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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Gluten Free For 8 Months, Starting To Feel Sick Again
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6 posts in this topic

So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

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So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

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Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

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Just thought I would add my two cents! I've been gluten-free for 5 years. In the first year I had to stay away from soy as the protein was too similar to gluten. I also had to really watch what was coming in the house, my family did not go gluten-free. If someone makes a sandwich on the counter, and you come in later and make a gluten-free one, then some of the crumbs can easily get on your food. i know from experience, that any thing cosmetic can make you sick if it has wheat in it. You really have to check everything. It seems like when you first go gluten-free that there is a grace period, perhaps it's the shock to the system not having to deal directly with the gluten... But usually, a few months in, the body is able to detect the smaller amounts of gluten in things. I now react very quickly to cross contamination, where in the beginning, I did not at all. Hang in there. It gets much easier!

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It could be a reaction to another food intolerance. (I react to sorghum.)

I was happily gluten free at least 5 years and recently started getting nauseas, pains, and vomitting. I was tested for some different things, but it was my gallbladder. I had it removed 2 and half weeks ago.

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Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

I would look very closely at cross contamination. Hopefully you've got your own dedicated toaster and she's not cooking gluten in your dedicated cookware with your dedicated utensils, but you also should look for crumbs and flour dust and all the other possible sources of contamination.

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