• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Link

Raging, Inflammed Intestines

Rate this topic

Recommended Posts

HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Maybe it is time for a drastic step. I have heard of people who eliminate everything except boiled or grilled chicken and rice until your intestines stabilize then add back one thing at a time.

HELP!!! I've followed a gluten-free diet since last Oct.09. Went gluten-free, casein free, egg, soy, yeast free in Dec. 09. Started doing betten at that point. About six weeks ago, I visited my son at college and dined out and must have inadvertantly ingested one of those food proteins. I have NOT recovered from that. I don't know if I keep adding insult to injury or what. I also know that I cannot eat: corn, fresh fruit, fresh veggies or salad--they send me to the bathroom to never emerge AGAIN!! Last night I made turkey stirfry over rice. I guess the veggies weren't cooked long enough since my stomach has been gurgling/rumbling ever since...and I have made many trips to the bathroom--not a pleasant experience. I am at my wits end as to how to get my insides healed to the point that I experience a normal BM. Since I started my gluten-free diet, I have only had a six-day stretch of near normal BM's. Sorry to be so graphic. I have had stool and gene testing; both positive for gluten sensitivity (two glu. sens. genes) with the sensitivites listed above. The Celiac research center at UMBC told me to go get the blood work, the biopsy, and a colonoscopy before they would even give me an appt. I have no insurance to do that. I'm an RN but should I see a nutritionist? I have no problem sticking to a diet that eliminates all the offending food...I am a consistent label reader and I cook all my food. But, nothing seems to help since my insides seem to be revolting no matter what I consume. Should I be fasting for several days to give my gut a rest? Should I be eating nothing but chicken broth for a week? I know if I can get out of this inflammed state...I may be able to get back on the right track. Any suggestions?

Share this post


Link to post
Share on other sites

I am so so sorry for your pain. I have been there. I was sick for six weeks once too and it was one of the worst times ever. It sounds like your gut is really inflamed like you say. Then it doesn't matter what you eat - even if it is stuff you can eat when your gut is not inflamed. I've fasted before and it "helps" but it's not really good for you. None of my doctors has EVER recommended fasting, so while sometimes it makes me feel better, it does weaken me, which probably inhibits healing. SO. I would recommend finding things that are really easy on your gut. No solid food, but it needs to have nutrients your body needs. I am a HUGE fan of gerber rice baby cereal. You can mix with water, rice milk, or whatever. I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts. Chicken broth is good too, but has little in the way of real nutrients. I recommend pedialyte to get your electrolytes in balance after all that diah. Also - all the fresh fruit & veggies are good for you when your gut is healthy, but when it's not, it's actually pretty tough to digest, especially if it's fresh. After just a day or two of "rest" with the other food sources, I sometimes try introducing steamed or boiled carrots - but cooked so that they are really, really soft. I take it one day at a time. When i start feeling better, I usually give myself just one more day before introducing more real foods. Keep us posted.

Share this post


Link to post
Share on other sites
I also get this meal replacement formula called alpha ENF. It's from canada, but it is gluten and casein free, (but I am not sure about the soy) and it's designed specifically for inflamed guts.

I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

Share this post


Link to post
Share on other sites

Are you sure about the casein, or is it just lactose? I ask this because I was tested as casein intolerant but could eat cheese, yogurt, anything cultured, just fine, so it was not an accurate assessment. I also ask it because I find nothing calms my inflamed intestines like yogurt. I use it as a preferable alternative to the neat scotch I used to use :lol: -- I think that that just shocked it into submission while the yogurt soothes it (but we are all different with our own solutions--just a suggestion).

Share this post


Link to post
Share on other sites
Ads by Google:


That was how I was in the beginning. I get the milder form of that now when I get glutened. I ate chicken, bananas, potatoes and maybe one or two more things for what seemed like two weeks. They were the only things that bothered me minimally. When they stopped, I started adding things little by little. To agree with another poster, find what doesn't bother you, or what bothers you the least and stick with that until things calm down. Which, hopefully won't take too long. :)

Share this post


Link to post
Share on other sites

I looked this up online and found the site with ordering info. What is the taste/texture of this stuff like? I've been looking for something like this for a kid that works for my husband, but I'm concerned he won't eat/drink something that is "yucky."

I get the plain, not the vanilla, and I usually blend it with OJ or soymilk and a banana. That sort of mellows out the flavor a bit. If you add more fruits like berries, peaches, it hides it even more. But that depends on how well your gut is holding up. Even though the extra fruit is blended, if your gut is really inflamed I would keep it to the juice/soymilk & banana. The flavor isn't as strong as say, our bean flours are, but it's not nothing. It reminds me a little of chicken broth, but a little sweeter. The texture is a pretty fine powder. You can get clumps if you aren't up on the stirring, but it goes into solution all right nonetheless.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,701
  • Member Statistics

    • Total Members
      67,279
    • Most Online
      3,093

    Newest Member
    Jean 67
    Joined
  • Popular Now

  • Topics

  • Posts

    • LOL yeah miralax was a joke for me WHOLE BOTTLE NOTHING, doctors thought I was lying. I found the ONLY thing that works for me is Magnesium Citrate, the bottled fizzy stuff for colon preps. Daily maintenance requires me to take Natural Vitality Calm daily, you dose to tolerance start off at 1/4 tsp 1-2 times a day and up it to the full dose over a week. If you get loose stools cut it back. You dose to tolerance with magnesium and with this disease a issue with absorbing it is very common, causing chronic constipation in many and requiring supplementation.
      Try going to a whole foods only diet for a while with soups and stews with veggies and meats also. Nut butters and avocados help lube up the system. I use some other seeds etc to add in bulk but I think we need to focus on clearing your out first before regulating.
    • I would say no even then....it belongs in its own little corner in hell. We have had members get sick from cross contact touching and handling paper mache, playdough, and dry wall spackle containing wheat then touching their mouths, or food.....heck you can inhale the powder from the sanding spackle and have it get trapped in the mucus in you respiratory tract to run down your stomach and make you sick......has happened to a few on many occasions.
    • Cross reactivity is a bit of a myth type thing, but we do get food sensitivities and intolerance issues that do creep up and they are always different for each person. A food diary and keeping track of what causes symptoms is what you need to do. Here is a true gluten avoidance list and a article on food sensitivities.
      https://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html
      https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
  • Upcoming Events