• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Advice On Cruising?
0

6 posts in this topic

Well. On the upside? My husband working like a madman and putting in obscene hours has been recognized. We're going on a mandatory company cruise for the top workers (no. He doesn't work in finance or the car industry. No bailout money here! lol) to someplace warm and sunny. As someone looking at 30+ inches of snow... and another possible foot coming, this sounds lovely.

But panic is setting in. He won this once before a few years ago and I had a TERRIBLE time dealing with food. Before the celiac diagnosis too! I'm allergic to shellfish, bananas, and coconuts (great. There goes 75% of the food served in the Bahamas...) and even with prior notice - I got sick at every meal. Lost 8 pounds in 5 days. Stupid things too - plain white rice should be fine, right? Yeah, well not if they stick real crab claws in the center of it as decoration. And no, telling me to "scrape around it" didn't really help. I practically lived on benydryll for the week. And the number of times I had to use an epi pen started to make me look like a clumsy heroin addict!

Now with celiac added on... I'm worried I'm just plain screwed. I can't NOT go. And they say on their website that, if given 45 days notice, they can manage a gluten-free meal plan. But... but... oh heck. Has anyone done this successfully? Can you pack your own food for a cruise? When going into international waters... what's allowed? Or do I need to start preparing myself for a 5-7 day span of living on protein bars and bottled water?

Might make the bathing suit nightmare less scary to think about.... oh crap! Bathing suits! As if I wasn't panicked enough!

No one deserves this more than my husband - and I'm so proud of him I could burst. I just wish I didn't feel like this is a gift with the sword of Damocles hanging over it!

Any advice, warnings, or suggestions would be greatly appreciated. I'm kinda working myself into knots over something I should be grinning like a loon over!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Dh and I did Norwegian Cruise Line this summer and we both did fine. I'm off dairy and he's gluten-free, so when we'd go and sit at the nice sit down restaurant for dinner the matire d would bring out the next day's menu for lunch and dinner and we'd order both then, so they had plenty of time to fix them and substitute if needed. We didn't do the buffet line much except breakfasts the first and last day, but we made it the entire week without dh getting sick. Just make sure to call and confirm that they know they're getting a traveler with multiple food allergies, and if needed, bring up the previous trip so that they understand how serious this is. And if you resort to your epi pen, I'd be screaming for the cruise line to fly me home on their dime, due to them poisoning you

0

Share this post


Link to post
Share on other sites

I think the part that has me the most worried is this isn't a trip my husband and I have any control over the planning. If it shakes out like the last time, we'll get a packet from his job three weeks (no where CLOSE to what the cruise lines own website says it requires for prior notice of special diets) that tells us where to go and when we'll leave. Everything from the ports of call, to the seating times and places are out of our hands. He'll have scheduled "Meetings" (gotta do that for the tax write off for the company) each morning and the rest of the days are pretty structured too... without a whole lotta choice for us. We'll get a form to fill out a few weeks in advance - but there is no one to call, no one to plan with. And to add to everything, we either eat every meal on schedule without a lot of choices... or have to find the money to pay separately for each meal at the restaurants. (IE - the company pays for one, the other we'd have to finance. And since this isn't a trip we have planned for... well. Three years into our marriage, we aren't really at a place where we have money put aside for cruises. To fix the roof? Yes. Cruising... not so much.)

I feel like such an idiot over this. I SHOULD be over the moon - but instead, I just kinda wish we weren't going. Toss on the fact that HIS ticket is paid for - but they will take mine out of his paycheck for several months... and we have to find the money for the taxes on it too. (At least this year we know that ahead of time - the last time we had a "fun" three months where his paychecks were less than a quarter of his normal take home pay.)

I wonder if anyone has any suggestions for food that can be packed for a week? What I should/can stock up on?

0

Share this post


Link to post
Share on other sites

I think the part that has me the most worried is this isn't a trip my husband and I have any control over the planning.

...

I wonder if anyone has any suggestions for food that can be packed for a week? What I should/can stock up on?

Magpie... we just got back from a cruise on Royal Caribbean. I was pretty worried, too, but my worries were unfounded. I hadn't notified them in advance because I hadn't even gotten my dx yet. However, I knew I needed to stay gluten-free well before the dx. So, here's what happened: The moment we stepped foot on the boat we went to talk with the Maitre D'. I explained that I needed to eat gluten-free and he said "No Problem". Just like that. The first day was a bit of a crap shoot (pardon the expression) because it involved the buffet. However, I tackled a staffer who looked like he was in charge (turned out to be one of the chefs... lucky!) and told him of my needs and asked what was "safe" in the buffet. We walked the entire length and both came to the conclusion that nothing was. So he said "Wait here" and dashed into the kithen. 3 minutes later he emerged with a plate of freshly boiled seafood and steamed rice, untouched by human hands. Of course the seafood would send you dashing for your epi, but you get the idea. They will bend over backwards to make sure you eat within your restrictions.

The rest of the cruise we ate in the main dining room. Breakfasts and lunches I would ask the waiter for something gluten free. He/she would then fetch whoever was the assistant Maitre D' at that meal and they would organize something in the kitchen. Dinners were even easier, as it was the same wait staff. Each night they would bring me the menu for the next night and I would choose what I wanted. If there was nothing on the day's menu, they always had broiled chicken breast, steamed rice and veggies. They had gluten free bread available already, but I asked if I could have some without dairy and they actually BAKED me a loaf, which my waiter brought to me every night when everyone else was having rolls. Pretty special.

You didn't say what cruise line you'll be on, but if it's RC then rest assured you're in good hands. I have heard similar stories from Princess cruisers, too.

As for food to bring, I brought my own cookies and crackers. You're not allowed to bring fresh fruits or veggies on board, but pre-packaged dry goods are fine.

So try not to worry -- just be very clear what your needs are and I'm sure they'll be more than happy to assist. That's their thing! Have fun!!!

0

Share this post


Link to post
Share on other sites

First, do you know which cruise line? I believe most cruise lines do pretty good with gluten free these days. But you do have to be careful, use your honed celiac sense and ask questions. Also get Glutenease or some other gluten digestive enzyme and take it with every meal to help with cross contamination. When in doubt don't eat it. Ask questions about the preparation. Don't let them toast the bread unless they tell you they have a dedicated toaster.

I did a 107 day cruise on Princess with pretty good success, only having problems when they changed the crew out and I had to re-educate. I also did 28 days on Celebrity with good success also.

The cruise lines will make their own gluten free bread. It generally isn't too good so bring your own if you have a loaf you like.

Hard boiled eggs are great. Don't allow them to pull them from the buffet due to cross contamination of the water with the tongs being used on gluten items. Omelets, bacon, sausage, potatoes, and fruit are all good for breakfast.

I often got a room service gluten free turkey sandwich with potato chips for lunch. I often didn't want to sit in the dining room and depending on the buffet I stayed away from it. The Celebrity Equinox had some buffet areas isolated (dried fruit, cheese, indian food) from gluten so I could eat from these buffet areas.

Diners were easy. You can pre-order and get just about anything. Most even have gluten free pasta. However it you don't preorder it is easy to get their anytime chicken or steak, baked potato and veggie. I like the french onion soup minus the bread. I also had good success with salads and they have some creative appetizers that can be modified to be gluten free.

Deserts were often ice cream, creme brulee, mousse, meringue or marzipan. Sometimes you have to tell them what you can have as they seem a bit confused about what types of deserts have no gluten in them.

In terms of things to take. Take enough protein bars that you have meals for all your shore excursions. I like the Kind bars. I also take some prepackaged Ian's gluten free cookies so when everyone else is having something yummy I can to.

I always ask when they deliver the meal, is this gluten free. I also check when in doubt, for instance with room service to make sure they didn't pull anything from the buffet. On Celebrity if there was something that was gluten free but had been potentially cross contaminated they would go to the back and get me one fresh.

Let me know if I can answer any questions.

Best,

Michelle

0

Share this post


Link to post
Share on other sites
Ads by Google:


I was just diagnosed with Celiac Disease this week. I will be going on a seven night Alaskan Cruise this May. I am excited for the Cruise but nervous about the food. I will be on Princess Cruise Lines. Since I'm new to the diet I appreciate reading the advise you all have about how to have a fun trip while avoiding gluten!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,796
    • Total Posts
      932,499
  • Member Statistics

    • Total Members
      64,281
    • Most Online
      3,093

    Newest Member
    Michaeldp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
  • Upcoming Events