree with the others, I would limit contact with them as much as possible. This is hard enough without getting a hard time from the people that are supposed to care about you the most!

Good Luck!!

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my family used to be like that but now they just got better the last few years but they still go out of their way to make what i can have because to them they think that i should have whatever they have but guess what im not getting sick for anyone wxp my family, ive been doing good without cheating i have a blood test on my celiac disease to go for before i go to my stomach doctor for my yearly checkup (so i need to be good otherwise they will see that ive been going off my diet ) hehe

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My family wouldn't dare be rude to me about it. My mother died from not treating it, and they all know it. For those that are rude, I like to be rude right back. I offer to come to their house after consuming gluten and crap all over their furniture. I also make sure they know that I will use their knives to slit my wrists and draw in the blood all over their floor because of the depression it causes me. Finally, I tell them that they can also listen to me scream from the pain while I am doubled over. It usually shuts them up fast.

Of course, the "And what is it to you?" and "Do you know how ignorant you sound?" comebacks sound excellent. They are also less graphic and don't take as long to say!

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My cousin just glutened me 3 days ago to prove that my doctor was wrong. I don't know how I'll trust her again- never, ever with food- but even generally. My lower half is broken out in dh now and I wish I could "share" it with her!

The rest of my family and in-laws have been very good about it, though.

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I've found that trying to change rude people with rudeness doesn't work. It's only cathartic for a short time. Sticking to your guns, unfortunately having to reexplain something for the thousandth time, and continue to hope that they will either understand or just give up trying to make you "come clean." It's strange and extremely upsetting that your family, the people who should always be there for you, are the ones who are making this the most difficult for you.

Stay strong, and know you are in the right.

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I said I was going to be out of town at Easter and I wasn't. Next holiday, I will NOT be around my family.

My sister (50ish) was handed a big piece of cake. She was sitting beside me and smirkingly asked, "So you can't eat this either?" "Uh, no, it's made from flour," was my reply--I wanted to add you moron, but chose to be kind.

Then she looks at my 16 yr old daughter and said to her, "Well, you can eat this, you don't have a problem." DD said yes I do. To which my lovely sister replied that I had brain washed my child.

I just looked at her said no I hadn't and left the room.

Didn't help that about 2 months ago, my mother suddenly thinks that my problem is Crohn's. Maybe my doctor needs to check that out instead, she thinks--never mind that the only time I'm sick is when I've accidentally been glutened at a restaurant. (about 2x this year and it wasn't pretty) Then 2 hrs after my sister's remark, my dear mother asks me how much coffee I consume. A little and a lot. Drink tea every day, but the occasional coffee when out. Why? I want to know. "Well, I just read this article that said that too much coffee can cause diarrhea." I stood up, made some pithy reply about gluten and left.

They all tend to forget what agony my son and I went through and what a miracle it is that we are gluten free and healthy.

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My cousin just glutened me 3 days ago to prove that my doctor was wrong. I don't know how I'll trust her again- never, ever with food- but even generally. My lower half is broken out in dh now and I wish I could "share" it with her!

The rest of my family and in-laws have been very good about it, though.

You can. Take a picture and show it to her. :P

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You can. Take a picture and show it to her. :P

That's what I did last year when my son had been vomiting every day at school. See, for every parent out there that thinks kids shouldn't have cell phones. Well, it came in handy when he took a picture of his vomit so he could show the principal. :D

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My cousin just glutened me 3 days ago to prove that my doctor was wrong. I don't know how I'll trust her again- never, ever with food- but even generally. My lower half is broken out in dh now and I wish I could "share" it with her!

The rest of my family and in-laws have been very good about it, though.

Make sure you go up to her, hug her and then rub some part of you that has the dh on her. Then smile sweetly and walk away lol.

Seriously, that's messed up. I'm sorry you had to go through that.

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its impossible to try to change people although you can take somebody aside and tell them one-on-one it really hurts what they are doing. A lot of people don't even realize what they are saying is really that harmful. I hope it works out well.

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yea that's rough, hope it works out.

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I went through a very bad bout of depression for about two years. People were SO rude about it. When I read your post, I was so feelin' ya, because some folks are just like that....

I'd get "snap out of it" "you need to do something fun" "maybe she needs a man" - people can be so hurtful, and I really don't even think they mean it to be hurtful, maybe they just don't know what else to say or do...

I had very little contact with anybody during that time, but somehow they found ways to stick that blade in whenever they had the chance. My mom has a lactose intolerance that has left her (a very proper Southern woman) in a big mess and embarassing situations more than once. She understands this gluten thing I'm trying.

People, generally in most situations don't understand what they don't know. Hang tough and try to change the topic when that stuff starts up. Try. LOL. B)

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Interesting topic. My in-laws are more supportive than my own family. My mom understands (her best friend was diagnosed a few months after I was), but a couple of my sisters can be rude at times. Not the loud, in-your-face rude, but the subtle, under-the-breath rude. They usually just roll their eyes when I can't eat something. For holidays, they don't even attempt to accomodate me. I get the look of "too bad you can't eat this." I honestly think they are in denial that this is a real disease because they are afraid they might have/get it. I think my mom and brother should both be tested as they (especially my brother) have gut problems and other issues.

My sister-in-law has researched Celiacs and cooks gluten-free meals when I am over. She is very careful about CC and will always have a dessert for me if the rest of the family is having gluten. She is one of the few people I allow to cook for me because she is careful and I have never been glutened by her.

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"Then she looks at my 16 yr old daughter and said to her, "Well, you can eat this, you don't have a problem." DD said yes I do. To which my lovely sister replied that I had brain washed my child."

:o

Unfreakinbelievable. :angry: :angry: :angry: :angry:

Know what my family has decided? They've decided that if I'm allergic to gluten my face should puff up when I eat it.

I thought about explaining it but it just wasn't in the mood. So I left instead.

I can't understand the reactions of people. Especially our loved ones who've seen us not feel good and gradually watched us get better. And who the hell cares what we eat anyway? Does it affect their lives AT ALL? No.

They make me think of someone driving a car down the road, looking at and watching what everyone else is doing and not minding their OWN business and car like you're supposed to be doing, what's gonna happen?

This has got me fired up :angry:

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Your right. Who cares what we do or don't eat!!!! It

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