• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dying
0

19 posts in this topic

Went to the ER today after shooting myself with an epi-pen. Lovely experience.

Tried a millet pancake or two and noticed mouth and throat swelled. Told my sister, who had worked so hard to prepare me something that I"could eat to feel better." that I couldn't eat any more of it. She grabbed a claritin (allergic to benadryl) and when I started choking we diecided it was time to go to HOSPITAL.

Hives came all over 90% of my body (even in my hair). LOVELY...

I am still hurting on the insides. I want pain to stop. I want to die.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Oh :( I am so sorry you are hurting. :(

Please don't give up on this life! We need you for when we launch the people with food allergies attack! ;)

Please hang on - I truly hope you feel better soon.

*hug*

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

{{{{{{{{{{HUGS}}}}}}}}}}}}}} I hope you feel better soon. You may need to triple check EVERY ingredient that went into the pancakes including syrup or whatever... It sucks to be so allergic that you risk dying every time you eat. I feel for you, I truly do. Please don't give up, we need you around here! :D

0

Share this post


Link to post
Share on other sites

I'm so sorry you have not been feeling well. I hope you feel better soon. Hang in there it will get better and there is light at the end of this tunnel. Just know we are all here for support. Feel free to contact me anytime if you just need to talk.

I will keep you in my prayers

0

Share this post


Link to post
Share on other sites

Oh, I can relate. My epipen stays handy. So far, I have been able to get a Vistaril down quickly enough to avoid having to use it. I feel for you and hope you get to feeling better quickly. Your poor sister may never try to feed you again!

0

Share this post


Link to post
Share on other sites
Ads by Google:


My sister feels like she tried to kill me... lol. Sore throat today and light rash. Taking claritin.

The only other ingredients in it were eggs, almond milk (I had just drunk some and no issues), and maple syrup (had that a week ago with no issues).

I had an extra epi-pen at my school. Am keeping it close and the phone is close too.

I don't want to do the scratch test again. They take a razor to your back and 300 scratches till they bleed. Then 20 shots on each arm to find out which of those really reacted (because the reaction was so strong that it bled over into the other scratches). They do those rapid fire.

I have heard that there is a pin prick test. I have heard it is less painful. My allergist said that he didn't do the pin prick test.

0

Share this post


Link to post
Share on other sites
I have heard that there is a pin prick test. I have heard it is less painful. My allergist said that he didn't do the pin prick test.

I hated the pin prick test. I had over 140 needles poked in my arms. That was horrible and it turns out none of the things I was really allergic to. After this it set me back for about 2-3 weeks because of everything they had injected into my body(even at the small amount that they did)

York allergy testing may be something to look at . They have like 113 foods they test for.

0

Share this post


Link to post
Share on other sites




But they say that York testing is even less accurate than the pin prick and the blood testing.

0

Share this post


Link to post
Share on other sites

Definitely do the ELISA blood test (I imagine that's what York offers). I did the scratch tests and showed no reaction to any foods at all! The allergy doctor who offered it just treated me like I was neurotic.

The ELISA test showed allergies to eggs, all dairy (even goats milk! I never would have known) (Goats milk is gross :P) (eww)

Anyway - it showed allergies to sesame seeds, blueberry, papaya and the others I already mentioned. Definitely worth the money - and much better than conventional testing. According to Dr. Michael Murray (Encyclopedia of Natural Medicine): "The skin prick test or skin-scratch test commonly employed by many allergists only test for IgE mediated allergies. Since only about 10-15 percent of all food allergies are mediated by IgE, this test is of little value in diagnosing most food allergies."

The ELISA test checks both IgG (delayed) and IgE (immediate) reactions.

:)

- Michelle :wub:

0

Share this post


Link to post
Share on other sites

How much does that test cost?

I am having problems with IGE allergies right now anyway. But you may be right. I might try both.

0

Share this post


Link to post
Share on other sites




How good are the Immuno Labs? That's why I just did-I get my results on Thursday.

0

Share this post


Link to post
Share on other sites

I did my test through US BioTek - the cost was $165 for 96 foods. I did the "vegetarian" panel. Now I'm wishing I had done the full panel - because my naturopathic doctor suggested that since my dairy allergies are so high (literally off the charts) I may have allergies with beef :unsure:

Of course, I've never known anyone who's allergic to beef.. so she may just be a tad psycho ;) Who knows.

- Michelle

p.s. Other costs involved included the blood draw, shipping, etc. - that my doctor did for $24.

0

Share this post


Link to post
Share on other sites

is there a chance you are allergic to eggs? That is a fairly common allergen.

0

Share this post


Link to post
Share on other sites

I feel your pain. I am also wheat allergic as well as celiac, one time I went to P.F. CHangs with my celiac friends and the dinner was fine but the Takeout was used with spoons that had soy sauce on them and I had the takout the next night, and ended up first in urgent care sunday morning then after the second epipen didn't do anything, they didn't feel comfortable and sent me over in the ambulance, and I spen the day in the hallway of the ER because they didn't have enough rooms. Fun Fun Fun

0

Share this post


Link to post
Share on other sites

My God is watchin out for me. I know it. I have people who pray for me throughout the day.

God is providing his healin right now. I just need to wait on him.

He is the only hope I have.

0

Share this post


Link to post
Share on other sites
is there a chance you are allergic to eggs? That is a fairly common allergen.

I had two eggs with my regular breakfast this morning and spent five hours sleeping. I woke up to feel awful, and to being incredibly dizzy, my tupical allergic reaction....

0

Share this post


Link to post
Share on other sites

Someone just e-mailed me and asked if I had Stevens Johnson's Syndrome. That is the scariest syndrome I have ever seen.

I knew medicines could mess up your body and know that mine has been messed up by them currently, BUT....

That syndrome is where your outsides and insides are literally burned by the chemical reactions taking place in your body.

It shows up with lesions on your body (all over) and burning like you are on fire outside and inside.

I will be the first to say I feel like I am burning up inside when really inflamed and am worried that it really is burning me, but that is extrememly severe.

0

Share this post


Link to post
Share on other sites

Antmimi,

Many hugs for you! My thoughts and prayers are with you. I truly hope things get better for you soon! Hang in there, and things will get better!

-Peaches

0

Share this post


Link to post
Share on other sites

Thank you for the encouragement. I want to be BETTER, YESTERDAY.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,377
    • Total Posts
      935,763
  • Member Statistics

    • Total Members
      65,065
    • Most Online
      3,093

    Newest Member
    CleoTheLeo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks so much, friends!  JMG, I'll try to get hold of that licorice, almost everything I read gives it glowing reviews.  I miss Bertie Bassets licorice (it contains wheat) so it will be nice to have some licorice again.  Thanks Whitepaw for those ideas, I must admit I'm getting rather fed up with my low fat menu but it seems the best way to keep the pain at bay so it is nice to have something else to cook.  I don't know if I have picked up another intolerance, but you could be onto something there.  And I know what you mean icelandgirl, we've been through so many tests and treatments it all becomes a blur!  My doctor isn't expecting to see me again unless things aren't better within the month, but I might bring my gastro appointment forward if needs be. Actually, in the end yesterday didn't go quite as badly as I'd envisaged it would, which makes me think that some of my pain, bloating and nausea are down to the ompremazole - it does warn that can happen on the packet.  When it says 1 in 10 people get these symptoms I always seem to be that 1 in 10!  I don't have any more burning pain or acid reflux (at least yet) but  I'm still losing weight which slightly troubles me.  That said, when I think of how I normally eat I must be down at least 500 calories a day.  JMG will know from another thread that I have a sweet tooth and at the moment the thought of eating a bar of chocolate makes me feel very sick indeed... Oh no - hope that doesn't mean I have developed a chocolate intolerance! I bought some 10g ompremazole tabs yesterday from Boots, having had nothing yesterday, and I've taken one at breakfast time.  So far so good.  I think I might take these for a few days then taper off. Thank you so much guys for accompanying me on what would otherwise be a lonely journey.  
    • Update: I have been taking Chanca Piedra (specifically, Royal Break-Stone, by Whole World Botanicals) on an empty stomach in the morning for the liver-gall bladder and surprisingly my lips are almost normal. I know the peeling lips may be caused by different issues but I hope this info helps someone.
    • Hi Cristiana, I'm so sorry that you are still not feeling well.  When do you go back to your Dr? I wish I could help more, but it's so hard to know what was what when I was on the PPI.  I was diagnosed with celiac and h. Pylori on the same day so I was already feeling awful.  Then I was put on 2 antibiotics with the  PPI.  I do remember feeling terribly nauseous, but just assumed it was the antibiotics.  When I started tapering, I still wasn't feeling well.  It really took months before I started to feel decent.  But I assume that it was the celiac. I really hope you start to see some improvement...((((hugs))))
    • @scorpio it has now been almost 2 years and I am curious if you ever found something that worked for you. My boyfriend suffers from EC as well and I am desperate to find a resolution for his sake. He's been dealing with it for over a year now and it is taking a toll on his work and social life.   Any updates would be helpful
    • I am going through the diagnosis stage as well. My family has strong history for celiac disease, and while I always had discomfort and other symptoms ( some of which i didnt know about) I wasn't tested until recently because I was DEATHLY afraid of needles. The results are highly positive but I am still getting a biopsy in early August. From what I have learned about it is that the endoscopy is beneficial to looking for not only signs of celiac but also other diseases that have similar symptoms to celiac. Because of your mixed result it wouldn't hurt to get a biopsy but it really is personal preference. I understand what you are going through and didn't like the idea much either but I really think it is something that can help you in the long run. P.S. There are lots of testing being done for new medications or other ways to "cure" celiac other than a gluten-free diet. It is my understanding that this can only be covered by insurance with a confirmed diagnosis (biopsy) but I don't need to get into that. The bottom line is that a biopsy is confirmatory especially since the doctors could see in the intestine, so to me, I feel better knowing that there's no chance of going gluten-free for nothing.
  • Upcoming Events