This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
You could try going nightshade free to see if it helps your arthritis. It might help. The common food nightshades are potatoes, tomatoes, peppers, eggplant, turmeric and paprika. If you try nightshade free for one month that should be enough time to know if it helps IMHO. Sweet potatoes/yams are ok, as they are not nightshades.
Thankyou both of you for your advice, i will have the endoscopy will just have to wait, my blood tests were not hitting the roof with reading but a low to medium result, dont want to be one of them people who have gone gluten free with no need, however i do show typical symptons of celiac but no overwhelming symptons apart from feeling nauseous and crampy at times, and extreme tiredness. There is soooo much to learn
You are normal! All the things you are going through are normal for someone with celiac disease....probably with any life changing illness. What you need is patience. Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage. The nervous system seems to take the longest. Ask your doctor to check you for any deficiencies. No sense guessing what you might need. It is a common and recommended practice to check for vitamin and mineral deficiencies.
Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.
Yes! Ask for the IgA deficiency test! Why? Well, your doctor did not even follow protocol. In order to validate the IgA celiac tests, he should have determined if you are IgA deficient or not.
I have never tested positive on the IgG tests and only had one positive on the IgA DGP test, but I was not IgA deficient, so my GI knew that my test was valid and I needed an endoscopy to confirm my diagnosis. You do not know if any of your tests are valid. You need the IgA test. It is a control test only in the case of diagnosing celiac disease. But....some celiacs are low in IgA and that seems to happen more often in celiacs than the general population.
Almost EVERY single celiac expert in the world and/or groups like the U.K./U.S. Gastroenterologist Associations recommend obtaining biopsies for diagnosing celiac disease. There are some exceptions. If you are too ill to even risk an endoscopy, your celiac panel is extremely high on several of the celiac tests (this is still debatable), you have long wait times in getting the endoscopy (government health wait times) or you can not afford to get one are all acceptable.
You know your situation and will have to determine what is best based on your doctor's input.
The blood tests are not 100% accurate. Heck, I tested positive only to a really odd one (the DGP IGA). I had no noticeable symptoms. I chose the endoscopy. I never wanted to doubt my diagnosis as my hubby went Gluten Free some 16 years ago based on the poor advice of two medical doctors. He got well, but does he really have celiac disease? He would be the first to say that I have had way more support from family, friends and medical, yes, medical.
I hope this helps. Best to research like you are doing so that you feel comfortable and committed.