• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Home Remedies
0

14 posts in this topic

The last few times I've had a break out of this stuff that I believe to be DH, I had to get a cortisone shot to get rid of it. Does anything heal it? nothing else seems to be working and I don't have the $$ for another shot.

any advice is greatly appreciated!!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you checked all your toiletries and cosmetics for gluten? You need to figure out where the gluten is sneaking in. The only real 'cure' for DH is being really strict with the diet. Whenever you get any gluten it will reactivate the antibodies in the skin and it takes a long time for those antibodies to go away. I have been gluten-free now for 8 years, the first couple years a DH outbreak was one of the first signs I had been glutened but after that, once the antibodies had decreased the outbreaks started coming later in the glutening and now when I get glutened I only get at most one or two small sores that heal quickly. Unfortunately there are no real home remedies other than being strict with the diet.

0

Share this post


Link to post
Share on other sites

I would also love to know if there is anything you can do at home to ease the rash once you've had an outbreak!

I was diagnosed about five and a half months ago, and it seems like no matter how hard I try, I keep getting very painful outbreaks. I've done my best to eliminate gluten from my diet, as well as all my personal care products, but nothing seems to work completely. I'm afraid of going on Dapsone, as I'm already anemic and have read quite a few horror stories about the side effects.

Is there anything else we can do?

I would truly appreciate any help. (At this point, I'm getting a little desperate!)

0

Share this post


Link to post
Share on other sites

I would also love to know if there is anything you can do at home to ease the rash once you've had an outbreak!

I was diagnosed about five and a half months ago, and it seems like no matter how hard I try, I keep getting very painful outbreaks. I've done my best to eliminate gluten from my diet, as well as all my personal care products, but nothing seems to work completely. I'm afraid of going on Dapsone, as I'm already anemic and have read quite a few horror stories about the side effects.

Is there anything else we can do?

I would truly appreciate any help. (At this point, I'm getting a little desperate!)

Are you going with a pretty much whole unprocessed diet? Have you checked all meds and supplements? Meds need to be checked at each refill if they are generic and supplements can be labeled gluten-free even if they have wheat or barley grass. Do you have a significant other that eats or drinks gluten items? If you do have them throughly brush their teeth before any kissing. Do you consume distilled gluten grains in alcohol or vinegar? If you do drop them for a bit and see if it helps. Most of us will not react to them but some of us do. It takes a long time for the antibodies to leave the skin and new outbreaks are telling you that something is getting you somewhere.

0

Share this post


Link to post
Share on other sites

Are you going with a pretty much whole unprocessed diet? Have you checked all meds and supplements? Meds need to be checked at each refill if they are generic and supplements can be labeled gluten-free even if they have wheat or barley grass. Do you have a significant other that eats or drinks gluten items? If you do have them throughly brush their teeth before any kissing. Do you consume distilled gluten grains in alcohol or vinegar? If you do drop them for a bit and see if it helps. Most of us will not react to them but some of us do. It takes a long time for the antibodies to leave the skin and new outbreaks are telling you that something is getting you somewhere.

Thank you for your help!

I agree: With new outbreaks, I have to be getting glutened by something. Things seemed to be clearing up (I had a huge outbreak on my face from Christmastime), but just last week, I had an outbreak covering my whole body. :( I was so close! Anyway, to finally figure out what I'm doing wrong, I started a dairy- and egg-free, unprocessed diet. (As far as I know, I don't have a problem with dairy and egg, but I read that you can have other sensitivities you didn't realize that make the healing process harder.) I have also completely eliminated iodine. Basically, all I'm eating is brown rice cooked with water, fruits, vegetables, and almonds and walnuts, which according to their packages were processed in a gluten-free facility.

I don't take any medications, and I switched all my vitamins/supplements to Country Life brand, as the entire line is certified gluten-free by the GFCO. I didn't know these things could be labeled gluten-free and still contain wheat or barley grass?! Isn't that infuriating!

I don't have a significant other, don't drink, and with this new diet, no longer have vinegar. I really hope this elimination diet helps because I love food (and absolutely hate it) and these rashes are so itchy and painful. I'm losing my mind!

Is there any way the heal the rashes faster once you get them? They take so long to go away!

0

Share this post


Link to post
Share on other sites
Ads by Google:


I would also love to know if there is anything you can do at home to ease the rash once you've had an outbreak!

I was diagnosed about five and a half months ago, and it seems like no matter how hard I try, I keep getting very painful outbreaks. I've done my best to eliminate gluten from my diet, as well as all my personal care products, but nothing seems to work completely. I'm afraid of going on Dapsone, as I'm already anemic and have read quite a few horror stories about the side effects.

Is there anything else we can do?

I would truly appreciate any help. (At this point, I'm getting a little desperate!)

I like Weleda Calendula Baby cream and band-aids to prevent picking and help healing. It took my body awhile to become healthy and for my skin to truly improve even after I stopped eating gluten. Lowering refined sugar and increasing whole foods has made a huge difference in my skin. Gluten is in so much that I try to cook everything I eat and avoid restaurants. I try to cook with real garlic and onions and am very careful about flavor/spice mixes. I know you're tired with the anemia but the more you work at cooking and eating pure food the stronger you'll get. I only use honey as a sweetener. If there is any question in your mind as to whether something has gluten I suggest you just avoid it.

0

Share this post


Link to post
Share on other sites

the Dh which i've been suffering from for years finally got better recently when I cut out dairy from my diet. apparantly just a little in my tea was enough to keep it going. Also I was drinking an Amazake rice beverage that says gluten-free, but I found out that xantham gum, which is an ingrediant, is pretty much corn syrup. I cut this out and my Dh is at least 50% better, and as far as itchiness, is even more improved. i really thought that it would never get better. I have been gluten-free for @ 3 years, and my Dh was getting worse the last 6 months or so. Goes to show that you can't be too vigilant when it comes to making sure you don't get exposed AT ALL. I'm feeling really encouraged that it will continue to get better, Dh has really been making my life miserable for so long. I'm so glad to discover this forum, and to learn that there is help and support out there when i've been alone with all these problems and obstacles for so long. If you are doing any dairy, try going without it and see what happens.

0

Share this post


Link to post
Share on other sites

Most of the papers I've read in regards to how soon the gluten free diet has it's major effect on the presence and severity of DH start at the 6-12 months mark. Keep in mind it has to do with your immune systems reaction and if left alone is quite slow to clear up. Since this is an IgA reaction additional food allergies could potentially exacerbate it as well.

I have aloe vera plants in my yard that I gel every few days and it helps a little with the itching. I would not recommend the store bought aloe vera for this cause I have heard the urea in it can just aggravate this particular itching.

(Writing this at 3 in the morning because my DH is itching like hell and I refuse to go on Dapsone)

0

Share this post


Link to post
Share on other sites

Thank you so much for all of your help!

I'm finally starting to feel better after having my worst outbreak ever. (I accidentally ingested a little gluten, and boy, did I pay for it! Don't you just hate it when you know you've messed up, and there is nothing you can do except wait to see how bad the rash is going to be. Ugh)

I will definitely go get some Weleda Calendula Baby Cream and an aloe plant. (I'm not sure why, but I get welts whenever I use band-aids now.)

WheatChef, I know the itching is completely miserable, but know that you are not alone!

0

Share this post


Link to post
Share on other sites

I don't have DH myself. But I do take DPP-IV (DPP-4) if I think I may get some gluten somehow. DPP-IV helps break down the gliaden protein. There is another enzyme called AN-PEP that I haven't tried. AN-PEP is supposed to work better in combination with DPP-IV.

Anyway, I don't know if these enzymes would help with DH symptoms or prevent outbreaks.

0

Share this post


Link to post
Share on other sites

I find the herb sasparillo works well to ease the skin itch as this is a skin and blood cleanser. I use pawpaw ointment and calendula to treat my skin where it itches. For general skin dryness I use an olive oil base with jojoba oil. For hair wash I use henna wax conditioner and johnsons ph balanced body wash, deodorant a tea tree derivative as I tend to react to most normal toiletries. Overall best though is gluten avoidance to improve my skin.I avoid using any steroid based ointments given the long term effects.

0

Share this post


Link to post
Share on other sites

Interesting about urea being aggravating - it is in a lot of lotions for dry skin.

0

Share this post


Link to post
Share on other sites

The last few times I've had a break out of this stuff that I believe to be DH, I had to get a cortisone shot to get rid of it. Does anything heal it? nothing else seems to be working and I don't have the $$ for another shot.

any advice is greatly appreciated!!

I WAS JUST DIAGNOSED WITH THE DREADED (GLUTON) CILIAC DESEASE...AFTER GOING TO THE DOC WITH THIS CRAZY RASH.THE DOC WANTED ME TO TAKE A NASTY DRUG THAT MADE ME VERY SICK..SO I STOPPED IT AFTER 1 PILL.IAM DOING WELL ON THE DIET CHANGE.BUT BEING ALSO DIAGNOSED WITH IC ...I HAVE A DOUBLE WAMMY.AS FAR AS THE RASH...I HAVE SOME CREAM...BUT I FIND NOXEMA MEDICATED CREAM HELPS WITH THE ITCH.IAM PRAying for total deliverance from this nasty stuff.FUNNY HOW LIFE GO'S..IVE PROBABLY HAD THIS CONDITION ALL MY LIFE AND @ 60 YEARS OLD WE FIND IT ..THE BATTLE RAGES ON ...KEEP LOOKING UP! RC

0

Share this post


Link to post
Share on other sites

I would also love to know if there is anything you can do at home to ease the rash once you've had an outbreak!

I was diagnosed about five and a half months ago, and it seems like no matter how hard I try, I keep getting very painful outbreaks. I've done my best to eliminate gluten from my diet, as well as all my personal care products, but nothing seems to work completely. I'm afraid of going on Dapsone, as I'm already anemic and have read quite a few horror stories about the side effects.

Is there anything else we can do?

I would truly appreciate any help. (At this point, I'm getting a little desperate!)

I TRIED DAPSONE ...ONE PILL...I HAD A HEADACH FOR 36 HOURS ,UNABLE TO CONSENTRATE,BLURED VISION, STOMACK ACK... BAD STUFF....AND THE BLOOD TEST SHOWED I COULD TAKE IT ...NO THANKX..I HAVE FOUND NOXEMA MEDICATED HELPS WITH THE ITCH.RC

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,416
    • Total Posts
      930,442
  • Member Statistics

    • Total Members
      63,839
    • Most Online
      3,093

    Newest Member
    Cjm1985
    Joined
  • Popular Now

  • Topics

  • Posts

    • http://www.cureceliacdisease.org/faqs/ You can also find lots of information on celiac at the University of Chicago celiac site.  One test they suggest is the anti EMA antibodies.  I don't see that one listed in her results.  Probably because it is more expensive to do.  So they may have skipped it.  The other test they usually do is the total serum IGA levels, which is used to prove that the person's immune system actually makes IgA antibodies.  Some people don't make IgA antibodies, so the IgA tests are useless in them. It looks to me like she makes IgA though, if this is the serum IgA result. IgA 133 mg/dl Reference range 33-200 There are also gene tests they can do.  The genes indicate the possibility of developing celiac disease, not the automatic presence of celiac disease.  About 30% of people in the USA have one of the genes for celiac disease, but only about 1% develop celiac disease. Some of the celiac genes are associated with other autoimmune conditions besides celiac disease.  So there are lists of AI associated conditions with celiac disease.  Sometimes called related conditions. http://www.drschaer-institute.com/us/celiac-disease/associated-conditions-1051.html
    • Blood was drawn this afternoon... they said I could get results tomorrow or even the next day! I also have a GI appt scheduled for June 9th. I am so glad I will have at least some kind of answer pretty soon. I'll let you all know. Thanks again for being so helpful!
    • Thank you so much for those links, I will check into it. Her pediatrician told me this afternoon she is wanting to repeat the bloodwork since that one test was elevated. I'm relieved that her pediatrician didn't dismiss it like the other dr in the practice did.
    • http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
    • I have been having issues with gluten for quite some time now and decided to go gluten free back in October, I finally got the celiac blood test a couple weeks ago and it came back inconclusive. My doctor referred me to a gastroenterologist who I saw today, she told me I'd have to eat gluten rich foods for 1 month and then have another blood test done....of it comes back negative she said I'd need to eat gluten another few weeks (up to another month) and then do a scope and biopsy....this would be hell on me as I have severe cramping and nausea when I am exposed to gluten.  I haven't actually eaten anything that is straight gluten like bread so I'm not sure what would happen. She gave me the option to hold off and continue my diet or go through 2 months of pure gluten exposure (and pain) my question is has anyone been faced with this? Should I just continue with my gluten free diet and assume I have it or is the diagnosis really that important? Doc says based on my symptoms and reactions I more than likely have it. 
  • Upcoming Events