This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
I was never fully glutenfree. Tried it and then got such bad hypglycemia. My blood sugar started to drop dangerously low every hour. After that I decided to take it step by step. I had only 2 slices of bread left. But still have 1,5 slices of bread left. Right now I fall asleep after meals with only tiny amounts of carbs, even if that is non gluten. This is because my cortisol has gotten too low. And my female hormones as well. This all got this bad upon tryng to cut out gluten. As there is no doctor yet to support me in this, it is too dangerous to continue on my own.
The stool and saliva test are not considered to be valid by mainstream medical. Helpful tools, but again, not recognized by the GI Association. You need to be on a gluten diet for 8 to 12 weeks prior and then ask your endo or PCP for a celiac blood panel. KarenG gave you a link that explains the testing.
I certainly sounds like you should do the gluten challenge and get retested.
I am officially diagnosed, but my hubby is not. He went Gluten Free per the poor advice of two medical doctors. It worked though. He saw enough improvement to make him adhere to the diet for 16 years. He never cheats on the diet. I need my diagnosis since I did not have GI issues at the time of my diagnosis. I could not believe that both of us would have gluten issues.
I hope you figure it out and your health improves!
Wow! Good for your daughter asking if the medication was gluten free.
She might not be lactose intolerant at all. It is the one intolerance that is most common among celiacs. Just stay the course. It just takes time. Each individual is different as to how they heal. Kids are supposed to heal faster.
Will the GI recheck her antibodies at three months or six? Follow-up Care is important.
Soon, she will be just fine!
Well I was going to attach the copies of the test but it says the file is too large. The stool results are from a "Comprehensive Stool Analysis/Parasitology x3 test by Progressive Medical. Sample 1 had rare RBC, WBC, and Yeast. Sample 2 had Rare yeast. And Sample 3 had Rare RBC and yeast. The yeast amount is in the normal range but it doesn't say anything about RBC health.
I'm not sure if a "rare" amount of RBC (in my stool, yes) means anything but this holistic provider thought it meant I needed further investigation. She was also the one who diagnosed me with Celiac though. My grandfather did have colon cancer so maybe she is being precautionary.
Other tests from 2017 (don't remember if I was eating gluten that week but I have been on and off for a few months):
T-transglutaminase, IgA 4 (range 0-20)
IGa Antibody 186 (range 81-463)
Antigliadin Abs, IgA 12 (range 0-20) and the REticulin IgA and IgG were negative.
Lysozyme 644 (range <600), indicates inflammation
Secretory IgA 150 (range 51-204)
Saliva test from 2014 (was eating gluten then):
sIgA 61.7 range (25.9-136.5)
Gliadin IgA (gluten) 18.6 H (normal <6.0)
Gliadin Antibody Ration 30.1 H (normal <22.4%)
This is pretty confusing... Please let me know what y'all think!
Noticing I am having D quite easy nothing bad, painful or gassy, just D or super soft stool in the mornings for the past 4 days. Food Diary suggest several culprits, my BBQ jackfruit seems to be the number one suspect, This is my BBQ cuisine week or two and I can not eat meat so I have a big wad pinch of shredded homemade BBQ Jackfruit. I have done a gluten test on it and that is not the reason but perhaps the seasonings or perhaps hte cider vinegar I put it in fermented it a bit?
Other thoughts on culprits, I have upped my vitamin C intake to about 1500mg a day spaced out in 2 doses Vitamin C has been linked to D in many cases and is one reason why some people get D when they take a vit C supplement in conjunction with fruit.
I have also upped my cocoa nib intake this could be a culprit also,
I have cut back on binding seeds like flax, whole shell pumpkin, and chia which used to be a huge fiber supplement so this could be the cause of more softer stools.Next week I start back on chia seeds in my eggs and we shall see if my stools firm back up.
I also doubled up on probiotics as I was taking half the recommended dose prior.
Eating a bunch more cinnamon, and cinnamon oil, but I do this on rotation so doubt it,
My new low carb bread, I am eating 2-4 slices of this grain less bread a meal now. This could be it but this bread using coconut flour in it, and egg whites. I doubt this is the case, as coconut flour is known to absorb liquid a lot, and tends to firm up ones stool and in fact cause constipation in people if they do not consume it with a lot of liquid. I came across health concerns with other bakers when I was working on this recipe about it.
My protein intake went up to double what it used to be 5 weeks ago, doubt this is the issue but this week, I changed it using a custom blend with MUCH less rice protein and more pea and sancha inchi. I noticed the more rice protein I consumed the worse my edema got with legs and feet swelling. Have this well under control now with no swelling,
I considered it perhaps my extreme coffee intake but I have changed to only 2 cups of caffeinated coffee a day starting mid last month. Down from a whole pot.......so now I drink about a pot of decaf a day. I doubt this is it as it never gave me a issue with the much more likely culprit of full on caffeinated in the same amount.
While I try to trouble shoot it I am actually slightly enjoying it. Odd as this might sound, I spent most my life with chronic constipation, and the only relieve I used to get came with a glutening and that had EXTREME pain and gas. Followed by a week or so of constipation so bad I had to take laxatives. This....this is just a release with no pain or gas....odd and creepy but I seem to have much more energy, and I can eat and drink a lot more. >.< I think I might enjoy this ride a bit of regularity even if it is a bit off, it is a huge change from my hard stools and painful movements of years past. I mean I have gone as far in the past as taking a entire bottle of miralax to try to go and just had gassy normal BM 24 hours later and frankly miralax makes me feel like groggy, tired, and like the blob, I am that guy that had to double the dose of everything for the scope prep and had the doctor think I cheated when I told him the first time I did it right and did not clean me out. I want to find out what is triggering this and add it to my regime for clean out or laxative treatment after a glutening next time when that C hits for a week.