• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Increased Symptoms After Gf Diet
0

13 posts in this topic

I have decided to try the gluten-free diet (without having the biopsy done). Just sick and tired of being sick and tired!! Anyways, it will only be one week today and some of my symptoms have worsened.

My chronic constipation has now changed to D.!!, My joint swelling has flared up, the joint pain has increased, and my brain fog and fatigue up and down throughout the day. I woke up this morning with a huge canker sore in my mouth.

What gives?? Did anybody feel worse when starting out? Does it get better, and how long???

Thanks :blink:

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


As your body adjusts, it may get worse before it gets better. I wouldn't expect to see drastic results until at least one month into the diet.

0

Share this post


Link to post
Share on other sites

My symptoms of intense stomach pain and bloating got better, but I started getting all sorts of OTHER symptoms you described, like brain fog, tremors, nausea. I NEVER had these before going gluten-free. I really don't get it.

I've been gluten-free for almost 6 months now. I think I am presenting symptoms of another condition related to celiac disease and the docs just haven't figured it out yet.

0

Share this post


Link to post
Share on other sites

It's a little too early to tell. I was gluten free for 3 months before I had a big change and then a few more months to get back to normal. Your body is probably adjusting to the diet right now so give it some time. Feel better soon :D

0

Share this post


Link to post
Share on other sites

I felt the same way after I went gluten-free. I noticed that I actually felt generally worse, with worse symptoms after going gluten-free. It's been almost 2 months for me, and I'm just starting to notice changes, so hang in there! We're here for support.

-Peaches

0

Share this post


Link to post
Share on other sites
Ads by Google:


I've only been gluten-free for a little over a week and my symptoms got worse too for a little while, but after the first week things calmed down a lot. I'm not saying that I feel exceptional, but better.

Doesn't it take a while to feel better because your intestinal tract needs time to heal so that you can start absorbing nutrients? :huh:

My doctor called me the other day to tell me my biopsy results and after I told him that I'd started the gluten-free diet he said, "Oh, so you are probably feeling better already!" I was like... "Umm.. No." I was really surprised tht he said that. Maybe he's just an overly optimistic kind of guy :rolleyes:

I'm not expecting any miraculous changes - because I've never shown any real GI symptoms (well, until the gluten challenge - then I spent a little more time reading magazines in the bathroom ;)). But, do emotional problems heal slower or faster? :huh:

Nobody really knows, do they? :unsure:

*sigh*

0

Share this post


Link to post
Share on other sites

I think there are several reasons one can feel worse after starting gluten-free Diet:

(1) bacterial overgrowth is fairly common at first. A probiotic is advised for most people, although some MDs like antibiotics for this.

(2) you may still be taking gluten in ways you don't realize (vanilla, med's, spelt etc)

(3) you're not getting enough nutrients. are you replacing the gluten foods with healthier foods and with essential fatty acids?

0

Share this post


Link to post
Share on other sites
  (3)  you're not getting enough nutrients.  are you replacing the gluten foods with healthier foods and with essential fatty acids?

Do you mean to tell me this bag of gluten-free cookies isn't providing all of my essential vitamins?? :blink:

0

Share this post


Link to post
Share on other sites
Do you mean to tell me this bag of gluten-free cookies isn't providing all of my essential vitamins?? blink.gif

Ha Ha - Bean you are too funny, at least I am laughing as I run to the bathroom ;)

Thank you for everybodies support!!!!!!

3) you're not getting enough nutrients. are you replacing the gluten foods with healthier foods and with essential fatty acids?

I quit gulten and dairy at the same time, and basically red meat was already a big no no for me, it always seemed to flare up my endometriosis, and because of the endo, I was pretty big on supplementing and eating a lot of essential fatty acids,by eating fish and taking fish oil supplements and adding flax.

I do have one medicine that I take that I have not been able to confirm if it is gluten free (I hadn't seen it on any list so far but I just got the manufacturers number and was going to call on monday). So not sure if that could be it.

I have heard mention of the probiotics before but wasn't sure, I thought maybe that was dairy????

I think I just need to be more patient, it sounds like it takes from 1-3 to start feeling any improvement. I just wasn't expecting to feel worse off the bat!!!! :(

0

Share this post


Link to post
Share on other sites

ooops, I meant to say 1-3 months, I hit the ole add reply to fast :rolleyes:

0

Share this post


Link to post
Share on other sites

Brother diagnosed with celiac disease 8 weeks ago. Also is Diabetic--lots of problems controlling blood sugar levels.

Also still having major battles with D and vomitting. Hard to get much nutrition when it all comes right back out!! (Just out of hospital with feeding tubes.)

Help.

Anyone out there?

0

Share this post


Link to post
Share on other sites

A couple things to consinder:

* You could have caught a bug - going gluten-free certainly won't prevent that. :-D

* As noted, you might not be getting enough nutrients - particualrly if you're relying on packaged products.

* You've got an additional food sensitivity that is coming to light because you're consuming more of that item now. (Dairy?)

* Cross-contamination if you don't have a gluten-free house or if you eat out.

Just a couple thoughts... it's tough to make much of a conclusion given that it's only been a week.

0

Share this post


Link to post
Share on other sites
Brother diagnosed with celiac disease 8 weeks ago. Also is Diabetic--lots of problems controlling blood sugar levels.

Also still having major battles with D and vomitting. Hard to get much nutrition when it all comes right back out!! (Just out of hospital with feeding tubes.)

Help.

Anyone out there?

When you are new to the diet it's more likely to get gluten into you accidentally because it takes some time to learn how much gluten can be hidden in. He may be getting gluten in him through things he thinks are gluten free. He may be getting cross contamination problems as well. There are alot of ways gluten could be getting into him.

Another thing to consider is when there is damage alot of celiacs have a problem with milk at first until their intestines heal. I had a problem my whole life on and off with milk and after I went gluten free I have no problem.

He should maybe keep a food journal...which may help if he doesn't feel good after anything in particular. Try to keep things in him that are light on the stomach...one of my main symptoms was nausea so I know how hard it is to eat when your not feeling well.

When there is damage that keeps your body from absorbing the nutrients properly which can cause all sorts of symptoms. A liquid vitamin may be good for him to try out because of the way it absorbs to your body. Other things that may help are enzymes and probiotics. These things may help your body fight and give your immune system a bit of a boost.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,466
    • Total Posts
      930,723
  • Member Statistics

    • Total Members
      63,897
    • Most Online
      3,093

    Newest Member
    Lou Anne
    Joined
  • Popular Now

  • Topics

  • Posts

    • JaneWhoLovesRain, what is odder to me than that there is an older disease that Doctor's have forgotten that explains many of the same symptom's and doctor's do not even think about it today since the "War on Pellagra" was declared over a 100 years and why doctor's don't (at least in the West) think about it any more. Dr. Heaney wrote a nice online article about this topic. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ Here is fairly recent article about how Pellagra can present in patients and the title says' it all from the International Journal of Dermatology. https://www.researchgate.net/publication/227807440_Pellagra_Dermatitis_dementia_and_diarrhea Dermatitis, dementia and Diarrhea are the 3 D's (4th D is death) of Pellagra. Typically it is only diagnosed today if you are in a subset of the population like an alcoholic for example or you have a gastric bypass. See this article from the New England Journal of Medicine http://www.nejm.org/doi/full/10.1056/NEJMicm050641 and despite all the signs of Pellagra (skin issues etc.) . . .. Pellagra in it native tongue (Italian) where it was first diagnosed was called "rough/sour skin" who knows that today??????? Very few I would venture to guess. The NEJM can only say they have "Pellagra-like dermatitis" it has been so long since any doctor's seen it they can't (with confidence) diagnose it clinically. But taking Niacinamide 3/day for 6 months can help alleviate your symptom's if indeed the DH of Celiac is the dermatitis of Pellagra being medically misdiagnosed. Here is a an article featured on celiac.com about why/how Pellagra can be confused for Celiac disease. https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html Because they haven't seen Pellagra in 75+ years no one recognizes it anymore. ****this is not medical advice. I hope this is helpful. Knitty Kitty and I are the Niacin warriors on this board. See this thread where Knitty Kitty says Niacin helped the itching of DH. If that is so then it might help your DH (if you have it) and your GI problems too if they are caused by co-morbid Pellagra. see my blog post about where I say "I had Celiac Disease and Developed Pellagra" that talks about this in more detail. Again good luck and your continued journey and I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • I should say I am confused about how to interpret---   Does this mean celiac or no celiac?   Thank you all---I greatly appreciate it.
    • KathleenH, I swear by MatteosPizza and they make National Delivery. I have been known to buy them by the dozen. https://www.matteospizza.com/ BellaMonica's is not a bad corn based crust.  By not bad I mean "suprisingly good" that can be bought at most grocery stores. Here is there ZIP locator page to see if they are carried in your local area. http://glutenfreepizza.typepad.com/gluten-free-pizza/where-to-find-bella-monica.html I hope this is helpful. posterboy,  
    • Hey all--have Hashimoto's and am being worked up for epigastric discomfort and IBS like symptoms---   My blood work had an IgA within the lower end of normal range, negative TTG, but weakly positive DGP.   My endoscopy showed a "nodular" duodenum with the biopsy stating there was "reactive lymphoid hyperplasia"...   I have a follow-up with the GI in 3 weeks.   Wondering about any help?
    • DH wasn't linked to celiacs until 1967 from my research...
  • Upcoming Events