• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Alot of the flavored syrups are gluten-free (check to be sure a few flavors aren't). I like vanilla Silk creamer with plain coffee. Good luck. Its also possible something else is bothering you. If Starbucks flavorings don't bother you, you can buy them for your coffee at home.

Share this post


Link to post
Share on other sites

I guess I could try the syrups. I don't use anything with Splenda in it so it would add some calories to my morning coffee. I would still love to find ground flavored coffee that set well with me.

I called Folger about the vanilla biscotti but got the CYA statement that they can't guarantee it's gluten free because there are numerous times between harvesting and processing that it could have came into contract with gluten. All she could say was that coffee beans themselves are gluten-free. She wouldn't discuss what natural and artifical flavorings were used. Frustrating.

Share this post


Link to post
Share on other sites

So sorry you are having issues with coffee. I do know that any coffee flavoring can contain gluten which may be irritating you.

Share this post


Link to post
Share on other sites

Have you ever been in one of the packaging facilities for the mass coffee houses? There are only four in the US, and they handle all the coffee for all the brands. Folger's, MJB, Hills Bros, etc. The production lines used there handle a variety of blends, additives (including some which would contain gluten), etc. There is a huge CC issues. I don't trust any of the mass packaged coffees. I got green coffee beans (for about $3.80 to $4.50 a pound) and roasted my own coffee. Takes about a 1/2 hour to roast enough coffee for my wife and I for a week.

Share this post


Link to post
Share on other sites
Ads by Google:


It guess I never thought about how coffee was produced and packaged! Thanks for the tip! Looks like I can order unroasted beans online. This is probably a stupid question but, do I need to buy a special coffee roaster or can they be roasted in the oven?

Share this post


Link to post
Share on other sites

Hot air popcorn popper is what we use. Wear-ever popcorn pumper model works great and you can find them on E-bay cheap ($8-$15). Search for 'wear even popcorn'.

Share this post


Link to post
Share on other sites

I had no idea coffee beans could be CC. Seems like gluten is everywhere.

For flavored coffee, you can put some stick cinnamon in with the grounds, or add a drop of vanilla extract with the cream and sugar. Hershey's syrup is really good too if you don't mind the sugar. Frangelico liqueur is amazing in coffee, but I only do that on weekends when I don't mind a tiny bit of alcohol. B)

Share this post


Link to post
Share on other sites

Well yesterday I went to the allergy doctor because after I posted this topic my issues started getting stranger in that I was having tingling around my lips and gums and a strong metallic taste in my mouth after drinking coffee. Turns out I have developed a coffee allergy. I just thought I should update it so if anyone searched the forums they wouldn't be scared to drink coffee.

I still think the information about the mass packaging plants and home roasting was good advice!

Share this post


Link to post
Share on other sites

I have a reaction to coffee also. Just wanted to mention tea. There are a ton of flavored teas and plain teas you could substitute. But same deal, some of them have gluten in the flavorings. So be careful of them also. Plain tea should be ok. If you have hayfever the flavored teas with flowers etc are usually a problem also.

Share this post


Link to post
Share on other sites


Ads by Google:


I just broke out on my elbows after having Milestone Caramel Truffle coffee. I decided to check online to see if anyone else has problems with flavored coffees. It is difficult to know what is safe. I have random breakouts, with food that don't seem to have gluten in them.

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)

Share this post


Link to post
Share on other sites

I know this thread was started earlier this year. But I too have been having weird things happening to me and I think it's the coffee. For over a week I have had the swollen, itchy tongue, with D and tummy issues going on. I also saw a gray/white film on my tongue the other day. I did some research and I think I have a coffee/caffine intolerance. Apparently the mouth issues with the gray/white tongue is also related to caffine toxicity. So, those of you that experience any of these symptoms might want to try caffine free and see if it helps. That includes; no coffee, no tea, no caffinated soda, chocolate, etc.

*cry* going to miss my chocolate. :blink:

No bread or chocolate, you have got to be kidding me. *falls over, gets up and grabs some letuce.*

*sigh* :( Food just isn't fun anymore.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,918
    • Total Posts
      943,503
  • Member Statistics

    • Total Members
      67,109
    • Most Online
      3,093

    Newest Member
    DEBBIE_ANN
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yeah someone else said a few weeks ago that there local manger was very antimate that NONE of their shakes with celiac safe....as pointed out if one shake has gluten.....they use the same shake mixing machine...so THEY ALL will have gluten at that facility.....
    • I just saw your profile says thalassemia. My doc blames part of the microcytic anemia on thalassemia trait even though all my thalassemia gene tests have come back negative (and I don't have the right ethnic background). In a way I am hoping it is a FODMAP (carbohydrate) sensitivity instead of a gluten allergy because at least with the FODMAP you just have to stay low FODMAP and don't have to worry about crumbs and gluten cross-contamination like with celiac. I will check back in in 6 months once I see whether there are specific foods I can't eat or if it really does come down to gluten  Thanks for your support!!
    • Good for you for trying to manage your health.  My only suggestion would be to find another doctor.  Obviously, he does not even follow standard recommendations for screening.  I would worry that he overlooks other things too.  It never hurts to get a second opinion.  Second opinions have saved my family from unwanted surgeries and incorrect treatment.   The IgA (Immunoglobulin A) Test, in the case of celiac disease testing,  is a control test.  If he had ordered it, you would have known if the results are valid or not.  Now you are left in diagnostic Limboland.  Again, my TTG was negative it has never been positive even in follow-up testing.   You can go gluten free for life.  My hubby did that 17 years ago some 12 years prior to my diagnosis (per the advice of his GP and my my allergist).  But he will be the first to tell you that I get way more support from family, friends and medical. I wish you well!  
    • Okay so I had a peanut butter milkshake from steak n shake last night. I'm nearly positive that every thing else I've had recently has been gluten free. I have been feeling like my stomach is acting up a bit lately, but after this milkshake it is so much more intense. I considered maybe I'm sensitive to dairy too, but in the last few days  I've had plenty of dairy that didn't make me react  like this. The steak n shake website didn't list any real specifics on ingredients for milkshakes. I read in other forums that some shakes use a malt mix or syrup ( which I didn't see mentioned on the site), but it is corn based. I called the my local steak n shake and the guy said he is "pretty sure" it's corn based.  I called the customer service line and they couldn't tell me if it was gluten free or not. I found ONE listing on a website that said all shakes were gluten free expect peanut butter and one other flavor. I know this seems like a lot for one shake, but I'm so tired of not knowing what makes me sick. Has anyone else had an experience with this or has anymore knowledge about steak and shakes products?
    • So my tTG-IgA result came back negative. Doc did not do the total IgA so I could be in the 2% false negative. However my ferritin continues to fall (at 25 now so getting borderline to need another iron infusion, 6 months ago it was 50) and reflux was keeping me up at night so after the blood test I went on a gluten free and low FODMAP diet. 6 days later my reflux is gone! I had no idea it could work that quickly. I still feel like there is a lump in my esophagus and have a bit of difficulty swallowing (think I still have irritation in that area) but no more acid and regurgitation! Also have not had a single episode of gas or urgency or days with 8 BMs.  It has only been 6 days so maybe I am just having a good spell but am going to continue gluten free and low FODMAP for a month and then see if there are any FODMAP foods I can eat (but not gluten unless my doc decides I should have a biopsy) (I miss pears and apples). I guess the real test is to see if my ferritin levels start to go up-testing again in 6 months. The diet is very restrictive but worth it if it gets rid of the reflux and other symptoms. BTW post-menopausal (and before that I had an IUD for 10 years TMI) so no periods to blame for chronic microcytic/hypochromic anemia. Doc says "that's normal for you, you just don't absorb iron very well".
  • Upcoming Events