• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Calcium
0

4 posts in this topic

Well it has been 6.5 weeks of gluten-free for me, and I cannot say that I am seeing much difference yet in my overall health, with the exception that:

1) I have not had any of the stabbing abdominal pains that I used to have, and

2) I have not had any D since going gluten-free.

I know that it may take months to get feeling really well, so I am being patient....

I still have BMs that do not sem quite right - they seem solid enough but once in the water they sort of disintegrate - there also seems to be mucus too.

Anyway, I stiil get some mild gut cramps, plus my bones and muscles always seem sore, and I am still lightheaded and often lethargic.

Something I had been trying for the muscles aches in the past was calcium, and it seemed to help. My wife turned me on to it. She swears by it. Apparently she used to have unbearable menstrual cramps, but she found they disappeared altogehter if she took calcium. Also, when we were in SE Asia and frequently suffering from gut maladies, she was taking it and says it usually relieved the pains.

It sort of makes sense to me, as I know that Ca2+ ions are used by all muscle cells as part of the activation process. Moreover I have read about calcium being used for severe muscle cramps.

Anyway, for a few months before my celiac disease diagnosis, I started taking 500mg a day, and it had a significant effect on my cramps. I went from cramps about 1/4 days to cramps about 1/10 days. But since my celiac disease diagnosis, I stopped taking it, because I was unsure if my tablets were gluten-free.

I found some gluten-free caclium pills last night and I am going to try them again. Also, since I now realize that the celiac disease was impeding my calcium absorbtion, I can see how this could lead to even worse cramps from celiac disease - the gluten itself caused reactions and cramps, and damaged the villi, reducing caluicum uptake, further making cramps worse....etc....

So I am taking 1000mg a day now, which is the RDA. Obvioulsy I will get more from other foods, etc, but since my guts are damaged, and my bones probably are too, I think it makes sense to exceed the RDA a little, for now.

Anyone else have any experience with this?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am definately looking for a good gluten-free calcium supplement, especially since starting the specific carbohydrate diet, since it does not allow you to drink milk. It is a good idea to take the calcium, but like you said, who knows if it is gluten-free or not.

0

Share this post


Link to post
Share on other sites

Glad the calcium helps with the cramps. Muscle cramps can also be caused by potassium deficiency. The villi tips that are damaged by celiac disease are where calcium is metabolized. 50 to 100 % of celiac disease patients have significant bone loss (which they regain, in part at least, quickly as they heal). I take Citracil because it can be metabolized on an empty or full stomach. I take 2000 mg. a day. Space them out because only 500mg. can be utilized at a time.

The bowel habits can take quite a while to change to reliably normal. Upwards of a year in many people. I was improved immediately but 4 months into a gluten-free lifestyle and I am still improving with some of the symptoms.

My neck pain, back pain at a fracture site, and elbow pain have gone away completely. Different than yours...

Leslie

0

Share this post


Link to post
Share on other sites

The longer you are gluten-free, the more likely it will be that you will see "normality" in you gut and the other areas where you are affected. I have seen the muscle, nerve, and bone damage get much better over the last two years along with the gut.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,320
    • Total Posts
      935,469
  • Member Statistics

    • Total Members
      64,981
    • Most Online
      3,093

    Newest Member
    Walter Scott
    Joined
  • Popular Now

  • Topics

  • Posts

    • No anti-sm(lupus)? Yes, anti dsDNA is for SLE(lupus). No ENA panel,anti-RNP, anti-SS-A, anti-SS-B, anti histone, scl-70, etc? I'd ask for a referral, if you feel that there is something going on. I think that would be a logical step because of the positive ANA and lack of investigation. 1:640 is definitely positive. 
    • My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary. 
    • Hi there!   I follow a low histamine diet that Cycling Lady brought to my attention a long time ago.  Citrus fruits and their juices are histamine releasing foods.  High histamine levels can cause hives just like in an allergic reaction.  Here's a helpful site:   https://www.histamineintolerance.org.uk/about/the-food-diary/the-food-list/ I don't drink orange juice because because of the hives and stomach upset I get from it, and also because I'm type two diabetic and my system can't handle all the sugars in it.  High glucose contributes to inflammation. I also avoid things with added flavors and scents because they often contain sulfur components like sulfites or sulfates.  Corn products are often processed with sulfuric acid.  Some Celiacs, like me, develop a sulfite sensitivity.  Here's a helpful site:  http://www.thepatientceliac.com/tag/celiac-disease-and-sulfite-intolerance/ Garlic and onions are high in sulfites.  People who can't tolerate foods high in sulfites are often deficient in a trace mineral, molybdenum.  Molybdenum is also involved in blood production.  Here's another site:  http://www.whfoods.com/genpage.php?tname=nutrient&dbid=128 So, there's not always a simple answer.  I'm leary of processed foods because you don't really know how they're processed and what really goes into them.  I'd rather stick to fresh foods.  Hope this helps.
    • No, no, no!  Don't cut yourself off from your friends and social life because you feel you can't eat what everyone else is eating!  I can't think of a single bar or restaurant I've been to where I haven't found something to eat.  It may not always be what I would like to order/eat, but I'm not sitting without food while everyone else is eating!  If I'm going to a private party or someone's home where I'm concerned about food selection, I bring my own, tell the hostess and without making a big deal of it, eat what I brought.  Other times I eat a bit before I go, snack on the veggies or other obviously safe food,  and eat when I get home. If I go shopping for the day or somewhere that it's difficult to pick up a quick gluten-free snack, I put a piece of fruit or a gluten-free granola bar in my purse in case I get hungry.   It's only a big deal if you make it one.  I have been gluten-free for 7 years.  My attitude about food is now this:  eating out is strictly a social event. I always find something to order though at times it seems the gluten-free selections are kind of bland, but I won't go hungry.  If I want a good, tasty meal, I make it for myself at home.  There is nothing that I can't duplicate in my kitchen in a gluten-free version.   It's only been a couple of months for you so I'm hoping you will gradually see that this becomes such a way of life that you won't even give it a second thought.  Your meal prep will take less time as you grow accustomed to this--any new diet takes time to learn.  Good luck and hang in there!
  • Upcoming Events