Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Does Anyone Have Bad Reactions To Quinoa?


GlutenFreeManna

Recommended Posts

GlutenFreeManna Rising Star

Hi, I'm new to gluten-free eating. I've only been doing this since January. Yesterday I had the worst reaction I've had to something for months. The only thing I ate that was unusual was quinoa pasta the night before. I don't eat a lot of processed food, for the most part I eat steamed veggies and meat. My husband is very supportive and he will only eat what I am able to eat while we are at home (he will deviate if we go out to dinner, because I have encouraged him to get whatever he wants). Anyway, I have been able to completely clear my kitchen of gluten this way (or so I thought). I bought new pot and pans, etc to make sure everything was gluten-free. I have had a few minor incidences that happened while eating out, or because I didn't know all the questions to ask my host (I'm still learning). But each time it was pretty easy to figure out what made me sick. So I can't figure out how I got this sick. I spent all day yesterday doubled over in pain and rushing to the toilet every 20 minutes. Today, the pain is still there, but is much less. The ONLY thing I ate out of the norm was Ancient Harvest Quinoa pasta, which is labeled gluten free, with the only ingredients being Organic Corn Flour, and Organic Quinoa Flour. I know that corn is not a problem for me as I often make it as a side dish and I have had corn only pasta (Mrs. Leepers, I think?) once before That was wonderful. So does anyone reaction to quinoa the same as gluten?

Oh, I also wanted to mention I cook soy-free, dairy-free (except for yogurt and real butter), and yeast-free, and I am allergic to shellfish, pork and mushrooms.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluebonnet Explorer

i've not had any problems with quinoa ... its become a favorite of mine. :)

Link to comment
Share on other sites
chasbari Apprentice

Gave me problems the only time I tried it early on in my healing process. I have opted to stay away from it as a result. In no hurry to see if I have overcome it or not..

Link to comment
Share on other sites
NorthernElf Enthusiast

No problems here - I buy a brand from Costco that has gluten free written right on it. I eat it on a regular basis - healthy stuff.

Link to comment
Share on other sites
i-geek Rookie

I haven't had any problems with quinoa either in grain form or in the pasta, but that doesn't mean that you couldn't be intolerant to it. I think people can develop intolerances to just about any food, especially those of us whose illnesses have damaged our intestines.

Link to comment
Share on other sites
GlutenFreeManna Rising Star

Gave me problems the only time I tried it early on in my healing process. I have opted to stay away from it as a result. In no hurry to see if I have overcome it or not..

Thanks. At least I'm not the only one. I feel bad about not being able to enjoy it, because a friend of mine (who is not gluten-free, just a health nut) kept telling me about how great it is and all the health benefits. I don't have any desire to try it again now for a long, long time.

Link to comment
Share on other sites
heatherjane Contributor

Hi, I'm new to gluten-free eating. I've only been doing this since January. Yesterday I had the worst reaction I've had to something for months. The only thing I ate that was unusual was quinoa pasta the night before. I don't eat a lot of processed food, for the most part I eat steamed veggies and meat. My husband is very supportive and he will only eat what I am able to eat while we are at home (he will deviate if we go out to dinner, because I have encouraged him to get whatever he wants). Anyway, I have been able to completely clear my kitchen of gluten this way (or so I thought). I bought new pot and pans, etc to make sure everything was gluten-free. I have had a few minor incidences that happened while eating out, or because I didn't know all the questions to ask my host (I'm still learning). But each time it was pretty easy to figure out what made me sick. So I can't figure out how I got this sick. I spent all day yesterday doubled over in pain and rushing to the toilet every 20 minutes. Today, the pain is still there, but is much less. The ONLY thing I ate out of the norm was Ancient Harvest Quinoa pasta, which is labeled gluten free, with the only ingredients being Organic Corn Flour, and Organic Quinoa Flour. I know that corn is not a problem for me as I often make it as a side dish and I have had corn only pasta (Mrs. Leepers, I think?) once before That was wonderful. So does anyone reaction to quinoa the same as gluten?

Oh, I also wanted to mention I cook soy-free, dairy-free (except for yogurt and real butter), and yeast-free, and I am allergic to shellfish, pork and mushrooms.

Just wondering...did you double check the box to make sure it wasn't the one that contained wheat? That company makes a completely gluten free quinoa pasta, but they also make one that is a quinoa-wheat blend. I accidentally picked up the wrong one at Whole Foods one time because they inadvertently stocked it in the gluten free section. They moved it off that shelf as soon as I said something, but it would be an easy thing to miss since the packaging looks so similar.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Just wondering...did you double check the box to make sure it wasn't the one that contained wheat? That company makes a completely gluten free quinoa pasta, but they also make one that is a quinoa-wheat blend. I accidentally picked up the wrong one at Whole Foods one time because they inadvertently stocked it in the gluten free section. They moved it off that shelf as soon as I said something, but it would be an easy thing to miss since the packaging looks so similar.

That's a good thought, I didn't know they made wheat pasta as well, but I am 100% sure it was their "gluten free" box. I know because I avoid soy as well and I always check the ingredients--many gluten free items have soy. The box had exactly two ingredients: ORGANIC QUINOA, ORGANIC CORN. Now that I know they make wheat pasta, however, you got me wondering if the quinoa pasta was made on the same equipment and there is a cc issue with that company.

Link to comment
Share on other sites
sunnybabi1986 Contributor

I eat Ancient Harvest Quinoa Pasta ALL the time with no problems. Sorry to hear you got so sick. :(

Link to comment
Share on other sites
T.H. Community Regular

I'm really sensitive, but I've never reacted to it. However, when I was first researching what I could and couldn't eat, I recall seeing that quinoa was on the 'maybe' list for celiacs. From what I read, they have actually only 'officially' tested a few of the other grains for celiac folk. Doctors assume all others that aren't wheat, rye, or barley are fine, but every once in a while, you can still find a precaution against quinoa, gluten-free oats, and a few other grains. Something to the effect that SOME celiacs seem to have problems with these.

Also, however...were you near any construction, or doing any art projects? Dry wall dust has gluten, and I believe tempera paint does as well, so if it's something like that, it might be possible to be glutened by something that wasn't your food at all, yeah? Just inhale it, and some will make it down your gullet and you're toast, bleh.

Hi, I'm new to gluten-free eating. I've only been doing this since January. Yesterday I had the worst reaction I've had to something for months. The only thing I ate that was unusual was quinoa pasta the night before. I don't eat a lot of processed food, for the most part I eat steamed veggies and meat. My husband is very supportive and he will only eat what I am able to eat while we are at home (he will deviate if we go out to dinner, because I have encouraged him to get whatever he wants). Anyway, I have been able to completely clear my kitchen of gluten this way (or so I thought). I bought new pot and pans, etc to make sure everything was gluten-free. I have had a few minor incidences that happened while eating out, or because I didn't know all the questions to ask my host (I'm still learning). But each time it was pretty easy to figure out what made me sick. So I can't figure out how I got this sick. I spent all day yesterday doubled over in pain and rushing to the toilet every 20 minutes. Today, the pain is still there, but is much less. The ONLY thing I ate out of the norm was Ancient Harvest Quinoa pasta, which is labeled gluten free, with the only ingredients being Organic Corn Flour, and Organic Quinoa Flour. I know that corn is not a problem for me as I often make it as a side dish and I have had corn only pasta (Mrs. Leepers, I think?) once before That was wonderful. So does anyone reaction to quinoa the same as gluten?

Oh, I also wanted to mention I cook soy-free, dairy-free (except for yogurt and real butter), and yeast-free, and I am allergic to shellfish, pork and mushrooms.

Link to comment
Share on other sites
Looking for answers Contributor

Interesting fact: Quinoa is actually a seed.

Link to comment
Share on other sites
O.N. Rookie

...The ONLY thing I ate out of the norm was Ancient Harvest Quinoa pasta, which is labeled gluten free, with the only ingredients being Organic Corn Flour, and Organic Quinoa Flour. I know that corn is not a problem for me as I often make it as a side dish and I have had corn only pasta (Mrs. Leepers, I think?) once before That was wonderful. So does anyone reaction to quinoa the same as gluten?

...

I am on a gluten-free diet for almost 5 months and still have problems with many foods, including grains in general. I have pain and bloating when I eat a bowl of grain which may feel almost as a reaction for gluten. I discovered I can eat only a small amount of grain (the safe ones of course) because of the high content of fiber. I decided to wait until my gut heals before. I just eat safe veggies and proteins (no spices etc) and I feel much better now.

Maybe you should wait with grains until your gut heals? B)

Link to comment
Share on other sites
heatherjane Contributor

That's a good thought, I didn't know they made wheat pasta as well, but I am 100% sure it was their "gluten free" box. I know because I avoid soy as well and I always check the ingredients--many gluten free items have soy. The box had exactly two ingredients: ORGANIC QUINOA, ORGANIC CORN. Now that I know they make wheat pasta, however, you got me wondering if the quinoa pasta was made on the same equipment and there is a cc issue with that company.

Actually, they make their gluten free pasta in a gluten free facility - at least that's what it says on the box. It's quite possible that you do have issues with quinoa, since some people really do, but I'm wondering since you had such a rough reaction that maybe you got gluten somewhere else and overlooked it. Are your medications, vitamins, lip products, etc gluten free also? Gluten is everywhere and uncovering all its hiding places sometimes comes by trial and error.

Link to comment
Share on other sites
Mari Explorer

I have not been able to eat quinona, I knew it was pure because I grew it. I can eat sprouted quinona - one of my friends brings sprouted gluten-free quinona dishes to our garden club dinners. Raw quinona has a toxin which must be washed off before preparing so maybe the batch of noodles you got had not been washed enough for your sensitive intestine. I bought some gluten-free granola not too long ago and found some of the clumps were moldy and molds produce toxins. If in the processing the quinona didn't dry quicky enough molds could have grown. I bought some probiotics last year and they were also moldy - companies are always fighting the mold problem. I wrote the company and the bottle I bought recently is OK.

Link to comment
Share on other sites
RunnerMom Newbie

I have had CRAZY bad reactions to quinoa! Worse than gluten: I get immediate stabbing pain in my stomache, sweaty with chills, 'D', etc. It's weird because I could eat it at first then all of a sudden, one day I had a violent reaction to it. I bought amaranth as a replacement and the same thing happened! After that I read online that both are in a similar class of grasses (I think -someone correct me if I am wrong b/c I looked a couple years ago). Anyway, I stay away from both now, which is a bummer b/c they are a nutritious alternative to wheat and lower glycemic index than rice flours. Now I have found Chia flour and Chia seeds and I use this instead. It's super healthy, higher in Omega 3s than flax seed, more digestable, high in fiber...all the stuff WE need. Check it out. :)

Link to comment
Share on other sites
GlutenFreeManna Rising Star

I have not been able to eat quinona, I knew it was pure because I grew it. I can eat sprouted quinona - one of my friends brings sprouted gluten-free quinona dishes to our garden club dinners. Raw quinona has a toxin which must be washed off before preparing so maybe the batch of noodles you got had not been washed enough for your sensitive intestine. I bought some gluten-free granola not too long ago and found some of the clumps were moldy and molds produce toxins. If in the processing the quinona didn't dry quicky enough molds could have grown. I bought some probiotics last year and they were also moldy - companies are always fighting the mold problem. I wrote the company and the bottle I bought recently is OK.

I have had CRAZY bad reactions to quinoa! Worse than gluten: I get immediate stabbing pain in my stomache, sweaty with chills, 'D', etc. It's weird because I could eat it at first then all of a sudden, one day I had a violent reaction to it. I bought amaranth as a replacement and the same thing happened! After that I read online that both are in a similar class of grasses (I think -someone correct me if I am wrong b/c I looked a couple years ago). Anyway, I stay away from both now, which is a bummer b/c they are a nutritious alternative to wheat and lower glycemic index than rice flours. Now I have found Chia flour and Chia seeds and I use this instead. It's super healthy, higher in Omega 3s than flax seed, more digestable, high in fiber...all the stuff WE need. Check it out. :)

Thank you Mari and RunnerMom for your replies. Yes, this reaction was worse than any glutening I have had. RunnerMom I will not be quick to try Amaranth, if that is the case. I have not tried chia flour yet, but I will remember it for later. I think I'm going to stick to mostly steamed veggies and safe meats for now. I guess I need to let my stomach heal more.

Link to comment
Share on other sites
gary'sgirl Explorer

Hey, I just thought I would add that I have had very bad reactions to quinoa too. I thought I had to be wrong, but sure enough every type that I tried made me sick (flour, pasta and the whole grain).

Oh, and when i realized it was the quinoa that was bothering me I went to Ancient Harvests web site and they are probably one of the most safe companies to buy quinoa gluten free. They really take extreme measures. The only thing in their gluten free line that I would be careful of is their quinoa flakes, because they are processed in a different facility.

Link to comment
Share on other sites
  • 1 month later...
Nike-D Newbie

I ran across your post when I did a search to see if other people have had a bad reaction to quinoa. I feel pretty sick. I had a dinner party and made a quinoa salad. It was very good, but now I feel sick. It's been several days. It usually takes me a week to recover from anything :-(.

I think my stomach must be really sensitive and just can't handle it. I agree with people who suggest that it could be part of the healing process. I'm probably not going to try it anytime soon. Hope you feel better.

Link to comment
Share on other sites
mushroom Proficient

I am aqlso intolerant of quinoa - horrible much, ghastly reactions :huh:

Link to comment
Share on other sites
T.H. Community Regular

An interesting note on safety of grains.

Wheat, rye, barley, oats, rice and corn are the only grains that have actually been rigorously tested for celiac disease safety. All other information on grains and similar plants, last research I read, is based on assumption of safety, but no actual studies.

So Teff, amaranth, quinoa, job's tears - none of it has been tested. I've read a few celiac groups that list quinoa as a bad grain for some celiacs, because they keep having reports of people reacting to it.

There's an interesting scientific article on it, here: Open Original Shared Link

If it helps try to determine exactly what got you - if you checked for that gluten pasta already mentioned - maybe my reactions might help? I am SUPER sensitive to gluten AND all the other allergens you listed, and I use the Ancient Harvest brand as well. I don't react to the quinoa, and I haven't reacted to any products from this brand, so I would assume that if you are reacting, quinoa is what got ya.

Link to comment
Share on other sites
  • 1 month later...
jjane Newbie

I just bought the organic quinoa from Costco to make a chocolate gluten free cake. I have had a TERRIBLE reaction to quinoa. Have have not had one so severe for 45 years!!

Link to comment
Share on other sites
jjane Newbie

I have had a very severe reaction to quinoa. Will not ever use it again. Worst symptoms in 45 years.

Link to comment
Share on other sites
jjane Newbie

Thank you Mari and RunnerMom for your replies. Yes, this reaction was worse than any glutening I have had. RunnerMom I will not be quick to try Amaranth, if that is the case. I have not tried chia flour yet, but I will remember it for later. I think I'm going to stick to mostly steamed veggies and safe meats for now. I guess I need to let my stomach heal more.

Thank you all your feedbacks regarding quinoa. I thought maybe I was the only one. My reaction has been the most severe in 45 years of being gluten free.

Link to comment
Share on other sites
precious831 Contributor

Quinoa is not a grain, it's a seed. It's closely related to spinach, and beets. My family and I are mostly grain-free(we try) and this is one that we eat. I buy the Ancient Quinoa brand, I soak it overnight and rinse very well before I cook it.

I read somewhere(If I remember I'll post it) to soak it to remove the covering which is the one causing GI issues. My naturopath said the same thing. He said to soak all grains(and legumes) and also quinoa and buckwheat for at least 6 hrs.

Try it, it might help.

Link to comment
Share on other sites
Aphreal Contributor

I've heard this about quinoa ESPECIALLY for new celiacs. I think I'll just steer clear of it. I have plenty in my recipe box without it :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
×
×
  • Create New...