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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Help Translating Bloodwork?

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I just got a copy of my bloodwork back from my doctor and here are the results:

Tissue Transglutaminase Ab, IgA 3

Reference 0-19

This is all that was done. I thought there was a little more extensive testing done than this?? Maybe I am wrong. He says I'm not celiac and basically brushed me off. The only other "oddities" in the bloodwork was a Vitamin D deficiency, MCH & MCV were slightly elevated, and RBC was slightly low. Can someone tell me if this is all that is done in a celiac panel? This board has been a life saver! Thanks!

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Sorry to say you did not get the full pannel. Your doctor needs to order a total IgA to see if you are deficient. If you are, then the standard IgA tests are invalid. Here are the tests he needs to order: total IgA, IgA tTg, antigliadin IgA/IgG, EMA and if IgA deficient, IgG tTg. Hope this helps! I had to request the doctor specifically write out each test separatly, because the first time (on both of my boys) they wrote a "celiac panel" (which to him he wanted all of the above), but the lab would not recognize the celiac panel and defaulted to the total IgA and the IgA tTg. So my one boy has been stuck twice. Also I did not know when I got tested that I needed all of those. I only initially had the IgA tTg and luckily (or I probably would still be undiagnosed) it was overwhelmingly positive. Don't be afraid to ask for the rest of them.

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Sorry to say you did not get the full pannel. Your doctor needs to order a total IgA to see if you are deficient. If you are, then the standard IgA tests are invalid. Here are the tests he needs to order: total IgA, IgA tTg, antigliadin IgA/IgG, EMA and if IgA deficient, IgG tTg. Hope this helps! I had to request the doctor specifically write out each test separatly, because the first time (on both of my boys) they wrote a "celiac panel" (which to him he wanted all of the above), but the lab would not recognize the celiac panel and defaulted to the total IgA and the IgA tTg. So my one boy has been stuck twice. Also I did not know when I got tested that I needed all of those. I only initially had the IgA tTg and luckily (or I probably would still be undiagnosed) it was overwhelmingly positive. Don't be afraid to ask for the rest of them.

Thank you for replying Roda! I emailed my doctor's office earlier today requesting why only the one test was run. This is the reply tha I received:

"If Tissue Transglutaminase Ab, IgA is negative, the Endomysial Ab, IgA Titer by IFA is not performed."

Why does this have to be so difficult?!?

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Thank you for replying Roda! I emailed my doctor's office earlier today requesting why only the one test was run. This is the reply tha I received:

"If Tissue Transglutaminase Ab, IgA is negative, the Endomysial Ab, IgA Titer by IFA is not performed."

Why does this have to be so difficult?!?

My oldest boy after all that, still didn't get the EMA test since the tTg was negative too. That was a fight I was sure to loose. He did get the antigliadin antibodies and antiretculin antibodies and the tTg. though. I think the antireticulin antibodies are not really used any more.

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