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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Many Are Not Gluten Free
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I was wondering how many people on here are not gluten free, but have a loved one that is? I am not gluten free, but I got on the forum because my hubby was diagnosed with Celiac's. I knew I would be in the minority here but sometimes I feel like I am the only one on here that is not gluten free. Just wondering.

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I'm not one of them, but there are quite a few members, including two of the moderators, who are not gluten-free, but have a child with celiac disease.

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It's so nice of you to join a group like this to learn about celiac for your hubby!

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I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

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I am in your boat. DH is gluten free, I am not.

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I'm the same as you. Hubby has celiac disease.

This is a great board with lots of people willing to help you out.

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I'm not gluten free.

My daughter was diagnosed 3 years ago and as it's not realistic to expect a (then) 6 year old to shop or cook for herself . . . not only did she not have a large enough allowance to pay for her groceries, she wasn't allowed to turn on the stove . . . :P:lol:

I've learned a LOT in the last three years!!!

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I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

This describes me best.

Hubby and 1 of my sons have celiac disease. I'm gluten-free 95% of the time (mainly because it's easier)...but do eat gluten if I eat out :D

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Hi Friends, This is my first post because this simple question hit home for me. My Mom has lived with my husband and me for the last 5 years. She is almost 91 and has a long list of health issues. This summer she began to have diarrhea that would clear up and then return. Long story short, she has been diagnosed with Celiac Disease. As her caretaker, I have immersed myself in research on this disease that no one in my family had ever heard of and have returned again and again to this site for information. I am very grateful for everything I have learned here here and congratulate all you wonderful folks for all the help and hope you give to others like me.

Hindsight being what it is, I can see how many of her health issues may be related to a long standing gluten problem that her doctors where she used to live never picked up on. She has many of the listed symptoms of the disease except this recent diarrhea was the first gastro intestinal issue that she can recall. When an emergency doctor recommended that she be tested for celiac disease, her primary agreed immediately. We began eliminating gluten at the end of June (I say began as everyone here knows how long it takes to recognize all the possible sources.) We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

Back to the question: My celiac disease test was negative, so neither my husband nor I are gluten-free although we are very careful about cross contamination. Our Golden Retriever, Ruby, is not gluten free either, but as my mom's best friend, you can all bet the puppy treats she gets from Mom sure are!

Thanks for being here.

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We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

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Linda,

Stomach pains from consuming dairy, if she does not get stomach pains foam gluten, sounds like lactose intolerance. Give her lactase before she eats dairy and see if it solves the problem. It might be possible than she has a problem with the protein, casien. If this is the case, it is like gluten. Avoidance is the cure.

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    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
    • I make my own mini loafs of a simple almond,coconut,apple sauce blend for dense, bland bread gluten free, and have my pastor bless them. I then keep them in the freezer and bring a piece with me for communion.
    • I don't have milk in liquid form any more, so I switched to coconut flavoured milk (rice based) for cereal, really like it. Then I take coffee black which I've also adjusted to. For an occasional treat I'll have a soy latte, tastes a bit nutty but I'm used to it now and it's as much about the visual treat of sitting in a coffee shop with a big milky coffee anyway. The last time I had a real milk latte I got some huge spots a day or so later on my chest and that was the clearest signal that milk and my skin weren't a good mix. What I haven't done is stop eating products that have milk listed as an ingredient. If I do that I lose so many of the nice gluten-free replacements  biscuits ice cream etc. I know I could try and get dairy free, but it's expensive and difficult to find. So maybe I should try doing that and see how I go... It's funny, a few years ago I used to have a 'healthy'  breakfast of porridge, milk, with a big spoon full of wheat bran for fibre which I convinced myself I needed for digestion. I used to feel pleased with myself for having a good start to the day when I subsequently found it was the worst combination of foods I could possibly have devised. I think If I ate that right now I'd explode!
    • I and many others here have been there and sympathise! Keep on keepin' on, it won't be long now before you can start feeling better. In the meantime, if there's a cheesecake, pastry etc that you want to say goodbye to, now's the time...
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