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Need Help Where Do I Go From Here


twofoku

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twofoku Newbie

Well this is my story I am a african american male and i think i do indeed have celiac disease. Many medical doctor say itz highly impossible to have it but I have so many symptom of it. For example have been diagnose with acid reflux and chronic stomach inflamation also my stool float all the time i feel so dizzin all the time and have serious mood swing but itz not celiac but they can never tell me why i feel this way i have had every blood test in the book i had a Iga test done and a upper and lower Gi test done everything came back normal i went to a allergist and been check for everything I am not allergic to anything. My question is can i have this disease and a blood test or a biopsy this be negative. Where do i go from here.

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frenchiemama Collaborator

If I were you, I would just go ahead and start the diet and see how you feel. It's possible to be gluten sensitive without having celiac. I think there are several people on this board who were never "officially" diagnosed, but have gone gluten-free and feel much better.

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ianm Apprentice

I don't have an official diagnosis but it is so obvious what the problem is. I found out about gluten intolerance by way of the Atkins diet. I stopped eating gluten before I even knew tests were available. My health and life in general have made such a dramatic turnaround that there is no way I will eat gluten to get a test done. I am of Northern European descent, the most likely group to have celiac, but that doesn't mean that someone of African descent can't have it either. You have nothing to lose by going on a gluten free diet and everything to gain.

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    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      What kind of stool test was done? Can you be more specific? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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