• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long After Diagnosis Did Your Child Start Gaining Weight?
0

9 posts in this topic

My 3 year old son was diagnosed six months ago. Since then, we have kept him on a gluten-free diet and he still has not gained any weight or grown in height. I am starting to worry as the GI told us it would take around 2-3 months of eating gluten-free and he would start gaining weight.

We have scheduled a follow up appt with his pediatrician to do some more bloodwork. I am wondering how long it took for your kids to start gaining weight - after the diagnosis?

Also, did any of you find success with growth hormones or supplements? I don't know anything about these and I'm wondering why the dr's have not recommended them. My son - now almost 4 in a few months - is 30 pounds.

Thanks in advance for any insight you may have.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Daughter was 10.5 when she was diagnosed and started gaining weight again within a month I think she had put on 6 pounds. She is still pretty slim but within normal for her age and height. The pediatrician tells me that kids are heavier in general now, so normal looks thinner. My daughter has always been super tall, but I am 5' 9 and her dad is 6' 4" so that is to be expected.

gluten-free is pretty tricky in the beginning I had a head start since my nephew had celiac for a couple of years before we found out my daughter had it too. Is your son better in other ways? I think the healing is different for everyone.

0

Share this post


Link to post
Share on other sites

My son was dx at 13 months old. He was at 0% on his growth curve. Six months after he was dx he was still on the same curve, slightly above 0%. He is now almost 3 years old. His weight gain has picked up slightly. He's now weighs 28 pounds. I'm not sure where that will be on his growth curve. His check up is next month. He never had a growth spurt. He never outgrew shoes and clothes in a few months. He never had the amazing turn around that so many kids do. I remember feeling soooooo frustrated. I searched the forum for some stories like mine and all I could find were parents in awe at how fast their kid was "catching-up." It makes it even harder when you're being told that your child must still be getting gluten. I made my kitchen completely gluten free. I researched tooth-paste, shampoos, wouldn't let him near the catfood, never let him eat food from anywhere but home. . . It is a learning process and you probably will make some mistakes but don't be hard on yourself.

How are your son's BM's? Were they abnormal prior to being dx? Was he dx by labs or by biopsy?

I feel that probiotics really help my son's digestion. He still gets probiotics pretty much every day.

If absorption of nutrients is a problem then some supplements my be helpful. My son is lactose intolerant so he get Calcium and Vit D supplements.

0

Share this post


Link to post
Share on other sites

My son was dx at 13 months old. He was at 0% on his growth curve. Six months after he was dx he was still on the same curve, slightly above 0%. He is now almost 3 years old. His weight gain has picked up slightly. He's now weighs 28 pounds. I'm not sure where that will be on his growth curve. His check up is next month. He never had a growth spurt. He never outgrew shoes and clothes in a few months. He never had the amazing turn around that so many kids do. I remember feeling soooooo frustrated. I searched the forum for some stories like mine and all I could find were parents in awe at how fast their kid was "catching-up." It makes it even harder when you're being told that your child must still be getting gluten. I made my kitchen completely gluten free. I researched tooth-paste, shampoos, wouldn't let him near the catfood, never let him eat food from anywhere but home. . . It is a learning process and you probably will make some mistakes but don't be hard on yourself.

How are your son's BM's? Were they abnormal prior to being dx? Was he dx by labs or by biopsy?

I feel that probiotics really help my son's digestion. He still gets probiotics pretty much every day.

If absorption of nutrients is a problem then some supplements my be helpful. My son is lactose intolerant so he get Calcium and Vit D supplements.

0

Share this post


Link to post
Share on other sites

Thanks everyone for your feedback. My son was diagnosed by biopsy. It is frustrating that my son is not growing when we thought he would "catch up" in a few months. I know everyone is different, but I am sad that he is so tiny and may be the tiniest one in his class for a while.

We are going to the nutritionist at children's hospital next week and she will make sure we are doing the "right thing" at home - no cross contamination, etc. I have been careful so far, but I wouldn't be surprised if we were also making some mistakes. We do not have a 100% gluten free home, since my husband and others in our house sometimes eat gluten. I wonder if we have to ban it altogether?

His BM's are much better after we went gluten-free. That's why we thought we were doing okay. He is much better in other ways - eczema improved, better mood, etc. Just not growing!

Good tip about the probiotics - I just talked to a friend and she gives her child Benecalorie, which is a gluten free calorie supplement. I just ordered some and hope that will add some weight.

0

Share this post


Link to post
Share on other sites
Ads by Google:


My son was diagnosed at 3 and was at the 5% for height and weight. He did gain some weight in the six months following, but he is still close to the 5%. He is about 29 lbs. The GI doctor thought that he may just be small, as my husband and I are both short, and that he is therefore just following his genetic destiny versus having an additional disorder. He has gained a few inches, but again, still seems to be on his curve. I think the problem comes if he is continuing to drop further below the curve.

0

Share this post


Link to post
Share on other sites

My kiddo took about a year to be really back on track with growth. I think it's a misnomer that they start sprouting up right away with the diet. It takes a while for all that other stuff to heal. My daughter was diagnosed at 9. She was never below the 50th percentile for height or weight--but she was definitely not growing as well as she should have been. I didn't see a really good growth spurt in her until she was about 10 1/2. Then it was like growing mad-town. She went from 4'8" to 5'1" in about 10 months! and is in the 50th percentile for weight and 95th percentile for height, and that is fine by me!

0

Share this post


Link to post
Share on other sites

I know this is an older post, but I was wondering about the Benecalorie. Has anyone had any luck with it for weight gain, or with PediaSure? My son is 9 months post diagnosis and not gaining as the dr, and I would like!

Thanks!

Thanks everyone for your feedback. My son was diagnosed by biopsy. It is frustrating that my son is not growing when we thought he would "catch up" in a few months. I know everyone is different, but I am sad that he is so tiny and may be the tiniest one in his class for a while.

We are going to the nutritionist at children's hospital next week and she will make sure we are doing the "right thing" at home - no cross contamination, etc. I have been careful so far, but I wouldn't be surprised if we were also making some mistakes. We do not have a 100% gluten free home, since my husband and others in our house sometimes eat gluten. I wonder if we have to ban it altogether?

His BM's are much better after we went gluten-free. That's why we thought we were doing okay. He is much better in other ways - eczema improved, better mood, etc. Just not growing!

Good tip about the probiotics - I just talked to a friend and she gives her child Benecalorie, which is a gluten free calorie supplement. I just ordered some and hope that will add some weight.

0

Share this post


Link to post
Share on other sites

My son was only 41 pounds when he was diagnosed at age 8. He is now 10 and weighs 57 pounds. He gained weight very quickly at first and we were thrilled. He hasn't gained any weight for a few months now. He is still small for his age but it's not so painfully obvious now.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,795
    • Total Posts
      932,489
  • Member Statistics

    • Total Members
      64,281
    • Most Online
      3,093

    Newest Member
    Michaeldp
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sounds like gluten ataxia, or the form of celiac I have where it also attacks my nervous system and brain. I would get a celiac test if I was you, you have to be eating at least half a slice of bread or a few crackers for 12 weeks before hand and go to your doctor and ask for a full celiac panel. From there you need to be eating it for still and get a endoscope with biopsies to check for intestinal damage. Now to help with the mental issues I will tell your right now a good b-vitamin supplement will help you with the fog and depression a bit. I suggest Liquid Health Stress & Energy and the Neurological support one. Take 1 tbsp each 3 times a day. You will notice a huge difference in it. Being liquid it is easier absorbed by your body, if you have celaic then your intestines will also be damaged making where getting these nutrients is more difficult for you body. NOW as to the cheesy bread I hear you on that. I love eating Juilans bakery toasted read with dayia cheese on it.... I was using hte provolone for awhile but am now using the almond bread with daiya dairy free swiss. Love a good cheesy toast and egg white open sandwich with some avocado myself. I also posted a recipe in the baking section where you melt the daiya dairy free cheese shreds and mix them in with the flour blend I use that is gluten-free and make cheesy bread rolls out of them. I have a garlic and cheddar one.....you name just inspired the idea of using a bit of turkey bacon in the cheddar biscuit version.....would be epic
    • I have used Voltaren before, and I experienced that little rush afterward. I never had any reaction to it, and I can't even use makeup that has wheat germ oil in it. I have also had some fairly violent reactions to other medications. That little rush faded after a while, but after an increase in the strength of the gel I did feel it again for a day or two. So from my perspective, it should be ok.
    • I know some people who have tried straw bale gardening, especially for strawberries. I don't know anyone that has had much success with it. All of them thought it was more trouble than it was worth.
    • Hello everyone! This site is awesome! I've been experiencing anxiety, depression and an over all since of non well being. Although I have been going through some rough times but this has lasted for 6 long months. My I've had many blood tests done and this one was concerning me. My CBC iron panel thyroid panel and all others have come out just fine. Does anyone have insight on the following results. Please help and thank you! I also tested positive for some Corrine food allergies. IgE Food w/Component Reflex II Immunoglobulin A, Qn, Serum 435 HIGH   Ref Range: 90-386 mg/dL t-Transglutaminase (tTG) IgA <2 Ref Range: 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 . Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstr- ated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Endomysial Antibody IgA   Negative     Ref Range: Negative 
    • Hi,   my history is the following: I used to eat a lot of foods with gluten & cheese together. They would make me seriously happy and and I was extremely content just eating a pizza and bread with cheese and things like this... Now obviously I'd have cycles... where I eat tons of gluten/cheese foods in combination... feel super content and thats it... Then the effects would wear off and I had to start a diet.. where I'd do modified versions of fasting or so for a few weeks... During that phase I'd get very depressed... but after a few weeks of no-gluten... I'd eat bread with cheese again and I felt like I was in heaven. I'd get extremely high from this stuff... like seriously I'd feel amazing... (I guess it's the morphine like effects of this foods)  but after some when I hit age 22 or so I started to get serious trouble... ....   I started getting serious neurological issues from it... like I could't put my words together... I'd have paranoia & feel like everything is unreal... I've been diagnosed with numerus psychiatric issues since then... My main problem right now is that my brain isn't functioning... I can't comprehend what people are saying and when I want to say something my words don't come easily... Like if I am in a conversation for a longer time this issues is barely noticable at all... But if I wake up... and I try to talk... there's no way.. if I haven't talked for a while it's like you could ask me and I couldn't comprehend what you say and couldn't put my words together in the way I'd like to... I feel kinda stupid sometimes... because I know I'm rather smart but when I have a conversation my speech seems very unsophisticated... --- I tried to change my diet.. with varying success... like I would feel great in the morning and feel completely depressed in the evening for no apparent reason whatsoever... at all! And I feel I can attribute this to traces of gluten which feels like this:   ---- When I have traces of gluten inadvertently... I suddenly feel like everything is kind of unreal around me... I feel depressed in a "opiate withdrawal" kind of way... I don't know how to explain it... it's just painful in the sense that I can't just enjoy having a conversation... like I have a conversation but I don't feel "the thrill"... everything is totally bland and I just feel depressed in the background... like I don't want to do anything and no matter what I do.. it feels completely pointless because I can't comprehend why I suddenly feel this way...    And it's not like I feel this way 24/7... that's the thing... it comes and goes and comes and goes... sometimes I feel completely fine in the morning or even for 2 days or so.... and then I feel completely like s$#& and devoid off all satisfaction for 3 days where I feel I'm going completely crazy & I can't talk.. can't comprehend... feel super weird when talking to people... and then the next days I just feel suddenly "normal"... like this relaxed and easy-going feeling in your body and wanting to be social and to communicate and just have fun... but then... when I eat some food and I feel it has gluten.. it hits me in a subtle way... where I suddenly loose all joy in life for days... and then it just dissapears... I've been struggling with this for years now and I can't seem to comprehend or get on top of this issue... Do some of you guys have similar experiences?        
  • Upcoming Events