• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Confused -very Long Sorry!
0

5 posts in this topic

I am Irish and living in Manila, Philippines. After years of IBS, I developed chronic diarrhea on a trip to Ireland in October. After a few months I eventually conceded that this wasn't normal and visted a GI specialist here in Manila. I mentioned my apparent intolerance to wheat and dairy and that my symptoms seemed to have been triggered by eating lots of bread, spelt and other yummy gluten-laden foods in Ireland. She agreed that I might have Coeliac Disease but that it was necessary to eliminate other intestinal disease which she did with a colonsocopy, small intestine series (with barium) and a CT scan. THe blood tests for celiac disease are not available here so I pushed for an endoscopy which indicated celiac disease, although it was not conclusive. The doctor was happy that the diarrhea (which had worsened to the stage of making me housebound, not to mention thin and weak) was a symptom of celiac disease and told me to go on a gluten-free diet and left it at that. I took antibiotics for giardia for 7 days which made feel even more wretched, just in case, but that didn't seem to help. After a few gluten-free weeks the diarrhea subsided to be replced by constipation and bloating and then what I would consider very rare for me - normal stool Yippee! I was still exhausted, probably due to nutritional deficiencies, but happy that things were improving. Started gluten-free Dec 23.

On Feb 7, went to a black-tie ball and thought, 'what the hell I'll eat everything'. gluten-free is unheard of here so there was no point in even attempting to explain what I could eat. Within 2 hours if ingesting cheesey potatoes au gratin I was in the toilet - very sobering. It took 6 days for diarrhea to subside but it did, much to my relief and I felt almost 'normal'again although still exhausted. Finally went to Singapore, so had to eat out, on Feb 18 - avoided gluten as far as I know but ate ice cream. The next morning after gluten-free breakfast, diarrhea literally exploded into action and hasn't really improved since. Have been gluten-free again 12 days. Was inadvertently taking dairy from gluten-free bread mix but have not had dairy in 3 days. I'm really wondering if there is something else wrong with me or is to be expected that it would take this long for symptoms to subside. My GI doctor just tells me how dry my skin and hair are, and how thin I am without offering any real, constructive support. Am considering being admitted to hospital for rehydration and withdrawing all foods, to re-introduce them after a few days but don't really want to be seperated from my kids (older daughter is 3 tomorrow).

Does it sound like celiac disease to have a recurrence to this extent after accidental ingestion of gluten or dairy, and if so how long can I expect diarrhea to last?

All insights welcome as I'm very isolated (and now housebound again) over here!

Jo

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Does it sound like celiac disease to have a recurrence to this extent after accidental ingestion of gluten or dairy, and if so how long can I expect diarrhea to last?

Hi Jojes,

Yes, it does sound like celiac disease to have your reaction be that bad. It also sounds like you are intolerant to casein (a milk protein) that is found in all dairy products and it actually quite common in Celiacs. See casein and gluten have a very similar molecular structure and for some Celiacs their body sees them as the same, and you will have a bad reaction to either. And the reaction and subsequent symptoms can last up to two weeks. Since you were accidently getting dairy, up until three days ago, it may take a bit longer to get better from the last gluten accident. I assume, since you live in the Philippines, that your diet consists mainly of rice, fish, chicken and veggies and fruit. Am I right? My husband is from the Philippines and even after being in the US for 20 years this is still his primary diet. Quite suitable for being gluten free, except for the sauces. He loves sauces on everything.

You said you are in Manila, and I hope that you are able to get gluten free products more easily than if you were in one of the more remote locations. I do hope that you are able to stay gluten free, and not get contaminated too often.

How are your children? Mine are all mildly to moderately symptomatic, and I am getting them tested now. Celiac is genetic, and although you probably couldn't get them tested right now, you might want to put them on the gluten-free diet if they start showing problems. And not all Celiacs will have the classic symptoms of diarrhea and weight loss. My children tend to have very weak dental enamel, frequent stomachaches, occasional diarrhea, and or constipation, one has migraine like headaches (he's 7), and my daughter (she's 4) vomits occasionally for no appearant reason. Yet they all come back with inconclusive blood tests and no clear answer to if they have celiac disease or not. So I am having them stool and gene tested. I would like to know for sure.

Well, I tend to ramble late at night, so I'm off to bed. Welcome to this site. it's great here.

God bless,

Mariann :)

0

Share this post


Link to post
Share on other sites

Mariann

I am so grateful for your reply to my message; it sounds like I just have try keep hydrated while my system rebalances itself. Unfortunately my diet is very Western, although I haven't been a big bread or pasta eater for years, pre-diagnosis I loved oatmeal and had a daily bagel. I'm looking into ordering gluten-free foods from Australia; breakfast cereal and snacks are the things I miss most. I am planning on having my daughters (3 & 17 months) tested when we go to Ireland this summer. So far I haven't noticed any symptoms other than constipation in the older one - hopefully that's down to her reluctance to eat anything resembling a fruit or veg! I understand your concern over your children- hopefully their Filipino genes will dominate on this issue. Gosh - I can't wait to lose this foggy brain and get some energy back!

Thank you so much again. I'm very grateful for your support.

Jo

0

Share this post


Link to post
Share on other sites

Hi,

I am also newly diagnosed and wanted to tell you that I also

get diarrhea after I eat ice cream, milk, cheese. I have given up

on dairy until my villi get healed. I also noticed that dairy causes me to have "brain fog" big time. To counteract the dehydration I usually

get some bananas and Gatorade, it might save you from a trip to the hospital,

at least it is worth a try.Good luck!

0

Share this post


Link to post
Share on other sites

Judy

How long does the diarrhea last after having dairy? A doctor I spoke to today (my husband in desperation got in touch with a different GI doc) was of the opinion that any gut reaction to dairy should be gone by 4 days. Is this because he doesn't understand celiac disease, do you think? During my last gluten accident recovery period, I did eat cheese for the first 3 days before I copped on :rolleyes: , and diarrhea disappeared after another 3 days. Maybe I wasn't totally recovered (only a week later)when I had the gluten/ice cream incident; perhaps that explains current dire strait. Will stick it out at home with the gatorade and see how I feel tomorrow.

Thank you for your input. It really is great to get support and not feel like I'm going out of my mind!

Jo

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,422
    • Total Posts
      930,477
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • I will say what everyone else says and get tested again with the endoscope and biopsy to confirm, you will need to be on gluten for 12 weeks for blood test 2 weeks for endoscope at least a slice of bead a day.  The thing about celiac is many symptoms can be quite minor, hell even before I had my MAJOR symptoms show I had some of the other issues show up in my every day life and I just thought it was normal.  Regardless if you keep eating gluten with celiac disease it will slowly eat away at your body internally til it does become a problem. Celiac is a autoimmune disease that reacts to the gluten proteins, and has misdirected attacks on your own body internally by mistake trying to kill the gluten. Now the damage can lead to all kinds of other auto immune diseases, random allergies, food intolerance, and even cancer.   I suggest if you do have it, stay on the gluten-free diet, your just basically changing brands there are many gluten-free food versions of everything now days. Be thankful you got this early, I developed issues with dairy, corn, peanuts, and a whole list of others along with another autoimmune disease Ulcerative Colitis that makes it so I can not eat sugars or carbs or my intestines swell.  Getting on a gluten-free diet before your damage progresses will not only keep you healthier for longer, and let you live a pretty normal life but also save you from this pain and very limited diet if the damage progresses too much. As to your fatigue, you changed over to gluten-free diet, you stopped eating a bunch of the Fortified foods, and depending on the route you took of either whole foods ore more processed foods. You could be eating to many empty carbs, starches, and not enough nutrients. OR if you took the whole foods approach you be lacking in your daily calorie intake or not the right ratio of nutrients. You might have to supplement a few of them.
    • REALLY odd call out here, I am attending a anime convention called A-Fest in Dallas come August, I need someone to split the room with it who is gluten-free. I take extra precautions, I COOK all the food, bring only CERTIFIED foods into the room, The room will be Gluten Free, Corn Free, Dairy Free, Peanut Free. I am trying to find someone to split the room cost with, that would be safe to be around I CAN NOT AFFORD to get sick at one of these things, it is one of my few joys left in life and get very paranoid around them. So I need someone who is also gluten-free to make sure the room stays safe (YES I have done with with a non celiac with the rules down and well stuff happens so not chancing it). Room split is food coverage comes to $400 if it is just two people.  4 day convention, I will arrange a meal plan around your diet as long as it is free of my allergens. I will also provide various snacks, baked goods, and even stuff to take home with you.   https://animefest.org/ ^Convention info.
    • Hi Jennifer, This thread might have some information that would help you.   Your doctors are pretty lame IMHO.  Perhaps you can find a celiac group in your area that has local meetings for support.  They might also suggest a different doctor who knows how to treat celiac patients.  
    • All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs do), the damage is still being done to your gut and the rest of your body, so please be aware of this.
    • You could possibly try calling the places in Texas and Chicago to see if they can refer you somewhere that does accept your insurance. Oh good luck to you!
  • Upcoming Events