• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

I've seen posts here re. things like tachycardia that was caused by gluten, and I must say that my mild tachycardia has improved quite a bit since going g.f. back in March. But starting about a month before that, about early Feb. I think, I noticed that my heart would sometimes skip a beat. When I saw my doc in March I told her about it and she listened to it, but of course it wouldn't do it while she was listening. So that was when she said that she was sure that most of my many health problems were caused by gluten--they were all classic symptoms, and that I should do the challenge for a month. So I did, and several things began improving quite a bit within a few weeks, including the tachycardia.

But the skipping-a-beat thing has gotten much worse. Since my doc close at noon today, and besides she's an N.D. so I doubt she has an EKG machine---I went to another doc and had an EKG done. Although right now it's skipping beats about every 15 seconds, of course then it didn't. But it did when the nurse took my pulse and when the doc listened to it. She ordered blood work done because she thinks it may be due to a potassium or electrolyte imbalance.

Has anyone had this particular problem before going g.f.? And did it resolve after going g.f.? Like I said, mine's gotten worse, so perhaps it is e. or p. imbalances. I thought I'd be smart and start drinking something with eletrolytes right away, reasoning that it won't do me any harm (the tests are due back Wed. next week). So I went to the store and looked at the label on a bottle of Pedialyte and one of the main ingredients was dextrose. Are they kidding me? I can't drink sugar water! Dextrose is a form of sugar, right? Does anyone know how else I can get electrolytes, without consuming a bunch of sugar? I would get a potassium supplement, but I'm afraid of raising it if it's already normal. And since going g.f., fruit causes tons of stomach pain and diarrhea, so things like bananas and kiwis are out.

Any suggestions? This thing is really driving me nuts.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


For what it's worth, I have pretty much determined that my weird heart problems are caused by lectins in foods, including tachycardia, early and late beats, skipped beats, etc. As long as I avoid high-lectin containing foods (my intolerances are nightshades, legumes, soy, corn - gluten, of course - peanuts, and at one point citric acid) the symptoms go away. :)

Share this post


Link to post
Share on other sites

Does anyone know how else I can get electrolytes, without consuming a bunch of sugar? I would get a potassium supplement, but I'm afraid of raising it if it's already normal. And since going g.f., fruit causes tons of stomach pain and diarrhea, so things like bananas and kiwis are out.

Any suggestions? This thing is really driving me nuts.

I haven't had any major tachycardia issues, but I have a blood pressure issue (too low) that requires me to stay well hydrated and get lots of electrolytes. One part of my solution (aside from eating salty food because that's what the doctors tell me to do!) is to drink SmartWater. It is just water with electrolytes in it. Back when my BP issue got diagnosed, it was almost impossible to find but now you will find it in the water or soda/juice section of most every store. It tastes a little odd but it does a good job of replacing electrolytes for me.. And gluten-free, of course!

P.S. It will almost certainly make you need to pee more often--you've been warned! ;-)

Share this post


Link to post
Share on other sites

You can get potassium from eating Banana's. I would be careful, though... because you don't know if yours is high or low and either can cause problems. Most likely, it is low, but I would just hate to tell you to go eat a bunch of bananas and it be the other way around. ;)

If you aren't already, I would cut out the caffeine and take a good, quality multi vitamin. Also, the bad thing about palpitations is that stress will make it worse. If they continue to worsen or if they start to happen one after the other, then go to the hospital. 6 or more per minute is cause to treat if they are pre-ventricular contractions, but without an EKG-- you won't know the source. Generally, they are benign, but definitely something to look into and make sure they aren't from a heart problem.

Share this post


Link to post
Share on other sites

My tachycardia was related to my ferritin being so low. I have since gotten it up some that now it is not so bothersome. I still get it occasionally. Last bout was due to too much thyroid meds since I was absorbing them better. My one med was lowered and symptoms went away.

Share this post


Link to post
Share on other sites
Ads by Google:


Hey, thanks everyone! Smart Water....I think that's the same brand someone else mentioned to me. I'm going to look for it. In the meantime, after I posted last night, I remember coconut water. I happened to see it once while shopping and was reading on the can about how it's supposedly the perfect natural sports drink, as it was so refreshing and loaded with electrolytes. I bought it to try, as I was doing a rather tough workout at the time. I didn't like it though, which was odd, because I'm crazy about anything coconut! So I never bought it again, but last night when I thought about it, my husband went and got me some. This was a different brand, and good. I hated to have to drink it though because I'm eating very low-carb...mostly lean meats and lots of veggies, and this stuff is very high-carb. :( But I thought, instead of drinking a whole "serving" at once, I'll divide it up into smaller servings, and drink it a few times a day. I drank about 6 oz. last night before bed and my heart didn't but me as much as the night before. Then I drank a few more oz. late this morning, and my gosh, it's much better! It's amazing! But really, if I can get the Smart Water (which should be low-carb, right?) I rather drink that.

I should know by Wed. exactly what's going on, when the tests come back.

Share this post


Link to post
Share on other sites

"I've seen posts here re. things like tachycardia that was caused by gluten, and I must say that my mild tachycardia has improved quite a bit since going g.f. back in March. But starting about a month before that, about early Feb. I think, I noticed that my heart would sometimes skip a beat."

Years ago I would have times when my hear seemed to be pounding and it felt like it was skipping beats and with an uneven rythem. I have a mitral valve stenosis (heart murmur) and thought it was related to that so had ekgs done which were completely normal. The murmur is so mild it does not give me any problems but the apparent skipping beats and pounding turned out to be spasms in my small intestine and that was one of the problems which cleared up on the gluten-free diet. I still get some spasms but nothing like the strong symptoms I had earlier and would sometimes keep we awake all night. If this is the cause of your problem you may want to do some 'home remedies' to improve your digestive system and help your intestine heal from the celiac disease damage. Liver cleanses to get out gall stones may help, see my profile page for the book I use.

Share this post


Link to post
Share on other sites

Hulda Clark....I've heard of her. I'm going to check out that book, thanks!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,915
    • Total Posts
      943,492
  • Member Statistics

    • Total Members
      67,088
    • Most Online
      3,093

    Newest Member
    Shaunathedead2112@gmail.co
    Joined
  • Popular Now

  • Topics

  • Posts

    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
    • In many cases no.....I consume heavy magnesium foods like pumpkin seeds, cocoa nibs etc....and still need 2-3x the dose of magnesium recommendations. Going on more of what poster boy said. You dose magnesium to tolerance with citrate like Natural Vitality Calm you start off small partial doses and slow ramp up....it can hit you hard causing gas and D if you go to quick into it. You dose citrate to tolerance meaning you slowly up your dose til you get loose stools...then back down a bit. You should have vivid dreams with a good dosing....also if it becomes to harsh or you can not handle citrate there is Doctors Best Glycinate...it does not have the gut effects at all...but the dreams and how much it makes you relax is more more felt.   ...with this disease you can have a food intolerance or allergy crop up out of the blue....like no where. You have a autoimmune disease....celiac it effects your immune system and can make it really wonky. Like it seems to always be on guard like a sleep deprived sentry on stim packs...jumps at everything and shoots it. If you get sick, eat something odd or harsh you system might red flag it as a issue for awhile and go bonkers....keep a food diary and try a food rotation in the mean time...OH as a example to this, I was fine with chia seeds last week...I got a cold over the weekend....same bag, same brand same way....withing 30mins I now puke if I eat them...new intolerance.....I also am finding jalapenos/paprika making it sleepy tired....so I am removing them both for a few months from my diet and changing to other sources for fats/fiber and vitamin A/C til I get over that issue.....these things just happen. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Hi Isabel, Your body needs nutrients to grow.  Nutrients not absorbed well when we have celiac disease damage in our guts.   But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again. The thing to remember is celiac disease is an immune system reaction.  Immune reactions are very sensitive and just a tiny amount of gluten can get them going.   And they can last for months.  So it;s very important to avoid all gluten all the time, to keep the immune reaction down.  Keeping the immune reaction down keeps the damage down, and the healing can keep up. You may start to grow more if you can absorb nutrients better.  Some extra vitamin pills might be a good idea.  Your doctor should know.  
    • Thank you Gail for your response. Of course one should be mindful of the possibility of food allergies but I don't think that's the case with my current situations. Save for gluten containing product, everything I eat now I used to eat before with no reaction whatsoever. I think my issue is more likely to be deficiency in minerals and such.
  • Upcoming Events