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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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jcgirl

Parvo B19 & Mono

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I started a thread asking about hypoglycemia the other day. Well, went to doc today and he said my fasting level (85) was normal. He did say that I have parvo virus B19 and had mono within the last few months. What????????????? I discussed my GI doctor's ever changing dx and he asked if I had a biopsy done. Didn't have one because GI won't do it, says colonascopy was good enough and decided it was only IBS. Oh I also have acid reflux. GI did some blood work back in January and said white cell count elevated but didn't follow through!!! It is like you have to tell your doctors what to look for anymore. How discouraging is that. So anyway he told me to follow through and get a biopsy to confirm. I don't want to go back on gluten though. Going to do enterolab (cut vacation short)

So, does mono or parvo virus B19 have symptoms of hypoglycemia? Are we more suseptable to these. Has anyone else had parvo virus B19?

Any suggestions for doctor's in upstate NY? :(

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Mono triggered my celiac to activate...I was completely healthy until getting mono which started the rollercoaster ride. Could you have possibly had that which then activated your celiac to start as well?

With mono I know some of the symptoms I had were light headedness, fatigue, nausea, and there are some more I had as well. There are many symptoms you can get with mono so some could possibly resemble those of hypoglycemia.

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My celiac symptoms have been going on for years, at 10 years for sure, maybe even more. Is there treatment for mono, my doctor told me to go home and rest. Can't do that though, have to work.

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Hmm then sounds like mono did not trigger celiac.

Nope there is no treatment for mono :( Just drink plenty of fluids and try to get rest when you can. I started needing alot more sleep after I got mono.

Did your doctor say if it was active or if you had it in the recent past?

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Looking back, I know the celiac was around for decades, but at a level that no doctor even considered it. It took getting mono at 35 for my celiac disease symptoms to become full blown. The fatigue was miserable. I constantly felt as though I was in a hypoglycemic situation. I still get nasty headaches and jitters if I don't eat regularly and properly.

My daughter also had mono as the trigger for her celiac disease. She had recurrent EBV for two or three years until she had been gluten-free for an extended period of time and her immune system stabilized.

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My doctor said that I had it in the recent past. As for parvo B19 (fifth's disease) that is current I guess. I feel the hypoglycemic symptoms and very sluggish. My son who is waiting to see GI has been home vommiting and diarehia all week. Also recurring boils for two years. Any chance this can be mono or fifth's?

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I had mon in 2000 and the specialists determined that it was parvo B19 that caused it. Interesting, looking back it, this is the point that I remember my symptoms, whicgh I thought were from ibs, became severe and persistant.

Ally

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I didn't realize that the parvo thing was Fifth's! I have another child who gets it off and on. He is also realizing little by little that he will probably be diagnosed at some future point because he is already noticing small reactions when we eat out of our home and he is allowed to pig out on gluten stuff (we keep a totally gluten-free house so he is gluten-free with us at home).

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I have been trying for a while to make the connection between celiac disease, EBV, CMV, Parvo B19, Low Red Blood Count, Low Hemoglobin, Hematocrit, Low MPV. Bingo - there is a connection. With IV iron and the new oral iron EZfe my Hematologist got my ferritin to almost 300, total iron over 82. I still feel rotten and my hair is falling like crazy. I have had EBV, CMV, Parvo - no active infections. My immunologist said past infections affect you like they are active. Of course he said to rest, rest, rest and don't allow stress in my life. I also have lupus and hashimotos.

... let me get back to the point.

I agree celiac either triggers the viruses or the viruses trigger celiac. For me I believe my viruses triggered celiac. I have been anemic all of my life. I think now that my anemia is Aplastic.

I found an article about it at the link below. I also cut and pasted some information about causes.

http://www.nhlbi.nih.gov/health/health-topics/topics/aplastic/causes.htmlAcquired

"What Causes Aplastic Anemia?

Damage to the bone marrow's stem cells causes aplastic anemia. When stem cells are damaged, they don't grow into healthy blood cells.

The cause of the damage can be acquired or inherited. "Acquired" means you aren't born with the condition, but you develop it. "Inherited" means your parents passed the gene for the condition on to you.

Aplastic anemia is more common, and sometimes it's only temporary. Inherited aplastic anemia is rare.

In many people who have aplastic anemia, the cause is unknown. Some research suggests that stem cell damage may occur because the body's immune system attacks its own cells by mistake.

Acquired Causes

Many diseases, conditions, and factors can cause aplastic anemia, including:

Toxins, such as pesticides, arsenic, and benzene.

Radiation and chemotherapy (treatments for cancer).

Medicines, such as chloramphenicol (an antibiotic rarely used in the United States).

Infectious diseases, such as hepatitis, Epstein-Barr virus, cytomegalovirus (si-to-MEG-ah-lo-VI-rus), parvovirus B19, and HIV.

Autoimmune disorders, such as lupus and rheumatoid arthritis.

Pregnancy. (Aplastic anemia that occurs during pregnancy often goes away after delivery.)

Sometimes, cancer from another part of the body can spread to the bone and cause aplastic anemia."

Does this make sense? Any thoughts? And, where do we go from here?

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I have been trying for a while to make the connection between celiac disease, EBV, CMV, Parvo B19, Low Red Blood Count, Low Hemoglobin, Hematocrit, Low MPV. Bingo - there is a connection. With IV iron and the new oral iron EZfe my Hematologist got my ferritin to almost 300, total iron over 82. I still feel rotten and my hair is falling like crazy. I have had EBV, CMV, Parvo - no active infections. My immunologist said past infections affect you like they are active. Of course he said to rest, rest, rest and don't allow stress in my life. I also have lupus and hashimotos.

... let me get back to the point.

I agree celiac either triggers the viruses or the viruses trigger celiac. For me I believe my viruses triggered celiac. I have been anemic all of my life. I think now that my anemia is Aplastic.

I found an article about it at the link below. I also cut and pasted some information about causes.

http://www.nhlbi.nih.gov/health/health-topics/topics/aplastic/causes.htmlAcquired

"What Causes Aplastic Anemia?

Damage to the bone marrow's stem cells causes aplastic anemia. When stem cells are damaged, they don't grow into healthy blood cells.

The cause of the damage can be acquired or inherited. "Acquired" means you aren't born with the condition, but you develop it. "Inherited" means your parents passed the gene for the condition on to you.

Aplastic anemia is more common, and sometimes it's only temporary. Inherited aplastic anemia is rare.

In many people who have aplastic anemia, the cause is unknown. Some research suggests that stem cell damage may occur because the body's immune system attacks its own cells by mistake.

Acquired Causes

Many diseases, conditions, and factors can cause aplastic anemia, including:

Toxins, such as pesticides, arsenic, and benzene.

Radiation and chemotherapy (treatments for cancer).

Medicines, such as chloramphenicol (an antibiotic rarely used in the United States).

Infectious diseases, such as hepatitis, Epstein-Barr virus, cytomegalovirus (si-to-MEG-ah-lo-VI-rus), parvovirus B19, and HIV.

Autoimmune disorders, such as lupus and rheumatoid arthritis.

Pregnancy. (Aplastic anemia that occurs during pregnancy often goes away after delivery.)

Sometimes, cancer from another part of the body can

spread to the bone and cause aplastic anemia."

Does this make sense? Any thoughts? And, where do we go from here?

I don't know where you go but I had Parvo B19 and it was BAD. they thought I had Lupus or RA.

A few years later I started trying to get pregnant and the Endometriosis hit.

After I had my son the Hashis hit.

After Hashis (6 years?), I'm figuring out Celiac.

I've always assumed Parvo was the trigger but I can look back to childhood and see things that could have been Celiac. I don't know.

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