• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cd And Dh
0

9 posts in this topic

Hello everyone,

I am new to celiac disease and relatively new to this message board. I have been researching this disease all I can and have read numerous amounts of posts. I found that Dermatitis Herpetiformis is closely related. I was just wondering if anyone on here had that. This last winter I got a terrible rash on the insides of my knees and butt. It itched terribly and creeated a bunch of sores. There were pictures of DH online, but it didn't looke exactly the same. I did read, however, that it occurs symmetrically. I'm just curious as to if anyone had it or knows things about it that aren't on the websites. I only had that happen one time- but it lasted about a week. It never fully went away, though, because wheneve I get in the shower, I can see where it was on my knees. It is rather strange. Hah.

I was also wondering if anyone grinds their teeth and if this has anything to do with celiac disease or DH. I guess this sounds like a strange question, but I've been looking at people's symptoms and some of them seem pretty unrelated, so I thought I would give it a try.

One more thing- I found a discount grocery store yesterday, and it was chock full of gluten-free items! I found some cookies, pasta, and crackers.. ALL 99 cents AND buy one get one free! I was so excited. I just thought I'd let everyone know in case they have one near them or something. The one near me gets mostly gourmet and organic items... which is odd because I live in a rather "redneck" area. Haha.

Thank you all so much- this has been SUCH a great help for me and my family.

Mari

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I've had DH for 2 years, but was only properly diagnosed last month. I don't know how much info on DH you have, but avoid iodine at least for a while. I can tell right away if I've had iodized salt or even too much sea salt.

DH is ideopathic, it seems to have a life of it's own. In the 2 years I've had it there have been some times when it has been almost gone for several weeks, and some times when I've been covered head to toe.

"It never fully went away, though, because wheneve I get in the shower, I can see where it was on my knees."

I have that too. When I get out of the shower the places where my DH breaks out the worst are always red and slightly puffy looking, even if I don't have a bad outbreak at the time.

I grind my teeth, but I have always done it. I do find that I grind them a lot more when the itching is really intense, but that is pretty understandable.

0

Share this post


Link to post
Share on other sites

Wow- well, maybe I need to get checked for that. What you described sounds just like me. I went through a phase where I ate tons of pickles- I bet that is when I had that problem. Interesting... What kind of test do you have to determine if you have DH? Do you also have Celiac Disease or is that something different? Sorry to be picking yor brain, I just am happy to find someone that can answer some questions. Thank you so much!

Mari

0

Share this post


Link to post
Share on other sites

I was tested for celiac, I was actually not tested for DH but it's clear that it's what I have. I've actually never heard of anyone having DH but not having celiac disease, although it may be possible.

0

Share this post


Link to post
Share on other sites

Both our celiac disease family members are also DH. What you describe could very well be dh. It does seem to have a life of its own. I wanted to take a minute and comment about the teeth grinding. This can have long term complications if you don't deal with it now. The best thing the dentist ever did for me was to creat what is called an NIT. It is a small plastic insert that is formed to fit your teeth. You wear it at night and it keeps the teeth and jaw in place so that you don't grind. It saves the teeth, the jaw, and the muscles from all that wear and tear.

I agree with the comment earlier about avoiding iodine. I just switched to plain salt. Be very careful to ensure that you are fully gluten-free, even your deodorants, shampoos, etc. Double check your laundry detergent and carefully vacuum (or better yet, clean) your furniture and mattresses. If our non-gluten-free household members nibble and leave crackers on the furniture, then I come in and sit down to watch TV, the next day I will wake up broken out. Hopefully you are not quite so sensitive!

Good luck with it all. Feel free to ask questions, but try to search the site for your answers to the simple ones first.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I was tested for celiac, I was actually not tested for DH but it's clear that it's what I have. I've actually never heard of anyone having DH but not having celiac disease, although it may be possible.

I think if you have DH you have to have celiac. Basically DH is a "symptom". It is a skin reaction to gluten and they say that people with DH still have the damage in the intestines. If I am wrong on this someone please let me know..this was what I perceived from the info I have got.

0

Share this post


Link to post
Share on other sites

Yes, Kaiti, you can have celiac disease without the DH but there are very few with DH who do not also have positive biopsies. I wonder if even those have false negatives. I know that if I get glutened, the skin outbreak will follow just after the gastro stuff. It tends to last longer, though...months off and on instead of days or weeks.

0

Share this post


Link to post
Share on other sites




Yes, Kaiti, you can have celiac disease without the DH but there are very few with DH who do not also have positive biopsies. I wonder if even those have false negatives. I know that if I get glutened, the skin outbreak will follow just after the gastro stuff. It tends to last longer, though...months off and on instead of days or weeks.

I know you can have celiac disease without DH but I was saying if you have DH don't you have to have celiac disease?

I have never heard of someone with DH who did not have celiac.

Biopsies can have false negatives.

I wish my uncle would get tested...he has alot of stomach problems like I did and he gets itchy bumps sometimes...but he won't get tested.

0

Share this post


Link to post
Share on other sites

I think the most important thing for people to understand about DH is that everyone's case is different. I have flare ups when I use iodine, but also when I am using anti inflamatory drugs, ike motrin. My worst flare up was when someone made me gluten-free cookies with oatmeal in them. My dietician told me oats were fine, but they seem to trigger DH in me (But not GI symptoms!)

I have been gluten-free for over a year now, and can hardly see where my DH used to be. My scars from the biopsies have also faded and I feel really great. Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,375
    • Total Posts
      935,753
  • Member Statistics

    • Total Members
      65,057
    • Most Online
      3,093

    Newest Member
    hoperising
    Joined
  • Popular Now

  • Topics

  • Posts

    •  I have a friend with MS, another with breast cancer and a third with RA.  At the same age my only problem is I cannot eat gluten!  So when I start getting frustrated about food I think about that and how lucky I truly am.  Once you get in the swing of it it gets easier and then you start to feel better which makes it all worth it.    Also when I first went gluten-free I read on this group about Mark's daily Apple and the Paleo community. I turned to that which was extremely motivating.  I've never seen so many people so excited about not eating gluten. It was a very positive energy and motivated me to find other foods to eat. Also, they love bacon! 
    • I know I needed the confirmation.  My hubby went gluten free per the very poor advice from my allergist and his GP.   It worked, but we really do not know if he has celiac disease.  He refuses to do a gluten challenge and I do not blame him.  We do know that gluten makes him sick.  He has been gluten free for 16 years.   So, when my GI suspected celiac disease, I could not believe it.  I had no tummy issues at the time, but was anemic.  Had been my whole life and it was blamed on a genetic anemia and menstruation.  I knew what being gluten free meant and I did not want to have celiac disease.  But,   I got positives  on the DGP and my biopsy.    Nothing like seeing something in writing.  I showed that to my extended family who was in denial as well.   I had a shared household with hubby all those years.  But after my diagnosis and the fact my kid started making things in the kitchen, we all went Gluten Free.  Great kid, but I could not trust her with my health!  If you DD has small siblings, consider all going gluten free.  They can eat gluten outside of the house.  That is what my kid does.  
    • Yes, I used to write a lot, for work and pleasure. Now, not so much. Which probably explains why you guys have to suffer the occasional bout of nonsense!
    • Some cookware you can get rid of the gluten by running in the oven clean cycle then scrubbing. Gluten is a protein not a germ, so disinfectant will not get rid of it but high heat above 500F can destroy the proteins. This way you can save cast iron and some baking pans/sheets. To make double sure after, use foil and parchment paper in baking pans/dishes also makes clean up real easy. Butcher paper makes a nice clean counter top/work area and after your done your can pick it up dump it off into the trash for easy clean up and after a few days or if it gets real messy just toss it. Really makes kitchen cleanup easier and changed my life. OH get new untenil organizers for your drawers to avoid gluten crumbs getting on your silverware/new utensils and vacuum out all drawers real good, Make sure you clean out the cupboards, and fridge real good for crumbs.
    • JMG,  I just read your link and the posts about your non celiac diagnosis and although they are about a painful experience, they are enjoyable to read. You are very talented. Have any of your jobs involved writing?
  • Upcoming Events