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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Raging, Inflammed Intestines
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7 posts in this topic

HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

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Maybe it is time for a drastic step. I have heard of people who eliminate everything except boiled or grilled chicken and rice until your intestines stabilize then add back one thing at a time.

HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

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I am so so sorry for your pain. I have been there. I was sick for six weeks once too and it was one of the worst times ever. It sounds like your gut is really inflamed like you say. Then it doesn't matter what you eat - even if it is stuff you can eat when your gut is not inflamed. I've fasted before and it "helps" but it's not really good for you. None of my doctors has EVER recommended fasting, so while sometimes it makes me feel better, it does weaken me, which probably inhibits healing. SO. I would recommend finding things that are really easy on your gut. No solid food, but it needs to have nutrients your body needs. I am a HUGE fan of gerber rice baby cereal. You can mix with water, rice milk, or whatever. I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts. Chicken broth is good too, but has little in the way of real nutrients. I recommend pedialyte to get your electrolytes in balance after all that diah. Also - all the fresh fruit & veggies are good for you when your gut is healthy, but when it's not, it's actually pretty tough to digest, especially if it's fresh. After just a day or two of "rest" with the other food sources, I sometimes try introducing steamed or boiled carrots - but cooked so that they are really, really soft. I take it one day at a time. When i start feeling better, I usually give myself just one more day before introducing more real foods. Keep us posted.

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I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts.

I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

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Are you sure about the casein, or is it just lactose? I ask this because I was tested as casein intolerant but could eat cheese, yogurt, anything cultured, just fine, so it was not an accurate assessment. I also ask it because I find nothing calms my inflamed intestines like yogurt. I use it as a preferable alternative to the neat scotch I used to use :lol: -- I think that that just shocked it into submission while the yogurt soothes it (but we are all different with our own solutions--just a suggestion).

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That was how I was in the beginning. I get the milder form of that now when I get glutened. I ate chicken, bananas, potatoes and maybe one or two more things for what seemed like two weeks. They were the only things that bothered me minimally. When they stopped, I started adding things little by little. To agree with another poster, find what doesn't bother you, or what bothers you the least and stick with that until things calm down. Which, hopefully won't take too long. :)

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I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

I get the plain, not the vanilla, and I usually blend it with OJ or soymilk and a banana. That sort of mellows out the flavor a bit. If you add more fruits like berries, peaches, it hides it even more. But that depends on how well your gut is holding up. Even though the extra fruit is blended, if your gut is really inflamed I would keep it to the juice/soymilk & banana. The flavor isn't as strong as say, our bean flours are, but it's not nothing. It reminds me a little of chicken broth, but a little sweeter. The texture is a pretty fine powder. You can get clumps if you aren't up on the stirring, but it goes into solution all right nonetheless.

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