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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Hearing Voices?
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My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)

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Oh my. I don't think I have anything to add, only that my thoughts and prayers are with you. That must be horrible. It's always worse when it is your baby. I would educate, educate, educate, to make sure he doesn't get accidental gluten. Poor guy. Maybe a visit to the Ped is in order, too. I am praying it gets better soon!

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Yes gluten sure can cause all kinds of neurological issues including the ones you have mentioned. I am very glad to hear that he is doing so much better on the diet. Hopefully the effects of his glutening will resolve soon. Talk to him and explain that is what it is and that it is a limited effect and will go away. Perhaps that will help him to feel better about what is going on. I know it helps me to get through those patches after a glutening to know that they will go away soon.

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Oh I'm so sorry for what your son has been going through, and you as well. My son is only 4 and has major attentional issues, some sensory and health issues. Since having him gluten free he's almost like a different child. He told me he would hear things and cover his ears. When we got out of the car at night his hands would literally be plastered to his ears because he was afraid of the crickets and frogs, even when there weren't any. Now, I don't know if that was more sensory oriented as he is so young.

I can tell you about my own experience prior to being diagnosed. Over the past year I gradually got worse and worse mentally. I was in a complete fog. I was getting SOOO anxious over things that cause me no anxiety now. I had what I can only describe as static in my head, an almost constant noise. I do remember hearing things, noises. I never heard voices but I did hear things that I knew weren't real. I also have to tell you that I have silent migraines as well, which may have been part of my symptoms. I didn't find that out until Sept 09. I started treatment for those which helped a bit. The only thing that's truly helped is being gluten-free. My silent migraines and most of my other symptoms are almost gone.

It sounds like you're on the right track with your son. It took my son and me a while to get to this answer too. I would definitely talk to his doctor about it. Also, in my experience, if they don't agree with you about the gluten, just trust your gut. Go to a different dr if you need to or just trust that you are doing what is best for him. You are his mom. You know him the best and you are his advocate. Hope he starts feeling better soon. :)

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My nine-year old son has been gluten-free (and mostly cf) for 10 weeks due to a suspected intolerence -- he tested negative for Celiac. His symptoms are numerous: history of diarrhea/constipation, anxiety with panic attacks, ADD, nightmares, difficulty sleeping, tics, depression. Since going gluten free his sleep has been sounder between wakings, panic attacks disappeared and anxiety/depression is much improved. Two days ago he had his first obvious "glutening" -- lots of movie theater popcorn. Since then, he has tossed and turned constantly in his sleep, has had a panic attack, and has screamed in terror after hearing voices in his bed. Has anyone heard of gluten causing auditory hallucinations like this? Any idea when things might return to the status quo? As bad as I feel for my son, the magnitude of his reaction to this gluten infraction makes me feel like I'm doing the right thing for him. (Haven't felt that way very often lately!)

I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.

******************************************

720 North Tustin Avenue

Suite 104

Santa Ana, CA 92705-3606

Phone: (714) 565-1032

Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)

Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called

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I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep up a brave front.

It's been very hard to convince her it is gluten related but i think she may be coming around to it. Her stomach pains are unbearable with diarrea and sweats, she is litterally exausted after that kind of episode and sometimes needs to lie down.

Funny thing is when we did the Celiac panel she tested in the low end and so officially it means she does not have, it but i know better.

In any case i wish you luck and perserverance it's very hard, i am a single mom also dealing with my own firbromyalgia and candida/milder celiac issues.

I want to post this site so perhaps if you take it to a doctor is could be of assistance.

******************************************

720 North Tustin Avenue

Suite 104

Santa Ana, CA 92705-3606

Phone: (714) 565-1032

Fax: (714) 565-1035

The Celiac Disease of Mental Illness

(derived in large part from a lecture James V. Croxton, M.A. summer 2002)

Although often referred to as "wheat allergy," Celiac Disease (also called Celiac Sprue) is not an "allergy" but rather an intolerance to the protein in gluten, a substance found in wheat and other grains. For susceptible people, gluten injures the small intestinal lining (called

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It is also possible that what he experienced was a hypnagogic hallucination, which is related to the onset of sleep (or wakefulness), when the body is awake but the brain has entered a dream-like state. I have these all the time, mostly when falling asleep--I'll see things, like bugs or lobsters on the ceiling or something, hear voices or actually TALK to people who aren't there, or have strange thoughts like "ack I'm in someone else's house I need to get out" and run into the hall... only to "wake up" minutes later and realize that nothing is out of the ordinary. These are different from dreams in that your eyes are actually open, you're seeing things that are really there on top of things that aren't, and your body is usually not paralyzed yet so you will move to react to what you see/hear/think.

I think that this may be more likely considering that he was in bed at the time, presumably falling asleep. I wouldn't be too worried about it unless it happened again when sleep was not involved.

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Great info. Do you by any chance have a link to a webpage for this. I would love to bookmark it not only for further reference but also to take copies to my psychiatrist who is very interested in material of this sort.

I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.

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Thank you for this!

I am sending copies to all the teachers and parents I know!

You're welcome :)

I really like your quote .."then just eat meat".!

I am finding myself in a similar place in my life, only meats and fats seem to keep my stable and so on.

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I am very glad that it was of use, and here is the website :

www.drkaslow.com/html/gluten-brain_connection_.htm

Take care, Kurzemiete.

Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow.com/html/gluten-brain_connection_.html

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Thanks. The address needed tweaking so I did so and have given a link.

http://www.drkaslow.com/html/gluten-brain_connection_.html

Thank you :) ! When i put the link up it looked 'funny' like yours does :blink: , well i am not such a pro when it comes to links and how they appear abbreveated , so i truncated it. I am glad you got it up in proper form :lol:

I love your quote very much about courage it's important to remember that, sometimes all it takes is for us to keep coming back.

I know it's totally off topic but there is avery nice song called "courage is"

the link is

Take care,

Kurzemiete

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Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D

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considering that I "woke up" at 3:30 AM last night with my shirt off in the bathroom, looking for bugs on my chest, I want to reiterate the possibilty of hypnagogia being involved in this somehow.

My chest itched at night, and in my half-asleep state I thought I had fleas and got up into the bathroom to look for them before I "woke up."

I also see and hear things when I am in a state like this. If this only happens when your son is falling sleep or waking up, it is something to consider. If it happens at other times as well, then this is less likely.

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Kurzemiete,

Oh my gosh! That is a very beautiful song! Thank you.

Thanks for liking my quote, seems I do better as a carnivore than anything else. :D

I am so glad you like it :)

I too seem to do better when eat proten ~ unprocessed good, fats,eggs etc and low glycemic veggies.

All the best to you.

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